«Confessions of a Tired and Lonely Caregiver», Colleen Steele, Pulmonary Hypertension News, July 21, 2025

In an article for Pulmonary Hypertension News Colleen Steele reflects on her co-experience with her husband, Brian, concerning caregiver stress syndrome, a condition of overwhelming physical, emotional, and mental fatigue, often referred to as caregiver burnout. They describe progressing through three stages of the syndrome. Stage 1 began with their son Cullen’s diagnosis of pulmonary hypertension […]

«Confessions of a Tired and Lonely Caregiver», Colleen Steele, Pulmonary Hypertension News, July 21, 2025 Read Post »

The Role of Psychological Distress on Health-Related Quality of Life, Fatigue, and Pain in Adults With Pulmonary Hypertension, Pulmonary Circulation, June 17, 2025

A study published in Pulmonary Circulation on June 17, 2025 has examined the relationships between fatigue, pain, anxiety, depression, and quality of life in 68 adults with pulmonary hypertension, recruited from global pulmonary hypertensions associations, who completed a series of self-report measures. The researchers found alarmingly high rates of these symptoms: 86.8% experienced clinical levels

The Role of Psychological Distress on Health-Related Quality of Life, Fatigue, and Pain in Adults With Pulmonary Hypertension, Pulmonary Circulation, June 17, 2025 Read Post »

A randomized controlled trial of self-help cognitive behavioural therapy for depression in adults with pulmonary hypertension, British Journal of Health Psychology, September 2025 edition

A study of self-help cognitive behavioural therapy for depression in adults with pulmonary hypertension was recently conducted by a group of researchers and published in the British Journal of Health Psychology. Using a randomized controlled trial design with a wait-list control group, 68 adults reporting depressive symptoms were recruited from global pulmonary hypertension associations. The

A randomized controlled trial of self-help cognitive behavioural therapy for depression in adults with pulmonary hypertension, British Journal of Health Psychology, September 2025 edition Read Post »

Exploring the relationship between sleep difficulties, worry, mood and health-related quality of life in adults living with pulmonary hypertension, a study by researchers at the University of Sheffield, UK

Sleep difficulties are commonly reported by individuals living with pulmonary hypertension (PH); however, there is limited research examining their impact. In other chronic health conditions, sleep problems can affect health-related quality of life and mental wellbeing, potentially increasing the likelihood of experiencing anxiety and low mood. Establishing this relationship in adults with pulmonary hypertension could

Exploring the relationship between sleep difficulties, worry, mood and health-related quality of life in adults living with pulmonary hypertension, a study by researchers at the University of Sheffield, UK Read Post »

Mental Health Awareness Week in the UK (12-18 May): Discover Support Resources from the UK Pulmonary Hypertension Association for Patients and Families

This week (12th-18th May) is Mental Health Awareness Week in the UK. Over the years the UK pulmonary hypertension association, PHA UK, has built up a range of services and resources to help patients that are struggling with anxiety, depression, or general mental wellbeing, you can find all the details at here.

Mental Health Awareness Week in the UK (12-18 May): Discover Support Resources from the UK Pulmonary Hypertension Association for Patients and Families Read Post »

AI Model for Depression Diagnosis Developed in Finland: A Potential Breakthrough for Accessible and Early Mental Health Care

Researchers at Kaunas University of Technology, Finland, have developed an artificial intelligence model that combines speech and brain activity data to diagnose depression with an accuracy of 97.53 percent. This innovative approach, detailed in an article for Brain Sciences dated October 15, 2024, leverages both electroencephalogram signals and voice recordings to assess emotional states more

AI Model for Depression Diagnosis Developed in Finland: A Potential Breakthrough for Accessible and Early Mental Health Care Read Post »

The UK Pulmonary Association’s “Listening Line” support service provides dedicated time to talk through worries or concerns about emotional or mental wellbeing

The “Listening Line” is a free, confidential supportive call service is available to all members of the UK Pulmonary Hypertension Association, PHA UK, their family and friends. It is operated by experienced PHA UK staff, who are retired from the National Health Service (NHS). They are skilled and patient listeners, with many years of experience

The UK Pulmonary Association’s “Listening Line” support service provides dedicated time to talk through worries or concerns about emotional or mental wellbeing Read Post »

Poor sleep quality should not be overlooked in pulmonary arterial hypertension patient as it represents an additional disease burden, Acta Cardiologica

“Poor sleep quality is an overlooked symptom in patients with pulmonary arterial hypertension (PAH), however it may significantly contribute to disease burden”, claim the authors of a study titled “Sleep Quality and Its Predictors among Dyspnea, Fatigue and Exercise Capacity in Pulmonary Arterial Hypertension”, published in Acta Cardiologica. Karen Jacobson-Sive has summarised the key takeaways

Poor sleep quality should not be overlooked in pulmonary arterial hypertension patient as it represents an additional disease burden, Acta Cardiologica Read Post »

Overcoming Depression & Low Mood: A self-help programme for people with pulmonary hypertension by the Pulmonary Hypertension Association UK, PHA UK.

Developed by psychologists, and supported by the Pulmonary Hypertension Association UK, this four-week programme consists of a series of workbooks based on Cognitive Behavioural Therapy (CBT) to help you change your thinking habits and behaviours. You can work through them in your own time and in your own home. The programme has been tested with

Overcoming Depression & Low Mood: A self-help programme for people with pulmonary hypertension by the Pulmonary Hypertension Association UK, PHA UK. Read Post »

“There are so many things to be thankful for, even with pulmonary hypertension”, Jen Cueva, Pulmonary Hypertension News, November 20, 2024

A very touching and inspiring article by Jen Cueva was published in a recent edition of Pulmonary Hypertension News. This piece beautifully emphasizes gratitude as a transformative practice, even amid adversity. Jen effectively balances acknowledgment of the hardships of living with PH with a constructive approach to fostering positivity. The actionable advice—such as empathetic listening,

“There are so many things to be thankful for, even with pulmonary hypertension”, Jen Cueva, Pulmonary Hypertension News, November 20, 2024 Read Post »

Why compassion in healthcare matters, a blog post by Dr. Iain Armstrong, Chair of the Pulmonary Hypertension Association UK, October 15, 2024

As both a nurse and Chair of the Pulmonary Hypertension Association UK, Dr. Iain Armstrong is passionate about doing the right thing for patients. Compassion, he believes, lies at the heart of nursing and excellence in healthcare. Compassion, derived from the Latin “compassion” meaning “to suffer together,” is a vital strength that enables nurses to

Why compassion in healthcare matters, a blog post by Dr. Iain Armstrong, Chair of the Pulmonary Hypertension Association UK, October 15, 2024 Read Post »

Virtual reality technology can improve patient well-being in intensive care settings, a promising solution for patients undergoing major surgery like lung transplant

According to Paul Wischmeyer, Professor of Anesthesiology and Surgery with Tenure and Director of Perioperative Research, at the Duke Clinical Research Institute, USA, virtual reality technology offers a promising solution to improve patient well-being in intensive care settings. Staying in intensive care can be an incredibly challenging and disorienting experience for patients. Many face severe

Virtual reality technology can improve patient well-being in intensive care settings, a promising solution for patients undergoing major surgery like lung transplant Read Post »

Colleen Brunetti’s book “Defining the new normal: A guide to becoming more than your diagnosis”, now available on Kindle for free!

Colleen Brunetti started her career as a teacher, but after her pulmonary hypertension diagnosis was forced to leave this field. She began a journey to re-invent herself implementing a holistic lifestyle and went on to become a certified health coach. In her book “Defining the new normal: A guide to becoming more than your diagnosis”

Colleen Brunetti’s book “Defining the new normal: A guide to becoming more than your diagnosis”, now available on Kindle for free! Read Post »

“How your patient is really feeling: the emotional hinterland of a cardiac diagnosis”, European Heart Journal, 8 January 2024

The authors of this article, titled “How your patient is really feeling: the emotional hinterland of a cardiac diagnosis“, published on the European Heart Journal on January 8, 2024, focus on the impact of receiving and living with a cardiac disease diagnosis, and in particular to the psychosocial aspects, which, they say, continue to be underrepresented in

“How your patient is really feeling: the emotional hinterland of a cardiac diagnosis”, European Heart Journal, 8 January 2024 Read Post »

Findings from the UK Pulmonary Hypertension Association (PHA UK)’s major research into people’s lived experiences of pulmonary hypertension published, November 30, 2023

The findings of the UK Pulmonary Hypertension Association’s major research into people’s lived experiences of pulmonary hypertension have now been published and you can find them here. The survey was completed 859 times, and the results will underpin the UK Pulmonary Hypertension Association’s charitable activity for the next five years. Disclaimer While every possible effort

Findings from the UK Pulmonary Hypertension Association (PHA UK)’s major research into people’s lived experiences of pulmonary hypertension published, November 30, 2023 Read Post »

Top tips for looking after your mental health when you have pulmonary hypertension, a new resource from the phocusonlifestyle.org website of the PHA UK

Sophie Papageorgis is a counsellor and psychotherapist who has lived with pulmonary hypertension since she was a teenager. Check out her top tips for taking care of your mind when you have pulmonary hypertension at this link on the phocusonlifestyle.org website. Sophie invites persons struggling, feeling sad, anxious, or depressed, to reach out for support

Top tips for looking after your mental health when you have pulmonary hypertension, a new resource from the phocusonlifestyle.org website of the PHA UK Read Post »

Understanding the Interplay: Pulmonary Hypertension and Mental Well-Being on World Mental Health Day 2023, October 10

Today, on ‘World Mental Health Day’, an international day dedicated to global mental health education, awareness, and advocacy against social stigma, it’s important to recognize the profound impact of conditions like pulmonary hypertension. Beyond the physical limitations, individuals grapple with uncertainty about the future, potential challenges in continuing their careers, the necessity of regular medical

Understanding the Interplay: Pulmonary Hypertension and Mental Well-Being on World Mental Health Day 2023, October 10 Read Post »

The Pulmonary Hypertension Association UK conducted a study evaluating a self-help programme for patients who live with emotional difficulties, August 26, 2023

Are you currently grappling with pulmonary hypertension and finding that it’s impacting your emotional well-being, possibly leading to feelings of low mood or depression? The Pulmonary Hypertension Association UK has partnered with researchers at the University of Cardiff and Nottingham Trent University to conduct a study evaluating a new self-help programme for pulmonary hypertension patients who live

The Pulmonary Hypertension Association UK conducted a study evaluating a self-help programme for patients who live with emotional difficulties, August 26, 2023 Read Post »

Interesting articles of “Advances in PH”, including on mental health, the role of caregivers and the use of wearables in pulmonary hypertension, August 21, 2023

Advances in Pulmonary Hypertension is the USA Pulmonary Hypertension Association‘s quarterly medical journal, directed by an editorial board of renowned experts with the oversight of PHA’s Scientific Leadership Council. The latest edition, Vol.22, N°2, 2023, features many interesting articles. Topics covered include: Full text of this edition of Advances in Pulmonary Hypertension is available at this link

Interesting articles of “Advances in PH”, including on mental health, the role of caregivers and the use of wearables in pulmonary hypertension, August 21, 2023 Read Post »

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