Delighted to announce our next webinar, taking place on December 12, 2023!
This webinar marks the sixth installment in a series dedicated to delving into the groundbreaking innovations outlined in the 2022 ESC/ERS clinical guidelines for the diagnosis and treatment of pulmonary hypertension. One particularly notable advancement is the inclusion of a new section focusing on ‘Patient Associations and Patient Empowerment.‘ Additionally, the guidelines now recommend that pulmonary hypertension centers establish collaborative partnerships with patient associations. The program for this series was established in close collaboration with Prof. Marc Humbert, Director of the French National Reference Center for Pulmonary Hypertension, and a global authority in the field.
Meeting ID 847 3943 6854
Speakers (alphabetical order)
- Pisana Ferrari – Secretary General, Alliance for Pulmonary Hypertension and President of AIPI, Italian Pulmonary Hypertension Association
- Mélanie Gallant Dewavrin, Director of HTaPFrance, French pulmonary hypertension association
- Matt Granato – President and CEO of the PHA, Pulmonary Hypertension Association
- Dieter Kulla – President of ph e.v., German pulmonary hypertension patient association
- Gergely Meszaros, Project Manager at ERN-LUNG
This webinar aims to provide a historical overview of the pulmonary hypertension association ‘movement’ and its evolution over the past three decades. We will explore its journey and highlight its current pivotal role in pulmonary hypertension care. Understanding this evolution is key to recognizing the substantial impact patient associations have had on shaping today’s PH care landscape.
Agenda of webinar
- Introduction – Pisana Ferrari
- The “Pioneers”: the first world pulmonary hypertension associations
- The PHA – Matt Granato
- HTaPFrance – Mélanie Gallant-Dewavrin
- pulmonale hypertonie e.v. – Hans-Dieter Kulla
- The Current Landscape: A 30-Year Overview of World PH Associations and Umbrella Organizations – Pisana Ferrari
- Evolution of the Role of Patient Associations and challenges for their future – Gergely Meszaros
- Q&A Session
Revisit our previous webinars
Revisit the slides and recording of webinar five, November 21, 2023: Advancing CTEPH care: Exploring the Multimodal Management Strategy in the New ESC/ERS Guidelines
Revisit the slides and recording of webinar four, October 12, 2023: Introducing the Innovations in the 2022 Pulmonary Hypertension Treatment Algorithm
Revisit the slides, recording and transcript of webinar three, September 5, 2023: Balancing life and health: pulmonary hypertension, women & family planning
Revisit the slides, recording and transcript of webinar two, July 27, 2023: Patient Reported Outcome Measures and Their Role in Pulmonary Hypertension Care & Research
Revisit the slides, recording and transcript of webinar one, June 6, 2023: Patients as Partners and Shared Decision Making: a new paradigm in PH care
Our goal is to empower people living with pulmonary hypertension and their families by providing actionable insights and practical knowledge. All webinars will be broadcast across multiple platforms, including LinkedIn Live, Facebook Live, and YouTube, to ensure broad accessibility and participation. We are committed to preserving and sharing the wealth of information delivered during all the sessions. A comprehensive transcript will be made available after each webinar, allowing individuals to review and share the content with their networks. We recognise the importance of overcoming language barriers, and therefore, we will provide translations, on request, making these invaluable resources accessible to individuals from diverse linguistic backgrounds.
We do not store or register or collect any personal data and you are free to use pseudonyms when joining our webinars. You will be asked if you agree to voice recording when joining but, in any case, it is only the speakers who will be recorded. Webinar participants will be able to intervene in discussions via the chat box. They shall apply appropriate circumspection when disclosing any of their personally identifiable information or personally sensitive data since this information may be collected and used by other webinar participants.