The European Lung Foundation (EF) has just updated its page on pulmonary hypertension to include translations into its nine core languages.
Program May 17, 2024 Welcome and Official Greetings Program May 18, 2024 See program in Greek here
Hellenic Community for Pulmonary Hypertension symposium on May 17-18 2024 Read Post »
Last year the Canadian Pulmonary Hypertension Association, PHA Canada, conducted a survey to explore the financial and employment impacts of pulmonary arterial hypertension in Canada. The aim of the research was to understand how this condition affects patients’ work and daily activities. The survey also captured information about patients’ need for caregivers and the impact
Gossamer Bio and Chiesi Group have announced a a global collaboration agreement to develop seralutinib, an inhaled investigational drug for the treatment of pulmonary arterial hypertension. Seralutinib is currently being investigated in the ongoing global Phase 3 trial, PROSERA, for pulmonary arterial hypertension. This collaboration further enhances the resources and expertise devoted to seralutinib and
On Saturday the 4th of May 2024, a number of pulmonary hypertension patients and their relatives, friends and carers, from Switzerland and Germany joined the French group to celebrate World Pulmonary Hypertension Day together, as has been their custom since 2016. At the initiative of HTaPFrance, the French pulmonary hypertension association, the gathering was held
Today, on May 5, World Pulmonary Hypertension Day, the Alliance for Pulmonary Hypertension celebrates one year since the launch of the Pulmonary Hypertension Knowledge Sharing Platform! For those of you who have not yet had a chance to visit it, the Pulmonary Hypertension Knowledge Sharing Platform is: The Pulmonary Hypertension Knowledge Sharing Platform is an
Celebrating one year from the Pulmonary Hypertension Knowledge Sharing Platform launch! Read Post »
World Pulmonary Hypertension Day symbolizes the solidarity and unity of the community in facing this condition’s challenges. The members of the Alliance for Pulmonary Hypertension celebrate this day by emphasising the importance of sharing knowledge and best practices to empower patients, engage the scientific community, and foster collaboration in pulmonary hypertension care. This is the
The Cell metabolism journal has published a study by the University of Pittsburgh researcher Stephen Chan, MD, PhD, and colleagues from the team of Thomas Bertero at the Université Côte d’Azur in France, which explores the relation between diet and pulmonary hypertension. The findings reveal that hypertensive pulmonary blood vessel cells have an “appetite” for two
Coming up on May 31st at 10 am CEST and not to be missed if you are part of the pulmonary hypertension community! The European Lung Foundation (ELF) Pulmonary Hypertension Patient Advisory Group was set up in 2023 and includes patients and patient advocates from a number of patient associations in Europe and in the
The Pulmonary Hypertension Association‘s CEO Matt J. Granato shares the association’s plans to celebrate the 2024 World Pulmonary Hypertension Day and invites the global PH community to mark this longstanding and important awareness campaign around the theme of “unity”. Read more at this link on the PHA website
PHA Europe, the European Pulmonary Hypertension Association, is celebrating this year’s World Pulmonary Hypertension Day with a webinar on non pulmonary arterial hypertension forms of pulmonary hypertension, featuring world renowned expert expert Ardeschir Ghofrani as keynote speaker. May 5, 2024 – 16:00 CET Link: https://belaircenter.info/
April 28 is ESOT – European Society for Organ Transplantation Action Day. ESOT is calling for enhanced cooperation among EU member states to empower transplant centres in delivering consistent, high-quality transplantation service ahead of the EU elections. ESOT is looking to drive the following 5 actions in the European Parliament between 2024 and 2029: Read
Could a medical innovation known as the “sentinel skin flap” hold the key to early detection of rejection in lung transplant patients? This pioneering technique, currently under investigation in a trial conducted by the University of Oxford and NHS Blood and Transplant, offers new hope for enhancing post-transplant care. Leading the charge in this groundbreaking trial is Henk Giele,
“Outnumber PAH” is a new campaign launched by Merck to spread awareness and empower pulmonary arterial hypertension patients. The website features medical information about pulmonary hypertension and sections on living with the condition, patient stories and a conversation guide. Find out more at this link
The Spanish Foundation for Pulmonary Hypertension, Fundación Contra la Hipertensión Pulmonar, has been selected as winner of one of the prizes of the “Inocente Foundation” for its project on “Non-invasive Remote Monitoring for children with Pulmonary Hypertension”, which will be carried out at the Ramón y Cajal University Hospital.
The UK Pulmonary Hypertension Association launched a survey on nutrition and pulmonary arterial hypertension last year in March in which they asked patients about eating habits, food preferences, and cooking or weight management challenges. The findings were announced at the Pulmonary Vascular Research Institute (PVRI)’s congress in January 2024 and, more recently, on social media.
United Therapeutics has been granted a patent for a method to treat pulmonary arterial hypertension (PAH) by administering endothelial progenitor cells treated with prostacyclin Application n° US17072430, December 12, 2023, Publication Number: US11839631B2. The news was reported in the Magazine “Pharmaceutical Technology, April 4, 2024. To be followed! Read more at this link on the
Mutations in the TBX4 gene can cause not only heritable pulmonary arterial hypertension (HPAH) in children but also skeletal anomalies causing issues with the knee and hip joints. TBX4 mutations can cause another serious illness, Interstitial Lung Disease in Childhood (chILD), which is also incurable. Anton Morkin is the father of a young boy who
Drs. Vargas and Ventetuolo will discuss sexual health and intimacy for individuals living with pulmonary hypertension and their partners in this PHA Canada live webinar on April 29, 2024. They will explore prior research, clinical observations, and insights gathered from their own interviews and surveys with pulmonary hypertension patients. This webinar aims to shed light
April 7 is the UN “World Health Day”. This date marks the anniversary of the founding of World Health Organization in 1948. Health is a human right: everyone, everywhere, should have access to quality health services. This year’s theme was chosen to champion the right of everyone, everywhere to have access to quality health services, education, and
