European Society of Cardiology (ESC) announces launch of the plain language version of the guidelines on cardio-vascular disease in pregnancy on March 8, 2026, International Women’s Day

This International Women’s Day, the European Society of Cardiology (ESC) proudly announced the launch of the patient version of the 2025 guidelines on the management of cardiovascular disease (CVD) in pregnancy. Pregnancy is a life-changing experience — but for women living with cardiovascular disease, it comes with an additional layer of complexity, uncertainty, and anxiety. […]

European Society of Cardiology (ESC) announces launch of the plain language version of the guidelines on cardio-vascular disease in pregnancy on March 8, 2026, International Women’s Day Read Post »

Heart and lung machine (ECMO) boosts survival for pregnant women with pulmonary arterial hypertension and pregnancy in a case series, Pulmonary Hypertension News, February 2, 2026

Pulmonary Hypertension News published a report on February 2, 2026, about a case series and literature review found that ECMO (extracorporeal membrane oxygenation)—a life-support machine that temporarily replaces heart and lung function—significantly improves survival in pregnant women with severe pulmonary arterial hypertension (PAH). The study documented five cases where the machine was used as rescue

Heart and lung machine (ECMO) boosts survival for pregnant women with pulmonary arterial hypertension and pregnancy in a case series, Pulmonary Hypertension News, February 2, 2026 Read Post »

Breast cancer and pulmonary arterial hypertension: an unexpected connection: both diseases share a vulnerability in the BMPR2 gene, Circulation, January 28, 2026

Women are disproportionately affected by both pulmonary arterial hypertension (PAH) and breast cancer. BMPR2 (bone morphogenetic protein receptor type 2) mutations are the leading genetic cause of familial pulmonary arterial hypertension. The findings of a study published in Circulation indicate that breast cancer and pulmonary arterial hypertension share a common genetic link involving the BMPR2

Breast cancer and pulmonary arterial hypertension: an unexpected connection: both diseases share a vulnerability in the BMPR2 gene, Circulation, January 28, 2026 Read Post »

Free publication of the month on “Menopause and Pulmonary Hypertension”, by the UK Pulmonary Hypertension Association PHA UK

Menopause affects all women in the pulmonary hypertension community at some stage of their life. A free publication by the Pulmonary Hypertension Association UK answers common questions, shares real experiences, and brings expert advice to support women who are going through the process. Order it here

Free publication of the month on “Menopause and Pulmonary Hypertension”, by the UK Pulmonary Hypertension Association PHA UK Read Post »

Global, Regional, and National Burden of Pulmonary Arterial Hypertension Among Women of Childbearing Age, 1990–2021, Pulmonary Circulation, August 20, 2025

This global study spanning from 1990 to 2021, published in Pulmonary Circulation, aimed to delineate the global burden of pulmonary arterial hypertension among women of childbearing age. The research reveals both encouraging and concerning trends. While mortality and disability rates have declined over the past three decades due to improved treatments, the absolute number of

Global, Regional, and National Burden of Pulmonary Arterial Hypertension Among Women of Childbearing Age, 1990–2021, Pulmonary Circulation, August 20, 2025 Read Post »

Menopause and pulmonary hypertension, a new publication by the UK Pulmonary Hypertension Association, PHA UK

Menopause affects many women in the pulmonary hypertension community. This new publication by the UK Pulmonary Hypertension Association, PHA UK, answers common questions, shares real experiences, and brings expert advice to help make things a little easier for patients. Order this free resource on the PHA UK website at this link

Menopause and pulmonary hypertension, a new publication by the UK Pulmonary Hypertension Association, PHA UK Read Post »

Pulmonary arterial hypertension (PAH): sex-specific differences and outcomes, Therapeutic Advances in Respiratory Disease, Jan-Dec 2025

Pulmonary arterial hypertension has a higher prevalence in women than men, yet notable sex-based differences influence disease presentation, treatment response, and outcomes. Based on data from major pulmonary arterial hypertension clinical trials the authors of a recent study published in Therapeutic Advances in Respiratory Disease have found that: These sex-based differences, say the authors, highlight

Pulmonary arterial hypertension (PAH): sex-specific differences and outcomes, Therapeutic Advances in Respiratory Disease, Jan-Dec 2025 Read Post »

Survey uncovers significant emotional and social impacts beyond traditional medical outcomes for women with pulmonary arterial hypertension, Healio, May 19, 2025

Isabella Hornick’s article, “ Women with Pulmonary Arterial Hypertension Report Struggles with Family Planning and Caregiver Needs”, published by Healio on May 19, 2205, reports on comprehensive survey conducted on 275 women with pulmonary arterial hypertension aged 21-50 from the U.S., U.K., Canada, and Germany. The average age of the included women differed at PAH

Survey uncovers significant emotional and social impacts beyond traditional medical outcomes for women with pulmonary arterial hypertension, Healio, May 19, 2025 Read Post »

Pregnancy and pulmonary arterial hypertension: Management challenges, International Journal of Cardiology Congenital Heart Disease, March 2025

This article, published in the International Journal of Cardiology Congenital Heart Disease in March 2025, discusses pulmonary hypertension in pregnancy, historically associated with poor outcomes, and provides recent evidence suggesting that the prognosis varies based on underlying cause and severity. The authors emphasize the need for individualized care through a multidisciplinary team approach at tertiary

Pregnancy and pulmonary arterial hypertension: Management challenges, International Journal of Cardiology Congenital Heart Disease, March 2025 Read Post »

How music can affect intimacy and sex while living with pulmonary hypertension, Jen Cueva, Pulmonary Hypertension News, September 18, 2024

Jen Cueva, who is a pulmonary arterial hypertension patient and former nurse, serves as a forum moderator for “Pulmonary Hypertension News”, where she has weekly column. In an article published on September 18, 2024, Jen addressed the very important but little talked about issue of intimacy and sexuality in pulmonary hypertension. Companionship and physical intimacy

How music can affect intimacy and sex while living with pulmonary hypertension, Jen Cueva, Pulmonary Hypertension News, September 18, 2024 Read Post »

According to research presented at the American Thoracic Society (ATS) congress hormone replacement therapy may be associated with improved pulmonary hypertension in women

Interesting news from American Thoracic Society congress 2024, taking place May 17-22 in San Diego, USA. According to research presented at the congress the use of hormone replacement therapy (HRT) may be associated with improved pulmonary hypertension in women. The study included 742 women from all five World Health Organization pulmonary hypertension groups. Audriana Hurbon MD is the

According to research presented at the American Thoracic Society (ATS) congress hormone replacement therapy may be associated with improved pulmonary hypertension in women Read Post »

Navigating sex and intimacy while living with pulmonary hypertension, a live webinar organised by the Pulmonary Hypertension Association of Canada (PHA Canada), April 29, 20:00 CET

Drs. Vargas and Ventetuolo will discuss sexual health and intimacy for individuals living with pulmonary hypertension and their partners in this PHA Canada live webinar on April 29, 2024. They will explore prior research, clinical observations, and insights gathered from their own interviews and surveys with pulmonary hypertension patients. This webinar aims to shed light

Navigating sex and intimacy while living with pulmonary hypertension, a live webinar organised by the Pulmonary Hypertension Association of Canada (PHA Canada), April 29, 20:00 CET Read Post »

Full transcripts of the Alliance for Pulmonary Hypertension’s 2023 webinars now available for in a format that can be translated into 40 languages

The full transcripts of the Alliance for Pulmonary Hypertension’s 2023 six webinars are now available! The transcripts encapsulate invaluable insights that continue to resonate with current trends and emerging issues, serving as a vital resource for our community. They are now in a format that can be translated into 40 languages, thanks to the embedded

Full transcripts of the Alliance for Pulmonary Hypertension’s 2023 webinars now available for in a format that can be translated into 40 languages Read Post »

The Dutch Pulmonary Hypertension Association expands its website to include a very comprehensive range of new resources

The Stichting Pulmonale Hypertensie / PH Association the Netherlands has expanded their website considerably with articles about different aspects of living with pulmonary hypertension: 🔹 Intimacy and sexuality🔹 Studying with PH🔹 PH and work🔹 Financial issues🔹 Nutrition🔹 Travel and holidays🔹 Children and PH🔹 Exercise and sports🔹 Government support at home🔹 Benefits for disable people NB!

The Dutch Pulmonary Hypertension Association expands its website to include a very comprehensive range of new resources Read Post »

A guide to intimacy for pulmonary hypertension patients published the US Pulmonary Hypertension Association, PHA

This guide has been created for adult members of the pulmonary hypertension community interested in or engaged in physically intimate and/or sexual activity. The guide addresses, inter alia, some common “myths” about sex in pulmonary hypertension, eg. that if you are a patient you are not sexual or desirable, that there are more important things

A guide to intimacy for pulmonary hypertension patients published the US Pulmonary Hypertension Association, PHA Read Post »

Wrapping up a successful year of pulmonary hypertension knowledge-sharing educational live web events!

The Alliance for Pulmonary Hypertension has just held the last webinar of the six-part series it launched in June 2023 exploring the innovations outlined in the 2022 joint clinical guidelines on pulmonary hypertension by the European Society of Cardiology (ESC) and the European Respiratory Society (ERS). Across these six insightful sessions, we delved into pivotal

Wrapping up a successful year of pulmonary hypertension knowledge-sharing educational live web events! Read Post »

Embracing Life: Rob’s Journey with familial pulmonary arterial hypertension

This article was originally published in “Papillon”, the magazine of the Dutch Pulmonary Hypertension Association’s, in the first edition of 2023, at pages 8-9. The author is Anita Harte. We extend our heartfelt thanks to Rob for having shared his journey with us. Rob (39) has familial pulmonary arterial hypertension. He is a member of

Embracing Life: Rob’s Journey with familial pulmonary arterial hypertension Read Post »

Announcing our next webinar on “Balancing life and health: Pulmonary Hypertension, women and family planning”, September 5, 2023 at 18:00 CEST

Pregnancy in pulmonary hypertension is a very sensitive and multifaceted topic. Beyond medical considerations, cultural, religious, and personal beliefs play pivotal roles, adding layers of complexity to the decision-making process. Navigating this delicate journey requires a comprehensive understanding of each individual’s unique circumstances and values. Panelists Karen M. Olsson MD – Department of Respiratory Medicine,

Announcing our next webinar on “Balancing life and health: Pulmonary Hypertension, women and family planning”, September 5, 2023 at 18:00 CEST Read Post »

Lay summary of the 2022 ESC/ERS clinical guidelines on the diagnosis and treatment of pulmonary hypertension now available in 11 languages!

“Diagnosing and treating pulmonary hypertension – understanding the professional guidelines” is an easy to understand summary of the joint European Society of Cardiology (ESC) and European Respiratory Society (ERS) clinical guidelines for pulmonary hypertension (PH). It was published on the European Lung Foundation (ELF) website on 02/11/2022. It is for people with pulmonary hypertension, or

Lay summary of the 2022 ESC/ERS clinical guidelines on the diagnosis and treatment of pulmonary hypertension now available in 11 languages! Read Post »

The UK Pulmonary Hypertension Association, PHA UK, has a dedicated page about menopause in pulmonary hypertension and features four patient testimonials

Menopause is something that 50% of the population will experience at some point in their life, but it isn’t talked about enough. The PHA UK takes a closer look at menopause, and how it affects women with pulmonary hypertension. Read more at this link on the PHA UK phocusonlifestyle.org web page Four patients have shared

The UK Pulmonary Hypertension Association, PHA UK, has a dedicated page about menopause in pulmonary hypertension and features four patient testimonials Read Post »

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