The Alliance for Pulmonary Hypertension has released its first ten “PEP Talks” – part of the peer-to-peer patient educational video series launched in May. The name is a fun play on our “Patients Empowering Patients” program, and these short videos share practical insights from the people who really get it – fellow patients and caregivers.
Each 5-session series includes three talks on personal tips and coping strategies for patients and families, plus two sessions on digital and advocacy skills. The first five talks had over 1,700 YouTube views. This response was very encouraging for what was our first venture into this format! We are planning to continue until the end of the year, with breaks in August and December.
The content for the first five talks is available on the Pulmonary Hypertension Knowledge Sharing Platform in the PEP Talks section, featuring slides, full video recordings, and complete transcripts that can be translated into 40 languages. The other five talks will follow shortly.
We believe the best advice comes from lived experience, and we would love to hear from you. Do you have practical tips that have made your PH journey easier? Creative coping strategies that work? Advocacy insights you’ve learned along the way? We’re actively seeking volunteers to share their wisdom and become part of future PEP Talks. Whether you’re a patient or caregiver, your voice matters.
If you’d like to contribute your tips and advice to help fellow community members, please reach out to us via contact form Together, we can continue building this resource of peer wisdom.
