The Alliance for Pulmonary Hypertension’s 2025 Webinar Series: Uniting the Global Community – With Gratitude to Our Speakers and Participants

The Alliance for Pulmonary Hypertension’s quarterly webinars aim to keep the community informed and connected by examining recent advancements, emerging research, and new initiatives in pulmonary hypertension. Through a blend of expert (scientific and patient) presentations and open dialogue, these sessions encourage active participation and create space for diverse perspectives from patients, caregivers, and healthcare […]

The Alliance for Pulmonary Hypertension’s 2025 Webinar Series: Uniting the Global Community – With Gratitude to Our Speakers and Participants Read Post »

Celebrating the Alliance for Pulmonary Hypertension’s first 18 “PEP Talks” since the launch of the program in May 2025, and looking forward to many more in 2026!

The Alliance for Pulmonary Hypertension introduced its 2025 “Patients Empowering Patients” (PEP) program, designed to harness the power of peer-to-peer support, on May 5, 2025, World Pulmonary Hypertension Day. The name “PEP Talks” is a playful nod to the acronym of the “PEP” program, and it embodies the encouraging and motivational spirit of traditional pep

Celebrating the Alliance for Pulmonary Hypertension’s first 18 “PEP Talks” since the launch of the program in May 2025, and looking forward to many more in 2026! Read Post »

Integrating Sotatercept Into Pulmonary Arterial Hypertension (PAH) Care: Vallerie McLaughlin, MD, American Heart Association, November 9, 2025

Vallerie McLaughlin, MD, the Kim A. Eagle M.D. Endowed Professor of Cardiovascular Medicine and Professor of Internal Medicine at the University of Michigan Medical School, presented the results of a pooled analysis of the PULSAR, STELLAR, and ZENITH trials of sotatercept in pulmonary arterial hypertension at the 2025 American Heart Association Scientific Sessions, held in

Integrating Sotatercept Into Pulmonary Arterial Hypertension (PAH) Care: Vallerie McLaughlin, MD, American Heart Association, November 9, 2025 Read Post »

The Rising Crisis of Meth-Associated Pulmonary Hypertension in America, a special edition series of the phaware podcast “I’m aware that I am rare”.

phaware® global association announces the launch of an impactful new special edition series of our acclaimed podcast, “I’m Aware That I’m Rare,“ shining a spotlight on the urgent and growing crisis of methamphetamine-associated pulmonary hypertension (Meth-PAH). The six-episode series, premiering September 16 and running through October 21, kicks off our 10th season and leads up to November’s Pulmonary Hypertension Awareness Month with

The Rising Crisis of Meth-Associated Pulmonary Hypertension in America, a special edition series of the phaware podcast “I’m aware that I am rare”. Read Post »

“First five minutes”: building patient trust, a PHAWARE GLOBAL podcast, July 22, 2025 

In episode 530 of the phaware® podcast Drs. Victor Test, Deborah Levine and Rodolfo Estrada discuss CHEST’s First 5 Minutes® program, which helps medical professionals build the skills that lead to a positive relationship with patients from the get-go, creating trust and developing empathy to build rapid rapport and communicate with patients. The goal is to

“First five minutes”: building patient trust, a PHAWARE GLOBAL podcast, July 22, 2025  Read Post »

Roham Zamanian, MD, FCCP discusses the concept of “disease modification” in the treatment of pulmonary hypertension in a PHAWARE global association podcast

Dr. Roham Zamanian MD, FCCP, discusses the concept of “disease modification” in the treatment of pulmonary hypertension. He describes how this idea emerged from discussions with colleagues about the future of pulmonary hypertension therapies, and the potential for treatments to impact the underlying disease process beyond just reducing pulmonary artery pressures. Listen to the podcase

Roham Zamanian, MD, FCCP discusses the concept of “disease modification” in the treatment of pulmonary hypertension in a PHAWARE global association podcast Read Post »

Recording of May 15, 2025 European Patients’ Forum webinar on understanding patients’ rights in the European Health Data Space (EHDS) now available

On 15 May 2025, the European Patient Forum (EPF) hosted a webinar to inform patients, health professionals, researchers, and other stakeholders about the key aspects of the European Health Data Space (EHDS). The webinar focused on patients’ rights and the practical changes the regulation introduces. The recording is now available at this link Photo credit:

Recording of May 15, 2025 European Patients’ Forum webinar on understanding patients’ rights in the European Health Data Space (EHDS) now available Read Post »

Mental Health Awareness Week in the UK (12-18 May): Discover Support Resources from the UK Pulmonary Hypertension Association for Patients and Families

This week (12th-18th May) is Mental Health Awareness Week in the UK. Over the years the UK pulmonary hypertension association, PHA UK, has built up a range of services and resources to help patients that are struggling with anxiety, depression, or general mental wellbeing, you can find all the details at here.

Mental Health Awareness Week in the UK (12-18 May): Discover Support Resources from the UK Pulmonary Hypertension Association for Patients and Families Read Post »

Jimmy Ford MD discusses the work of the “Patient Perspectives” Taks force at the 7th World Symposium on Pulmonary Hypertension in a podcast for phaware Global Association

Jimmy Ford, MD discusses the 7th World Symposium on Pulmonary Hypertension and his work on the “Patient Perspectives” Task Force, check out the PHAWARE GLOBAL ASSOCIATION podcast, episode 512 at this link The “Patient Perspectives” Task Force was composed of four patient representatives, three of which are patients (Pisana Ferrari, Italy; Hall Skaara, Norway, and

Jimmy Ford MD discusses the work of the “Patient Perspectives” Taks force at the 7th World Symposium on Pulmonary Hypertension in a podcast for phaware Global Association Read Post »

UK Pulmonary Hypertension Association Chair Dr Iain Armstrong explains what happens next now that sotatercept has been approved in the UK, YouTube

The new pulmonary arterial hypertension treatment sotatercept was approved for use in the UK by the Medicines and Healthcare products Regulatory Agency (MHRA) at the end of December 2024 – but that doesn’t mean it can now be prescribed. In this short video, the Chair of the UK Pulmonary Hypertension Association Dr Iain Armstrong explains

UK Pulmonary Hypertension Association Chair Dr Iain Armstrong explains what happens next now that sotatercept has been approved in the UK, YouTube Read Post »

The phaware global association celebrates 500 podcasts and being voted #1 of the “10 Best Pulmonary Hypertension Podcasts You Must Follow in 2025”

Looking back on the year 2024, PHAWARE’s founder Steve Van Wormer reflects on an extraordinary year of milestones that exemplify the association’s dedication to raising awareness and fostering innovation for the pulmonary hypertension community. Among the notable achievements: the successful launch of a groundbreaking new app, the remarkable milestone of 500 episodes of the inspiring

The phaware global association celebrates 500 podcasts and being voted #1 of the “10 Best Pulmonary Hypertension Podcasts You Must Follow in 2025” Read Post »

Proud to celebrate the 14 live webinars we have organised since the series launched in June 2023! A huge thank you to all our speakers and participants!

The Alliance for Pulmonary Hypertension (AfPH) recently concluded its 14th webinar, marking the culmination of an educational initiative that began in June 2023. These virtual gatherings brought together internationally renowned experts in pulmonary hypertension, who shared their expertise on a comprehensive range of topics crucial to advancing patient care and quality of life. The diverse

Proud to celebrate the 14 live webinars we have organised since the series launched in June 2023! A huge thank you to all our speakers and participants! Read Post »

Pulmonary arterial hypertension: A practical roadmap from diagnosis to treatment, Prof. Jean-Luc Vachiéry and Prof. Manreet Kanwar, Touch Respiratory

In an insightful discussion organised by Touch Respiratory, an E-Learning Provider , Prof. Jean-Luc Vachiery and Prof. Manreet Kanwar consider the state of the art in pulmonary arterial hypertension, including disease diagnosis, risk stratification, and key considerations for optimizing treatment and patient care in an evolving therapeutic landscape. Prof. Manreet Kanwar is Co-Director, Division of

Pulmonary arterial hypertension: A practical roadmap from diagnosis to treatment, Prof. Jean-Luc Vachiéry and Prof. Manreet Kanwar, Touch Respiratory Read Post »

Video recording of the ERN ReCONNETT webinar on the screening and treatment of systemic sclerosis-association pulmonary arterial hypertension now available, Prof.s Erich Hachulla and Olivier Sitbon

The video recording of the latest ERN ReCONNET webinar on the screening and treatment of systemic sclerosis-associated pulmonary arterial hypertension is now available at this link Guest speakers were Prof. Eric Hachulla from the Lille University Hospital, France and Prof. Olivier SITBON from Hôpital Bicêtre in Le Kremlin – Bicêtre, France, moderated by Prof. Smith

Video recording of the ERN ReCONNETT webinar on the screening and treatment of systemic sclerosis-association pulmonary arterial hypertension now available, Prof.s Erich Hachulla and Olivier Sitbon Read Post »

The US Pulmonary Hypertension Association launches a new podcast series called “PH Insights”

The Pulmonary Hypertension Association in the U.S. has introduced a new podcast titled “PH Insights.” This podcast aims to elevate patient voices and foster in-depth discussions with healthcare professionals on various aspects of pulmonary hypertension. In the debut episode, “Filling in the Blanks: Understanding Pulmonary Hypertension, Part 1,” Jenny Yang, an assistant professor of medicine

The US Pulmonary Hypertension Association launches a new podcast series called “PH Insights” Read Post »

Orgamites, a free global educational program about organ donation and transplantation for children aged 5-11, now being started in UK schools

The “Orgamites Mighty Education Programme” is a free global organ donation and health education programme for children aged 5-11. It uses educational resources, tools, toys, and tech to inspire and equip more students, teachers, and families everywhere to talk more about organ donation and how to take better care of our health. The Orgamites programme

Orgamites, a free global educational program about organ donation and transplantation for children aged 5-11, now being started in UK schools Read Post »

Colleen Brunetti, pulmonary arterial hypertension patient and patient advocate, speaks about her experience with the condition and clinical trials, May 2024

Colleen Brunetti, Past Chair of the Board of the Pulmonary Hypertension Association, speaks about her experience with the condition and taking part in clinical trials in this video, published on the European Lung Foundation YouTube channel. Read more about Colleen and her book “Defining the new normal: A guide to becoming more than your diagnosis”

Colleen Brunetti, pulmonary arterial hypertension patient and patient advocate, speaks about her experience with the condition and clinical trials, May 2024 Read Post »

Award-winning singer, songwriter and speaker Chloe Temtchine, who is a former pulmonary hypertension patient and double lung transplant recipient, releases a new song dedicated to her donor

Chloe Temtchine is an award-winning singer, songwriter, speaker, and the creator of “Super Brave,” an interview series that features both kids and adults who are living with a chronic illness. Her dedication to the cause includes “The Chloe Temtchine Foundation” (TCTF) which supports those living with pulmonary arterial hypertension and other serious conditions. Through TCTF,

Award-winning singer, songwriter and speaker Chloe Temtchine, who is a former pulmonary hypertension patient and double lung transplant recipient, releases a new song dedicated to her donor Read Post »

The recording of PHA Europe’s first Health Technology Assessment (HTA) training webinars now available on the Bel Air Center online platform

PHA Europe, the European Pulmonary Hypertension Association, is offering training courses on Health Technology Assessment. (HTA) and Policy work. The first training session took place on June the 5th, 2024, and two more are scheduled before the end of the year: The speaker, Niels Bertelsen, is (volunteer) past chair of the Health Technology Assessment International

The recording of PHA Europe’s first Health Technology Assessment (HTA) training webinars now available on the Bel Air Center online platform Read Post »

Dutch pulmonary hypertension expert Prof. Dr. Harm Jan Bogaard delves into the intricacies of the condition in a Spotify podcast for “De Internist”, May 21, 2024

Prof. Dr. Harm Jan Bogaard, pulmonologist and Professor of Experimental Pulmonary Medicine from the Amsterdam UMC deconstructs the underlying mechanisms, risk factors, and symptoms of pulmonary hypertension, as well as shedding light on its diagnosis and management strategies, in a Spotify podcast for De Internist. One hour listening time, well worth it! Tune in at

Dutch pulmonary hypertension expert Prof. Dr. Harm Jan Bogaard delves into the intricacies of the condition in a Spotify podcast for “De Internist”, May 21, 2024 Read Post »

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