These infographics can be downloaded from the Stichting Pulmonale Hypertensie, the Dutch pulmonary hypertension association at this link:
Check the “Pulmonale Hypertensie, wat is dat?” (What is pulmonary hypertension?) video at this link on the Stichting Pulmonale Hypertensie YouTube channel
Save the date! The Dutch Pulmonary Hypertension Association is delighted to announce its 2023 Annual Patient Meeting, taking place in Nijkerk on November 11, 2023. This year’s theme is “Moving forward together,” reflecting the spirit of unity and progress within the pulmonary hypertension community. The event features a dynamic program, including informative presentations on clinical
The European Communication on Research Awareness Needs, the ECRAN project is an online platform that is available in five languages in addition to English (German, Italian, French, Polish, Spanish), which contains a wealth of information about clinical trials, and explains everything patients need to know in order to take part in them. Rea more on
The Vestingloop has multiple components; running, trailrun and walking. There are different distances so basically everyone can participate. Last year this event had 7.000 participants. The 17th edition is taking place on May 14, from 9 to 4 pm in ‘s-Hertogenbosch, Netherlands, and, thanks to the charity “Heb hart voor longen” (Have a heart for
“Eroi anonimi” (“Anonymous heroes”) is an Italian online platform aimed at the promotion of organ donation among the general population. The slogan of this awareness initiative is “You can be a hero even without superpowers”. The platform features information about the importance of organ donation, on the different procedures that are used in Italy to
The patient booklet titled “An appetite for life”, developed by the Polish pulmonary hypertension association PHA Polska, contains valuable advice about nutrition for patients with pulmonary hypertension. It also provides tips on how patients can adapt their diet to their condition without sacrificing the pleasure of eating well, and features a number of recipes. It
Patient booklet on nutrition by the Polish pulmonary hypertension association PHA Polska Read Post »
Nonprofit Team PHenomenal Hope launched its new educational website “Learn Live Breathe PH” on Rare Disease Day, February 28, 2023. Written by experts in the field the platform was created to help pulmonary hypertension patients navigate the complexities of living with this chronic illness and feel empowered by relevant, scientific information. The website provides guidance
The aim of this booklet is to help people diagnosed with pulmonary arterial hypertension, and those around them, to better understand the journey that the disease entails, from the uncertainty associated with the appearance of the first symptoms to coming to terms with the diagnosis and a new life with the disease. It is not
The Belgian Flemish Association, Pulmonale hypertentie vzw, has published an interview with patient advocates Gergely Meszaros (PHA Europe) and Pisana Ferrari (AIPI, Italian Pulmonary Hypertension Association, Italy) in the latest edition of their magazine “ADEMLOS”. In this interview Gergely and Pisana discuss their contribution to the new ESC/ERS pulmonary hypertension guidelines, and in particular: The
Associazione Malati di Ipertensione Polmonare (AMIP) Adress: Via Ardea 1/B 00183 Roma Phone Number: +39 333 115 0989 Association Email: amip.onlus@yahoo.it http://www.assoamip.net/ https://www.facebook.com/AssociazioneMalatiDiIpertensionePolmonare
Associazione Malati di Ipertensione Polmonare (AMIP) Read Post »
PH “Plava krila “Croatia Pisarovia, Croatia Phone Number: +385 (0)91 535 7439 Association Email: infoplavakrila@gmail.com https://www.plavakrila.hr/
PH “Plava krila” Croatia Read Post »
iSeek Center China Adress: 1012-15 health zhigu, gebäude 9, nr. 35 huayuan north road (北京市海淀区花园北路35号9号楼健康智谷1012-15) Phone Number: +86 400 7788 120 Association President: Huang Huan (黄欢) Association Email: office@iseek.org.cn http://www.iseek.org.cn/
iSeek Center China Read Post »
Belgische Patiëntenvereniging voor Pulmonale Hypertensie vzw (P.H. België vzw) Adress: Kruisbeeldstraat 28, 9220 Hamme Phone Number: +32 (0) 472 794 994 Association President: Wendy Vansteenkiste Association Email: info@ph-vzw.be https://www.ph-vzw.be/
Belgische Patiëntenvereniging voor Pulmonale Hypertensie vzw (P.H. België vzw) Read Post »
This boklet published by AIPI, the Italian pulmonary hypertension association features a collection of patient testimonies. The aim of the book was to enable patients to understand how it is possible to experience the disease with the same intensity, but approaching it from different points of view. And also to enable them to think of
This booklet developed by by AIPI, Italian pulmonary hypertension association, contains pratical advice and tips for day-to-day life with pulmonary arterial hypertension. It stresses the importance of being organised and reserving one’s energies on what really matters. The condition has an impact on many aspects of life and relationships, so it is important to involve
In chronic thromboembolic pulmonary hypertension (Group 4 of the classification of the WHO, World Health Organisation) pulmonary hypertension is due to the mechanical obstruction of the pulmonary circulation by thrombi (blood clots) that have progressively accumulated. In this booklet by AIPI, Italian pulmonary patient association you will find information on: Download the AIPI booklet on
AIPI, Associazione Ipertensione Polmonare Italiana (Italian Pulmonary Hypertension Association) in a non profit organisation founded in Bologna in 2001. AIPI provides different forms of support to patients. These include: Link to AIPI website
AIPI, Associazione Ipertensione Polmonare Italiana, Italian PH Association Read Post »
