Proud to celebrate the 14 live webinars we have organised since the series launched in June 2023! A huge thank you to all our speakers and participants!

The Alliance for Pulmonary Hypertension (AfPH) recently concluded its 14th webinar, marking the culmination of an educational initiative that began in June 2023. These virtual gatherings brought together internationally renowned experts in pulmonary hypertension, who shared their expertise on a comprehensive range of topics crucial to advancing patient care and quality of life. The diverse […]

Proud to celebrate the 14 live webinars we have organised since the series launched in June 2023! A huge thank you to all our speakers and participants! Read Post »

Full transcript of the PVRI live webinar on “Debunking myths about Lung Transplantation”, September 25, 2024, now available and translatable in 50 languages!

The Pulmonary Vascular Research Institute (PVRI) organised a patient-directed webinar on “Debunking Myths of Lung Transplantation” on September 25, 2024. This was an outstanding webinar: the explanations were exceptionally clear and delivered in easy-to-understand language, covering every step of the transplant journey—from getting listed and preparing for surgery, through the operation and immediate post-op, to

Full transcript of the PVRI live webinar on “Debunking myths about Lung Transplantation”, September 25, 2024, now available and translatable in 50 languages! Read Post »

Video recording of the European Respiratory Society (ERS) Vision Live panel discussion titled “Review of the World Symposium on PH”, September 2, 2024 now available

The video recording of the European Respiratory Society (ERS) Vision Live panel discussion titled “Review of the World Symposium on Pulmonary Hypertension”, which took place on 2 September, 2024, in now available online on the ERS Respiratory Channel at this link Expert panellists Marc Humbert, Anton Vonk Noordegraaf, Ulrich Silvia, Isabel BLANCO VICH and Louise Bouman

Video recording of the European Respiratory Society (ERS) Vision Live panel discussion titled “Review of the World Symposium on PH”, September 2, 2024 now available Read Post »

Join the US Pulmonary Hypertension Association and US National Scleroderma Foundation for the “Managing Scleroderma and Pulmonary Arterial Hypertension” live webinar Friday, Sept. 20, 2024

The Pulmonary Hypertension Association in the US in collaboration with the National Scleroderma Foundation is organising a live webinar on September 20, 2024 at 2 p.m. EDT/6 p.m. UTC on “Managing Scleroderma and Pulmonary Arterial Hypertension”. Scleroderma is an autoimmune disease in which the immune system attacks various organs and tissues, including the lungs, kidneys,

Join the US Pulmonary Hypertension Association and US National Scleroderma Foundation for the “Managing Scleroderma and Pulmonary Arterial Hypertension” live webinar Friday, Sept. 20, 2024 Read Post »

Live webinar on exercise rehabilitation for pulmonary hypertension patients organised by the Canadian Pulmonary Hypertension Association, PHA Canada, on October 2nd 2024

The Canadian Pulmonary Hypertension Association, PHA Canada, is organising a live webinar on October 2nd 2024 at 20.30 CET on exercise rehabilitation for pulmonary hypertension patients. Dr. Oh and Dr. Rozenberg, from the University Health Network in Toronto, Ontario, will present the findings from their latest research, shedding light on the benefits and challenges of

Live webinar on exercise rehabilitation for pulmonary hypertension patients organised by the Canadian Pulmonary Hypertension Association, PHA Canada, on October 2nd 2024 Read Post »

Unraveling the genetics of pulmonary hypertension webinar

“Unraveling the Genetics of Pulmonary Hypertension” explored the genetic underpinnings of this complex disease. Our panel of experts, including a patient, explored the latest research, information on genetic mutations associated with pulmonary hypertension, and practical guidance on genetic counseling and testing. Speakers Prof David Montani, Department of Respiratory and Intensive Care Medicine, Pulmonary Hypertension National

Unraveling the genetics of pulmonary hypertension webinar Read Post »

The recording of PHA Europe’s first Health Technology Assessment (HTA) training webinars now available on the Bel Air Center online platform

PHA Europe, the European Pulmonary Hypertension Association, is offering training courses on Health Technology Assessment. (HTA) and Policy work. The first training session took place on June the 5th, 2024, and two more are scheduled before the end of the year: The speaker, Niels Bertelsen, is (volunteer) past chair of the Health Technology Assessment International

The recording of PHA Europe’s first Health Technology Assessment (HTA) training webinars now available on the Bel Air Center online platform Read Post »

“Fundamentals of Genetic Testing”, a live webinar organised by the Pulmonary Hypertension Association (PHA) in collaboration with with partners TBX4life and Fundación Contra la Hipertensión Pulmonar, June 11, 2024

The Pulmonary Hypertension Association (PHA) is holding a webinar of “Fundamentals of Genetic Testing“ on Tuesday, June 11, at 2 p.m. EDT/ 6 p.m. UTC in collaboration with TBX4Life and Fundación Contra la Hipertensión Pulmonar Featured topics include The webinar will be available in English and Spanish. Speakers Harm Jan Bogaard, MD, PhDProfessor of Experimental Pulmonary MedicinePulmonologist, Department

“Fundamentals of Genetic Testing”, a live webinar organised by the Pulmonary Hypertension Association (PHA) in collaboration with with partners TBX4life and Fundación Contra la Hipertensión Pulmonar, June 11, 2024 Read Post »

“Congenital heart disease and pulmonary hypertension”, an Alliance for Pulmonary Hypertension live webinar

Transcript “CONGENITAL HEART DISEASE AND PULMONARY HYPERTENSION”, MAY 18, 2024 NB. This transcript can be translated into your preferred language – use orange button at the bottom centre of this page to select it (slides are not translatable). DISCLAIMER: Despite every effort to ensure the accuracy of this transcript, we strongly encourage all visitors to consult with

“Congenital heart disease and pulmonary hypertension”, an Alliance for Pulmonary Hypertension live webinar Read Post »

Pulmonary hypertension “Question time” organised by the European Lung Foundation Pulmonary Hypertension Patient Advisory Group, May 31, 2024

Coming up on May 31st at 10 am CEST and not to be missed if you are part of the pulmonary hypertension community! The European Lung Foundation (ELF) Pulmonary Hypertension Patient Advisory Group was set up in 2023 and includes patients and patient advocates from a number of patient associations in Europe and in the

Pulmonary hypertension “Question time” organised by the European Lung Foundation Pulmonary Hypertension Patient Advisory Group, May 31, 2024 Read Post »

PHA Europe celebrates World Pulmonary Hypertension Day 2024 with a webinar on non pulmonary arterial hypertension forms of pulmonary hypertension

PHA Europe, the European Pulmonary Hypertension Association, is celebrating this year’s World Pulmonary Hypertension Day with a webinar on non pulmonary arterial hypertension forms of pulmonary hypertension, featuring world renowned expert expert Ardeschir Ghofrani as keynote speaker.  May 5, 2024 – 16:00 CET Link: https://belaircenter.info/

PHA Europe celebrates World Pulmonary Hypertension Day 2024 with a webinar on non pulmonary arterial hypertension forms of pulmonary hypertension Read Post »

Navigating sex and intimacy while living with pulmonary hypertension, a live webinar organised by the Pulmonary Hypertension Association of Canada (PHA Canada), April 29, 20:00 CET

Drs. Vargas and Ventetuolo will discuss sexual health and intimacy for individuals living with pulmonary hypertension and their partners in this PHA Canada live webinar on April 29, 2024. They will explore prior research, clinical observations, and insights gathered from their own interviews and surveys with pulmonary hypertension patients. This webinar aims to shed light

Navigating sex and intimacy while living with pulmonary hypertension, a live webinar organised by the Pulmonary Hypertension Association of Canada (PHA Canada), April 29, 20:00 CET Read Post »

Full transcripts of the Alliance for Pulmonary Hypertension’s 2023 webinars now available for in a format that can be translated into 40 languages

The full transcripts of the Alliance for Pulmonary Hypertension’s 2023 six webinars are now available! The transcripts encapsulate invaluable insights that continue to resonate with current trends and emerging issues, serving as a vital resource for our community. They are now in a format that can be translated into 40 languages, thanks to the embedded

Full transcripts of the Alliance for Pulmonary Hypertension’s 2023 webinars now available for in a format that can be translated into 40 languages Read Post »

“Patient Involvement in Guidelines”, a webinar organised by ERKNet and EURORDIS, featuring Matt Bolz-Johnson as speaker, April 22, 2024

Clinical practice guidelines provide essential recommendations for diagnosing and treating medical conditions. In the realm of pulmonary hypertension a groundbreaking milestone has been achieved with the inclusion of two patient representatives, Pisana Ferrari and Gergely Meszaros JD, MSc, as members of the dedicated task force and co-authors of the new guidelines jointly developed by the European Society of Cardiology and the European Respiratory

“Patient Involvement in Guidelines”, a webinar organised by ERKNet and EURORDIS, featuring Matt Bolz-Johnson as speaker, April 22, 2024 Read Post »

Live webinar on new therapies by the US Pulmonary Hypertension Association’s, Feb. 21, at 2 p.m. EST

A this PHA live webinar speakers Sandeep Sahay, and Vallerie V. McLaughlin discussed hopeful discoveries from late-stage clinical trials and the differences between current symptom management practices and new disease-modifying therapeutics. The webinar will be moderated by PHA’s Elizabeth Joseloff. This webinar covered the following topics: • The differences between the current symptom management practices

Live webinar on new therapies by the US Pulmonary Hypertension Association’s, Feb. 21, at 2 p.m. EST Read Post »

New webinar series on pulmonary hypertension in French by Belgian associations VZW and HTAP Belgique in collaboration with renowned expert Prof. Jean-Luc Vachéry

Important news for French-speaking pulmonary hypertension patients in Belgium and, indeed, in the rest of the world! PH Belgium – Pulmonale Hypertensie vzw, in collaboration with HTAP Belgique and Prof. Dr. Jean-Luc Vachiery is organising a series of webinars in French addressing a wide range of topics related to pulmonary hypertension including R&D, multidisciplinary care, the role of nurses in the coordination

New webinar series on pulmonary hypertension in French by Belgian associations VZW and HTAP Belgique in collaboration with renowned expert Prof. Jean-Luc Vachéry Read Post »

“Discovering New Pulmonary Hypertension Therapies on the Horizon”, a live webinar on February 21, 2024, organised by the US Pulmonary Hypertension Association, PHA

Join the Pulmonary Hypertension Association, PHA, for the upcoming “Discovering New Pulmonary Hypertension Therapies on the Horizon” PHA Live webinar on Wednesday, Feb. 21 at 2 pm. EST/ 7 p.m. UTC. During the webinar, Sandeep Sahay, MD, MSc, ATSF, will review: Don’t miss this opportunity to gain insights into these promising therapies that will help manage your

“Discovering New Pulmonary Hypertension Therapies on the Horizon”, a live webinar on February 21, 2024, organised by the US Pulmonary Hypertension Association, PHA Read Post »

Embark on a journey to discover the history of the pulmonary hypertension association movement by revisiting the AfPH’s recent webinar

This Alliance for Pulmonary Hypertension webinar marks the sixth installment in a series dedicated to delving into the groundbreaking innovations outlined in the 2022 ESC/ERS clinical guidelines for diagnosing and treating pulmonary hypertension. One particularly notable advancement is the inclusion in the guidelines, for the first time, of a new section focusing on ‘Patient Associations and

Embark on a journey to discover the history of the pulmonary hypertension association movement by revisiting the AfPH’s recent webinar Read Post »

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