The Alliance for Pulmonary Hypertension (AfPH) recently concluded its 14th webinar, marking the culmination of an educational initiative that began in June 2023. These virtual gatherings brought together internationally renowned experts in pulmonary hypertension, who shared their expertise on a comprehensive range of topics crucial to advancing patient care and quality of life. The diverse lineup of speakers brought a truly international perspective, with representatives from 20 countries across 5 continents. The speaker panel included 24 renowned scientific experts, 13 patients and patient advocates, as well as two specialist moderators who facilitated meaningful dialogue and engagement. The webinars served as a vital platform for knowledge exchange between healthcare professionals, researchers, and the patient community, fostering collaborative discussions.
We are deeply grateful and extend our warmest thanks to everyone who contributed to their success – from the volunteers who gave their time to organise them, to the speakers who shared their expertise, to the donors who believed in our cause.
To maximize the accessibility and utility of this valuable content, the Alliance for Pulmonary Hypertension has made the video recordings, presentation slides, and full transcripts available on the Pulmonary Hypertension Knowledge Sharing Platform. Notably, the transcripts can be translated into 40 languages directly on the platform, removing language barriers and empowering a global audience to access and share this wealth of information.
These are the topics that were covered in the webinar series:
- Patients as partners and shared decision making, a new paradigm in pulmonary hypertension care.
- The rise of the pulmonary hypertension association movement and its role today.
- Patient-reported outcome measures (PROMs).
- Pregnancy and family planning.
- The new treatment algorithm in the 2022 pulmonary hypertension guidelines.
- Lung and heart/lung transplantation in pulmonary hypertension.
- Multimodal treatment strategies for chronic thromboembolic pulmonary hypertension.
- Pulmonary endarterectomy and balloon pulmonary angioplasty in chronic thromboembolic pulmonary hypertension.
- Congenital heart disease (CHD) in pulmonary hypertension.
- Genetics and genetic counseling in pulmonary hypertension.
- Clinical trials in pulmonary hypertension.
- Mental health and pulmonary hypertension.
- Access to pulmonary hypertension care in Global South part 1 (Central and Latin America).
- Access to pulmonary hypertension care in Global South part 2 (Africa and Asia).
A huge thank you to all our volunteers, speakers, participants and donors who have contributed to making this series a success. We look forward to continuing to bring the global pulmonary hypertension community together through these new impactful webinars.
Read more and access the slides, video-recordings and transcripts in the “Our webinars” section of this platform.
Here are our panelists and moderators, in alphabetical order.
