The Belgian Flemish Association, Pulmonale hypertentie vzw, has published an interview with patient advocates Gergely Meszaros (PHA Europe) and Pisana Ferrari (AIPI, Italian Pulmonary Hypertension Association, Italy) in the latest edition of their magazine “ADEMLOS”. In this interview Gergely and Pisana discuss their contribution to the new ESC/ERS pulmonary hypertension guidelines, and in particular:
- Their role inside the Task Force for the new joint ESC/ERS Guidelines on PH
- What it meant for them to be the first patient advocates ever to be included
- Patient engagement and patient empowerment and why this is important
- The novelties in the new guidelines with respect to the past
The article can be downloaded from the Pulmonale hypertentie vzw’s website at this link
Translation of the article in other languages is available on request. Please use the contact form