ABRAF Associação Brasileira de Apoio à Família com Hipertensão Pulmonar e Doenças Correlatas Adress: Rua Dr. Virgilio de Carvalho Pinto 445 – Pinheiros São Paulo – SP Brasil Phone Number: +55 (0) 800 042 0070 Association President: Flávia Lima https://abraf.ong/
Udruženje građana oboljelih od plućne hipertenzije “DAH” – u Bosni i Hercegovini Address: R465, Zavidovići, Bosnien und Herzegowinaavidovići, Bosnia And Herzegovina Phone Number: +387 61 622 949 Association Email: ugphbih@gmail.com http://www.phbih-dah.com/ (temporarily disabled) https://www.facebook.com/plucnahipertenzijabosneihercegovine/
Udruženje građana oboljelih od plućne hipertenzije “DAH” – u Bosni i Hercegovini Read Post »
Belgische Patiëntenvereniging voor Pulmonale Hypertensie vzw (P.H. België vzw) Adress: Kruisbeeldstraat 28, 9220 Hamme Phone Number: +32 (0) 472 794 994 Association President: Wendy Vansteenkiste Association Email: info@ph-vzw.be https://www.ph-vzw.be/
Belgische Patiëntenvereniging voor Pulmonale Hypertensie vzw (P.H. België vzw) Read Post »
Htap Belgique asbl Rixensart, Belgium Adress: Beau Site-1ère Avenue 83, 1330 Rixensart, Belgien Phone Number: +32 2 654 13 60 Association President: Luc Matthysen Association Email: htapbelgique@hotmail.com https://www.facebook.com/htapbelgique
Htap Belgique Asbl Read Post »
PH Belarus Minsk, Belarus Association President: Aksana Snezhko Association Email: phbelarus@yandex.ru
PHA Bangladesh Dhaka, Bangladesh Adress: C/O BUHS, 125/1 Darussalam Road, Mirpur, Dhaka-1216, Bangladesh Phone Number: +8801710-972498 Association President: Prof. Shah Monir Hossain Association Email: email@email.com http://pha-bangladesh.org/
PHA Europe European pulmonary hypertension umbrella organisation 33 member associations Address: Wilhelmstraße 21. A-1120 Vienna, Austria Phone Number: (+43) 1 402 3725 Association President: Eva Otter Association Email: info@phaeurope.org https://www.phaeurope.org/
PH Austria – Initiative Lungenhochdruck Wien, Österreich Adress: Wilhelmstrasse 21, A-1120 Wien Phone Number: +43 664 28 80 888 oder +43 664 22 88 888 Association President: Gerald Fischer Association Email: info@phaustria.org https://lungenhochdruck.at/
PH Austria – Initiative Lungenhochdruck Read Post »
HIPUA Hipertension Pulmonar Argentina Buenos Aires, Argentina Adress: Belgrano Bs.As.Argentina Phone Number: +54 (011) 4673 8063 Association President: Nancy Campelo Association Email: info@hipertensionpulmonarargentina.org http://hipertensionpulmonarargentina.org
HIPUA Hipertension Pulmonar Argentina Read Post »
PHAA Australia Association President: Joan Godber Association Email: admin@phaaustralia.com.au https://www.phaaustralia.com/
This boklet published by AIPI, the Italian pulmonary hypertension association features a collection of patient testimonies. The aim of the book was to enable patients to understand how it is possible to experience the disease with the same intensity, but approaching it from different points of view. And also to enable them to think of
The 2nd edition of Nefes contains Interviews with health care professionals, an article about the PAHSSc President Kamil Hamidullah and a number of patient stories. Download the newsletter at this link: ac24e500cf111ce1a4741e3e0f69954a
2nd edition of “Nefes”, the Turkish PH patient association PAHSSc’s monthly newsletter Read Post »
PH Human, part of the JanssenWithMe digital platform, was created in partnership with the pulmonary hypertension patient community and is dedicated to supporting people with the condition. It has a particular focus on pulmonary arterial hypertension (Group 1 WHO classification of pulmonary hypertension). It helps share real-life experiences from people living with pulmonary arterial hypertension
This booklet developed by by AIPI, Italian pulmonary hypertension association, contains pratical advice and tips for day-to-day life with pulmonary arterial hypertension. It stresses the importance of being organised and reserving one’s energies on what really matters. The condition has an impact on many aspects of life and relationships, so it is important to involve
In chronic thromboembolic pulmonary hypertension (Group 4 of the classification of the WHO, World Health Organisation) pulmonary hypertension is due to the mechanical obstruction of the pulmonary circulation by thrombi (blood clots) that have progressively accumulated. In this booklet by AIPI, Italian pulmonary patient association you will find information on: Download the AIPI booklet on
The European Union (EU) pharmaceutical legislation known as the Clinical Trials Regulation comes into force today, the 31st of January 2022. It aims to ensure the EU offers an attractive and favourable environment for carrying out clinical research on a large scale, with high standards of public transparency and safety for clinical trial participants. Prior to
The EU Clinical Trials Regulation came into force 31st of January 2022 Read Post »
AIPI, Associazione Ipertensione Polmonare Italiana (Italian Pulmonary Hypertension Association) in a non profit organisation founded in Bologna in 2001. AIPI provides different forms of support to patients. These include: Link to AIPI website
AIPI, Associazione Ipertensione Polmonare Italiana, Italian PH Association Read Post »
The “Guide to Lung Transplant” by AIPI, Italian patient association provides practical advice on the different phases of the patient journey: the ‘before’, ‘during’ and ‘after’. The last part of the book collects some patient testimonies. Download the AIPI “Guide to lung transplantation” at this link
Patient booklet on lung transplant by AIPI, Italian pulmonary hypertension association Read Post »
New research at Royal Brompton and Harefield hospitals in the U.K. will evaluate whether the levels of NT-proBNP, a heart damage biomarker that serves as a prognostic marker of pulmonary hypertension, can be accurately measured in a finger-prick blood sample that can be taken by patients at home and sent by mail to laboratories (this
Educational video by the French pulmonary hypertension association HTAPFrance which contains interviews with top pulmonary hypertension health care professionals and patients at three of the main pulmonary hypertension expert centers in France. You can view the video at this link
