The aim of this booklet is to help people diagnosed with pulmonary arterial hypertension, and those around them, to better understand the journey that the disease entails, from the uncertainty associated with the appearance of the first symptoms to coming to terms with the diagnosis and a new life with the disease. It is not an easy journey and, despite the huge progress made in pulmonary hypertension care over the past 30 years, life with pulmonary hypertension remains challenging for patients and their families and carers from a physical, practical, psychological and social point of view. This booklet looks at the impact of the disease on mental well being and provides advice for day-to-day life.
This booklet is the Italian version of a Spanish resource titled “ASPECTOS EMOCIONALES DE LA HIPERTENSIÓN PULMONAR, Una guía para las personas afectadas”. The translation into Italian was kindly authorised by the Asociación Nacional de Hipertensión Pulmonar. The author is
Sara Toledano Márquez, psychologist and psychotherapist. Revision of Italian version: Musa Madeddu, Milano.
Download the booklet from the AIPI website at this link