Impressive numbers for the latest edition of World Pulmonary Hypertension Day: full report in the summer 2024 edition of Mariposa, PHA Europe’s journal

World Pulmonary Hypertension Day (May 5) is increasingly becoming a pivotal global event for raising awareness about the condition and advocate for improved care, as highlighted by the impressive figures shared in the latest edition of PHA Europe’s magazine, Mariposa. Launched by the Asociación Nacional de Hipertensión Pulmonar ANHP in 2012, World PH Day is […]

Impressive numbers for the latest edition of World Pulmonary Hypertension Day: full report in the summer 2024 edition of Mariposa, PHA Europe’s journal Read Post »

“Integrating the patient perspective into future pulmonary hypertension clinical trials”, European Society of Cardiology Annual Congress 2024, talk by Pisana Ferrari, member of the ESC Patient Forum

The European Society of Cardiology’s Congress is the foremost gathering in the field of cardiology worldwide. This year’s edition took place in London from 30.8-1.9, 2024, and counted 31,700 participants from 162 countries, including 5,400 faculty and presenters, representatives of the National Cardiac Societies and industry partners. Pisana Ferrari, the Alliance for Pulmonary Hypertension’s Secretary

“Integrating the patient perspective into future pulmonary hypertension clinical trials”, European Society of Cardiology Annual Congress 2024, talk by Pisana Ferrari, member of the ESC Patient Forum Read Post »

Hall Skaara reports back from the Pulmonary Hypertension Association conference in Indianapolis, USA, August 15-18, 2024, where he represented PHA Europe

The US Pulmonary Hypertension Association (PHA) hosted its 15th international Pulmonary Hypertension conference in Indianapolis, Indiana, from August 15-18, 2024. This event gathered approximately 1,100 healthcare professionals, researchers, patients, and advocates from across the globe. The event aimed to strengthen connections and promote collaboration within the pulmonary hypertension community. Key sessions included a joint presentation

Hall Skaara reports back from the Pulmonary Hypertension Association conference in Indianapolis, USA, August 15-18, 2024, where he represented PHA Europe Read Post »

Join the US Pulmonary Hypertension Association and US National Scleroderma Foundation for the “Managing Scleroderma and Pulmonary Arterial Hypertension” live webinar Friday, Sept. 20, 2024

The Pulmonary Hypertension Association in the US in collaboration with the National Scleroderma Foundation is organising a live webinar on September 20, 2024 at 2 p.m. EDT/6 p.m. UTC on “Managing Scleroderma and Pulmonary Arterial Hypertension”. Scleroderma is an autoimmune disease in which the immune system attacks various organs and tissues, including the lungs, kidneys,

Join the US Pulmonary Hypertension Association and US National Scleroderma Foundation for the “Managing Scleroderma and Pulmonary Arterial Hypertension” live webinar Friday, Sept. 20, 2024 Read Post »

The August 2024 edition of “RESPIRO2”, the magazine of the Argentinian Pulmonary Hypertension Association is now out

The Argentinian Pulmonary Hypertension Association – Hipertension Pulmónar Argentina – has just released the tenth edition of the RESPIRO2 Magazine, featuring important information about pulmonary hypertension. This edition features articles about: Read this edition of RESPORO2 and past editions at this link on the Hipertension Pulmónar Argentina website.

The August 2024 edition of “RESPIRO2”, the magazine of the Argentinian Pulmonary Hypertension Association is now out Read Post »

Attitudes towards the use of the “clinical frailty scale” in pulmonary hypertension, a survey by the UK Pulmonary Hypertension Association, PHA UK

A survey was conducted by the UK Pulmonary Hypertension Association to explore the potential use of the “clinical frailty scale” alongside the commonly used EmPHasis-10 questionnaire to better understand how pulmonary hypertension affects patients’ quality of life. The scale, already used in other conditions like chronic obstructive pulmonary disease (COPD), assigns a score based on

Attitudes towards the use of the “clinical frailty scale” in pulmonary hypertension, a survey by the UK Pulmonary Hypertension Association, PHA UK Read Post »

The US Pulmonary Hypertension Association launches a new podcast series called “PH Insights”

The Pulmonary Hypertension Association in the U.S. has introduced a new podcast titled “PH Insights.” This podcast aims to elevate patient voices and foster in-depth discussions with healthcare professionals on various aspects of pulmonary hypertension. In the debut episode, “Filling in the Blanks: Understanding Pulmonary Hypertension, Part 1,” Jenny Yang, an assistant professor of medicine

The US Pulmonary Hypertension Association launches a new podcast series called “PH Insights” Read Post »

Scientific sessions, workshops, and community at the 2024 Annual Meeting of the German pulmonary hypertension association ph e.v., October 25-27, 2024

Friday, October 25, 2024: Saturday, October 26, 2024: 14:30 – Workshop Block I: (Registration required) 16:30 – Workshop Block II: (Registration required) Sunday, October 27, 2024:

Scientific sessions, workshops, and community at the 2024 Annual Meeting of the German pulmonary hypertension association ph e.v., October 25-27, 2024 Read Post »

The key role of patient associations highlighted during discussions at the 5th French Pulmonary Hypertension Network Meeting, “Respiratory Medicine and Research”, Volume 86, 2024

The 5th French Pulmonary Hypertension Network Meeting, convened in Le Kremlin-Bicêtre, France, in 2023, served as a platform to examine current evidence and outstanding questions in pulmonary hypertension, particularly in the context of the recently published 2022 ESC/ERS Guidelines. The French Network is composed of some of France’s key experts in the field of pulmonary

The key role of patient associations highlighted during discussions at the 5th French Pulmonary Hypertension Network Meeting, “Respiratory Medicine and Research”, Volume 86, 2024 Read Post »

A decade of tee-ing off for breath: PHA Canada’s “GolPH for PH” Marks 10 Years of Hope and $160,000 Raised

The Canadian Pulmonary Hypertension Association, PHA Canada, celebrated 10 successful “GolPH for PH” tournaments on July 15, 2024. This tournament started as an endeavour to raise funds and awareness about pulmonary arterial hypertension led by Joan and Pat Paulin, whose daughter Brooke had been diagnosed with the condition. Ten years later over $160,000 have been

A decade of tee-ing off for breath: PHA Canada’s “GolPH for PH” Marks 10 Years of Hope and $160,000 Raised Read Post »

PHA Canada’s PH Community Conference is taking place September 19-21, 2024 in Calgary

The program of PHA Canada’s Community Conference includes plenary sessions, specialized discussion panels and peer discussion groups that will provide community members at all stages of their pulmonary hypertension journeys a safe space to learn something new and connect with PHriends. More details available at this link on the PHA Canada website

PHA Canada’s PH Community Conference is taking place September 19-21, 2024 in Calgary Read Post »

Colleen Brunetti, pulmonary arterial hypertension patient and patient advocate, speaks about her experience with the condition and clinical trials, May 2024

Colleen Brunetti, Past Chair of the Board of the Pulmonary Hypertension Association, speaks about her experience with the condition and taking part in clinical trials in this video, published on the European Lung Foundation YouTube channel. Read more about Colleen and her book “Defining the new normal: A guide to becoming more than your diagnosis”

Colleen Brunetti, pulmonary arterial hypertension patient and patient advocate, speaks about her experience with the condition and clinical trials, May 2024 Read Post »

Vacation tips for patients from Jolande de Jonge, pulmonary hypertension nurse consultant at Erasmus MC, Netherlands

Vacation is important, even if you have pulmonary hypertension. “Everyone needs a break now and then,” says Jolande de Jonge, pulmonary hypertension nurse consultant at Erasmus MC. In the latest edition of “Papillon,” the magazine of PHA Netherlands, she provides some tips for patients on vacation and says, “If there is anything we can support,

Vacation tips for patients from Jolande de Jonge, pulmonary hypertension nurse consultant at Erasmus MC, Netherlands Read Post »

Interesting news! Recent research suggests that Italian musical genius Antonio Vivaldi suffered from pulmonary hypertension!

A recent study suggests that Italian composer Antonio Vivaldi, known for his musical genius, may have suffered from pulmonary hypertension. The study was led by the esteemed Italian oncologist, and accomplished musician, Prof. Giuseppe Gullo, and was published in Studi Vivaldiani, the annual journal of the Istituto Italiano Antonio Vivaldi (founded in 1947), which has

Interesting news! Recent research suggests that Italian musical genius Antonio Vivaldi suffered from pulmonary hypertension! Read Post »

“Submit your healthy recipes”, the Pulmonary Hypertension Association, PHA, calls on the community to help collect pulmonary hypertension-friendly recipes

Most people with pulmonary hypertension have specific dietary needs that are often overlooked in healthy recipe books and websites. The Pulmonary Hypertension Association, PHA, is calling on the community to help collect healthy recipes such as low-sodium dishes, pulmonary hypertension-friendly desserts or nutrient-rich meals, to support and inspire others on their wellness journey. Learn more

“Submit your healthy recipes”, the Pulmonary Hypertension Association, PHA, calls on the community to help collect pulmonary hypertension-friendly recipes Read Post »

Unraveling the genetics of pulmonary hypertension webinar

“Unraveling the Genetics of Pulmonary Hypertension” explored the genetic underpinnings of this complex disease. Our panel of experts, including a patient, explored the latest research, information on genetic mutations associated with pulmonary hypertension, and practical guidance on genetic counseling and testing. Speakers Prof David Montani, Department of Respiratory and Intensive Care Medicine, Pulmonary Hypertension National

Unraveling the genetics of pulmonary hypertension webinar Read Post »

NEW! Patient booklet on lung transplant by the Italian Pulmonary Hypertension Association AIPI now directly translatable in 40 languages on this platform! Check it out!

The patient booklet on lung transplant by AIPI, Italian Pulmonary Hypertension publication “Guida al Trapianto di polmoni” has been adapted and translated into English by Pisana Ferrari, President of AIPI. You can now translate the entire booklet directly from here using the orange button at the bottom of the page: 40 languages are currently available

NEW! Patient booklet on lung transplant by the Italian Pulmonary Hypertension Association AIPI now directly translatable in 40 languages on this platform! Check it out! Read Post »

Only two weeks to go to the 7th World Symposium on Pulmonary Hypertension, Barcelona, June 29-July 1st, 2024

Only 2 weeks to go to the World Symposium on Pulmonary Hypertension – June 29 to July the 1st, 2024, Barcelona. The Alliance for Pulmonary Hypertension will have six delegates attending. Visit our booth and meet the team! Ioanna Alysandratou Ιωάννα Αλυσανδράτου Chair of the Hellenic Community for Pulmonary Hypertension and President of the Alliance

Only two weeks to go to the 7th World Symposium on Pulmonary Hypertension, Barcelona, June 29-July 1st, 2024 Read Post »

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