Announcing five new “PEP Talks, part of our ongoing “Patient Empowering Patients” educational video series, September 28, 2026

We are thrilled to release five brand-new “Patients Empowering Patients” talks — five women, three countries (Italy, Turkey, the US), and five very different stories, all united by the same resilience and positive outlook that defines this community. From Aygün Mengelli Tomur’s lung transplant journey “From Waiting to Breathing: A New Beginning,” to Deger Kesimogluğlu’s […]

Announcing five new “PEP Talks, part of our ongoing “Patient Empowering Patients” educational video series, September 28, 2026 Read Post »

Patients and Advocates Call on US Congress to Pass Life-Changing Oxygen Reform Before End of Year

Patients, caregivers and advocates across the US are calling for passage of the SOAR Act (Supplemental Oxygen Access Reform Act), a bipartisan bill aimed at improving access to supplemental oxygen for over 1.5 million Americans with serious lung and heart conditions — including portable, high-flow liquid oxygen, which is often unreliable, delayed, or simply unavailable under current

Patients and Advocates Call on US Congress to Pass Life-Changing Oxygen Reform Before End of Year Read Post »

Join our prestigious panel of speakers on September 28 at 6 pm CEST to gain expert insights on how the new advances in science and AI can improve pulmonary arterial hypertension care!

The Alliance for Pulmonary Hypertension (AfPH) is back with the third instalment of their 2026 webinar series exploring how new science and AI are transforming pulmonary arterial hypertension care. This session taking place on September 28 at 6 pm CEST brings together leading experts from the US, UK, and Netherlands to explore where the field

Join our prestigious panel of speakers on September 28 at 6 pm CEST to gain expert insights on how the new advances in science and AI can improve pulmonary arterial hypertension care! Read Post »

The French Pulmonary Hypertension Associations celebrates its 30th anniversary at its 6th Patient Congress on 13-15 November 2026

The French Pulmonary Hypertension Association HTaPFrance is holding its 6th Patient Congress, 13–15 November 2026 at Centre Valpré in Écully, France — coinciding with the association’s 30th anniversary. The congress is open to pulmonary arterial hypertension (PAH) and chronic thromboembolic pulmonary hypertension (CTEPH patients, those awaiting or having received a transplant, along with their families,

The French Pulmonary Hypertension Associations celebrates its 30th anniversary at its 6th Patient Congress on 13-15 November 2026 Read Post »

On 19th September, pulmonary hypertension nurses Iain Armstrong and Javier Jimenez are taking the plunge for patients for “Swim Serpentine”, covering 1,609 metres, in London’s Hyde Park

On 19th September, pulmonary hypertension nurses Iain Armstrong (Chairman of the UK pulmonary Hypertension association), and Javier Jimenez will spend one mile experiencing what their patients face every single day. They will swim in the open water of London’s Hyde Park for Swim Serpentine, covering 1,609 metres in the heart of the city. The shock

On 19th September, pulmonary hypertension nurses Iain Armstrong and Javier Jimenez are taking the plunge for patients for “Swim Serpentine”, covering 1,609 metres, in London’s Hyde Park Read Post »

What’s new on the Pulmonary Hypertension Knowledge Sharing Platform – August 2026

This month’s news roundup brings together the latest in pulmonary hypertension research and care. On the clinical front, several new studies stand out — from encouraging long-term rehabilitation data in the FONCE-HTAP trial, to new insights into pulmonary artery stiffness, BMPR2 signalling, and exercise safety after pulmonary endarterectomy. On the drug development side, we cover

What’s new on the Pulmonary Hypertension Knowledge Sharing Platform – August 2026 Read Post »

Climbing for a Cause: Krishma Kaur’s Kilimanjaro Challenge in Support of the UK Pulmonary Hypertension Association – PHA UK -and the Alzheimer’s Society

Krishma Kaur and his cousin Sean Bhaker, UK citizens, have decided to take on the challenge of climbing Mount Kilimanjaro to raise money for Alzheimer’s Society and the UK Pulmonary Hypertension Association PHA UK. All money raised will be donated directly to these two charities. Krishma and Sean have launched a Go Fund campaign to

Climbing for a Cause: Krishma Kaur’s Kilimanjaro Challenge in Support of the UK Pulmonary Hypertension Association – PHA UK -and the Alzheimer’s Society Read Post »

How Do Sleep Difficulties Interact With Anxiety, Depression and Health-Related Quality of Life in Pulmonary Hypertension? – Clinical Respiratory Journal, August 2026

A cross-sectional study surveyed 111 adults with pulmonary hypertension (see table below for different forms), predominantly UK-based, White, and female, to examine sleep problems and their psychological/quality-of-life impact. The design and procedure of the study were developed in association with the UK Pulmonary Hypertension Association, PHA UK, and medical experts in pulmonary hypertension. Key findings:

How Do Sleep Difficulties Interact With Anxiety, Depression and Health-Related Quality of Life in Pulmonary Hypertension? – Clinical Respiratory Journal, August 2026 Read Post »

What’s new in Pulmonary Hypertension on the Knowledge Sharing Platform in July 2026

This month’s round-up brings together a mix of clinical trial data, emerging science, and a few broader conversations about care. Beyond the data, it also touches on the human side of PH care: a look at quality of life and mental health in patients on prostacyclin therapy, and a conversation on “caring for the whole

What’s new in Pulmonary Hypertension on the Knowledge Sharing Platform in July 2026 Read Post »

The Pulmonary Vascular Research Institute launches the Global PH Consult, a new, free, online service for clinicians which aims to support more equitable access to pulmonary hypertension case discussion and shared learning

The Pulmonary Vascular Research Iinstitute (PVRI’s) Access to Care Workstream has launched a new, free online service from clinicians around the world to bring anonymised complex pulmonary hypertension cases for discussion with a tailored panel of specialists. Global PH Consult is open to clinicians everywhere, with a primary focus on supporting those in low and

The Pulmonary Vascular Research Institute launches the Global PH Consult, a new, free, online service for clinicians which aims to support more equitable access to pulmonary hypertension case discussion and shared learning Read Post »

Patient advocate Natalia Maeva at the European Respiratory Society (ERS) Presidential Summit, Warsaw 2026

Natalia Maeva, a patient advocate for pulmonary hypertension, attended the European Respiratory Society (ERS) Presidential Summit in Warsaw in June 2026, participating in sessions on early detection, air quality, tobacco control, climate change and lung health. Having had her own life transformed by access to specialised treatment and lung transplantation, she found the discussions on

Patient advocate Natalia Maeva at the European Respiratory Society (ERS) Presidential Summit, Warsaw 2026 Read Post »

Eight months, 230 days,11 countries, 20,000+ km. Lukáš Jakovec’s solo cycling journey for the AfPH “Wheels of Hope” campaign to raise awareness of organ donation and transplant now wraps up!

Lukáš Jakovec set off from Udine, Italy, on 11 October 2025 — a trip he had been planning for over seven years. Two hundred and thirty days and 22,000 km later, with a total elevation gain of roughly 144,000 metres, he rolled into Prague, his home town. Along the way he looped through Italy, including

Eight months, 230 days,11 countries, 20,000+ km. Lukáš Jakovec’s solo cycling journey for the AfPH “Wheels of Hope” campaign to raise awareness of organ donation and transplant now wraps up! Read Post »

What’s new in pulmonary hypertension on the Knowledge Sharing Platform, June 2026

June brought new leadership appointments at the AfPH, a new AfPH webinar, fresh research on sotatercept, and continued momentum in the PAH pipeline. Here’s our roundup of the month’s key developments: 🏆 AfPH announcements 🏆Community and recognition 🔬 Research & Clinical Studies 💊 Industry & Drug Development 🏛️ Governance & Policy 🎥 Webinars & Events

What’s new in pulmonary hypertension on the Knowledge Sharing Platform, June 2026 Read Post »

 Introducing the Alliance for Pulmonary Hypertension’s New Board of Directors 2026-2029 We are proud to introduce the new Board of the Alliance for Pulmonary Hypertension — a group of dedicated patient advocates bringing decades of combined experience to our mission of improving life for people living with pulmonary hypertension across the world. Pisana Ferrari, President

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Ayotunde Omitogun, founder of the Cardiac Community in Nigeria, receives prestigious 2026 Rino Aldrighetti Leadership Award by the Pulmonary Hypertension Association (PHA) – June 18, 2026

The Rino Aldrighetti Leadership Award is the highest honor presented by the Pulmonary Hypertension Association (PHA). The award honors people who have shown outstanding leadership, commitment, and worldwide influence in raising PH awareness, supporting patients, and pushing forward treatment options. Omitogun was diagnosed with pulmonary hypertension in 2013 after a congenital heart defect, and over

Ayotunde Omitogun, founder of the Cardiac Community in Nigeria, receives prestigious 2026 Rino Aldrighetti Leadership Award by the Pulmonary Hypertension Association (PHA) – June 18, 2026 Read Post »

Inhaled Therapies for Pulmonary Hypertension: Where We Are and What’s Next, Live PHA webinar on July 23, 2026 at 2 pm EDT

Pulmonary hypertension treatments continue to evolve and one very promising advancing treatment option is inhaled therapy which delivers medication directly to the lungs. The webinar speakers will discuss the current landscape and future of inhaled therapies in pulmonary hypertension, including:• Currently approved inhaled therapies.• Key differences between inhaled treatment options and the conditions they manage,

Inhaled Therapies for Pulmonary Hypertension: Where We Are and What’s Next, Live PHA webinar on July 23, 2026 at 2 pm EDT Read Post »

The Japanese Circulation Society, in response to advocacy by PHA Japan, publishes lay summary of the pulmonary hypertension guidelines, June 8, 2026

The Japanese Circulation Society, in response to advocacy from the Japanese pulmonary hypertension patient association PHA Japan, has published a patient-friendly lay summary of the pulmonary hypertension guidelines. The document aims to help patients and families better understand their condition and treatment options, and to facilitate more equal, informed conversations with their doctors. As the

The Japanese Circulation Society, in response to advocacy by PHA Japan, publishes lay summary of the pulmonary hypertension guidelines, June 8, 2026 Read Post »

Congratulations to Louise Bouman, Member of the Board of the Alliance for Pulmonary Hypertension, for her election as Chair of the United Patient Advisory Group of the European Lung Foundation (ELF)!

At the Alliance for Pulmonary Hypertension we are very proud that Louise Bouman, Member of our Board, has been elected as Chair of the UPAG (United Patient Advisory Group) of the European Lung Foundation, United Patient Advisory Group within the European Lung Foundation (ELF), a collaborative network consisting of representatives from various condition-specific Patient Advisory

Congratulations to Louise Bouman, Member of the Board of the Alliance for Pulmonary Hypertension, for her election as Chair of the United Patient Advisory Group of the European Lung Foundation (ELF)! Read Post »

What’s new in pulmonary hypertension on the Knowldge Sharing Platform, May 2026

This month’s selection reflects the remarkable momentum in the pulmonary hypertension field — from landmark regulatory approvals and cutting-edge research to inspiring human stories and practical tools for patients. As always, we have curated a range of content to inform, inspire, and empower our community. RESEARCH AND SCIENCE INDUSTRY NEWS DIGITAL HEALTH AND INNOVATION TRANSPLANT

What’s new in pulmonary hypertension on the Knowldge Sharing Platform, May 2026 Read Post »

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