Natalia Maeva, a patient advocate for pulmonary hypertension, attended the European Respiratory Society (ERS) Presidential Summit in Warsaw in June 2026, participating in sessions on early detection, air quality, tobacco control, climate change and lung health. Having had her own life transformed by access to specialised treatment and lung transplantation, she found the discussions on […]
Lukáš Jakovec set off from Udine, Italy, on 11 October 2025 — a trip he had been planning for over seven years. Two hundred and thirty days and 22,000 km later, with a total elevation gain of roughly 144,000 metres, he rolled into Prague, his home town. Along the way he looped through Italy, including
Introducing the Alliance for Pulmonary Hypertension’s New Board of Directors 2026-2029 We are proud to introduce the new Board of the Alliance for Pulmonary Hypertension — a group of dedicated patient advocates bringing decades of combined experience to our mission of improving life for people living with pulmonary hypertension across the world. Pisana Ferrari, President
The Rino Aldrighetti Leadership Award is the highest honor presented by the Pulmonary Hypertension Association (PHA). The award honors people who have shown outstanding leadership, commitment, and worldwide influence in raising PH awareness, supporting patients, and pushing forward treatment options. Omitogun was diagnosed with pulmonary hypertension in 2013 after a congenital heart defect, and over
Pulmonary hypertension treatments continue to evolve and one very promising advancing treatment option is inhaled therapy which delivers medication directly to the lungs. The webinar speakers will discuss the current landscape and future of inhaled therapies in pulmonary hypertension, including:• Currently approved inhaled therapies.• Key differences between inhaled treatment options and the conditions they manage,
At the Alliance for Pulmonary Hypertension we are very proud that Louise Bouman, Member of our Board, has been elected as Chair of the UPAG (United Patient Advisory Group) of the European Lung Foundation, United Patient Advisory Group within the European Lung Foundation (ELF), a collaborative network consisting of representatives from various condition-specific Patient Advisory
Swedish biotech Cereno Scientific has announced a collaboration with PHA Europe & Global, aimed at integrating the patient perspective more systematically into clinical trial design and execution. Cereno is developing two experimental medications that could expand choices in this space: CS1 for pulmonary arterial hypertension (PAH) and CS014 for pulmonary hypertension associated with lung disease (PH-ILD). The
The Pulmonary Hypertension Association, PHA, is hosting a free webinar on transplant evaluation for people living with pulmonary hypertension and their caregivers. The session will cover how risk assessment works, how risk scores guide transplant referral and timing, and what questions to ask your care team — with perspectives on both adult and paediatric patients.
On 5 May, World Pulmonary Arterial Hypertension Day, a beautiful and unusual initiative brought the stories of people living with this rare condition to life in an unexpected way — through music. “Aria di vita” (“Breath of Life”) is a campaign promoted by MSD Italia, with the patronage of the two Italian pulmonary hypertension patient
Welcome to our April roundup of the most relevant and interesting content shared on this platform. April 2026 has been a particularly rich month, with significant news on the diagnostics, clinical trials and treatment front alongside important research on quality of life, patient preferences information, economic burden. There is also a selection of patient resources
Within the framework of the PHA 2026 International Conference (June 11-14 in Dallas, Texas), the Global Allergy & Airways Patient Platform (GAAPP) and Latin Health Leaders (LDL) will convene the “Global Pulmonary Hypertension Patient Hackathon“, taking place on June 10 (full day) and June 11 (half day), with the strategic support of the Pulmonary Vascular Research Institute (PVRI) and the Pulmonary Hypertension
The Canadian Pulmonary Hypertension Association (PHA Canada) has launched a “Pulmonary Hypertension Peer Mentor Program”, designed to connect patients and caregivers with trained volunteers. The peer mentors offer a supportive ear, share practical insights, and provide helpful resources based on their own lived experience with pulmonary hypertension. Read more on the PHA Canada website at
The UK Pulmonary Hypertension Association (PHA UK) is inviting everyone in the pulmonary community to enter their Poetry Competition — patients, caregivers, family members, friends, and healthcare professionals alike. It’s free to enter. These are some of the topics suggested: 👉 Visit the PHA UK website to enter.
This month, The Canadian Pulmonary Hypertension Association PHA Canada is raising awareness about the life-changing impact of organ and tissue donation. The newest issue of their magazine Connections is dedicated to Transplant & Pulmonary Hypertension, and it explores this important topic through stories, insights, and resources from the community. 👉 Subscribe to Connections and receive
Here is a short report: Walk4PH is a growing awareness initiative founded by Ayotunde Omitogun, a pulmonary hypertension patient and founder of the Cardiac Community, a Nigerian non-profit organisation dedicated to improving the lives of people living with heart and lung conditions. This year, Walk4PH has evolved into something larger than a single event. Built
Walk4PH Nigeria: A Community Steps Up for Pulmonary Hypertension Awareness, May 16, 2026 Read Post »
The Canadian Pulmonary Hypertension Association (PHA Canada) has recently announced the setting up of a “Patient Partner Advisory Council (PPAC)”—a new committee which brings together patients and caregivers to help shape the future of the pulmonary hypertension community. The founding members are Angèle Belliveau, Don Downey, Maureen Harper, Brooke Paulin, and Jane Sernoskie. Their lived experience
As US Pulmonary Hypertension Association, celebrates its 35th anniversary this year, founders Judy and Ed Simpson reflect on the organization’s history in the latest issue of Pathlight magazine. Check out the timeline at this link The Pulmonary Hypertension Association (PHA) was founded in 1991 by three patients and a nurse in Florida, and has grown
Czech cyclist Lukáš Jakovec is now on day 177 of his extraordinary solo bike journey around Europe, having covered an impressive 15,290 kilometres along the coastline — by the longest route possible. Lukáš is no ordinary cyclist. A multi-talented Czech professional — chef, tennis coach, tournament referee and professional bowler — he embarked on the
Starting from March 2026, our monthly highlights will be available not only on LinkedIn but also directly on the this platform – making it easier for our global community to stay up to date with the latest in pulmonary hypertension research, clinical developments and patient resources. The other advantage is that this page can be
At the 66th Congress of the German Society for Pneumology in Munich, the €5,000 René Baumgart Foundation research prize was awarded to two outstanding researchers working in the field of pulmonary hypertension (full text in German available at this link) English AI translation and summary Dr. Fenja Knöpp (Justus Liebig University, Giessen) was recognised for
