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Educational video about chronic thromboembolic pulmonary hypertension by RespiFil, the French national network for respiratory diseases

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Excellent educational video in French language about chronic thromboembolic pulmonary hypertension, developed by RespiFil. Discusses causes of chronic thromboembolic pulmonary hypertension, symptoms, diagnostic work up, treatments. Features interviews with French PH experts from the French Network of PH (Pulmotension) including Prof. Marc Humbert from the University Hospitals of Paris-Sud Bicêtre, Le Kremlin-Bicêtre (France), and a …

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New pulmonary hypertension patient booklet published by RespiFIL, the French national network for rare respiratory diseases

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The pulmonary hypertension patient booklet published in June 2022 by RespiFIL gives an overview of the disease, its symptoms, its diagnosis and available treatments. There are also tips on how to live better with the disease on a daily basis. It was written in collaboration with health professionals from expert pulmonary hypertension centres and the …

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“Inspirer, s’exprimer”, a pulmonary arterial hypertension conversation kit to help patients communicate with doctors and with their loved ones, by HTaPFrance, the French pulmonary hypertension association

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On the occasion of May 5, the Pulmonary Hypertension Awareness Day, in 2022, HTaPFrance released the French version of a “Pulmonary Hypertension conversation kit” developed by Janssen, as part of the PHuman project , in collaboration with pulmonary hypertension patient associations around the world. The aim is to help patients better understand the condition and …

“Inspirer, s’exprimer”, a pulmonary arterial hypertension conversation kit to help patients communicate with doctors and with their loved ones, by HTaPFrance, the French pulmonary hypertension association Read More »

“Regards croisés”, a video with testimonials from pulmonary arterial hypertension patients on intra-venous 24/7 prostanoid treatment, by the French pulmonary hypertension association, HTaPFrance

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On the occasion of the 2022 edition of the Pulmonary Hypertension Awareness Day, on May 5, HTaPFrance released a short film titled “Regards croisés”, which presents three people who currently have or have had epoprostenol treatment intravenously, using a pump and a centralised catheter. They share their experience with the pump in day to day …

“Regards croisés”, a video with testimonials from pulmonary arterial hypertension patients on intra-venous 24/7 prostanoid treatment, by the French pulmonary hypertension association, HTaPFrance Read More »

Pulmonary arterial hypertension French educational video by Respifil, the French health network for rare pulmonary diseases

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Excellent educational video in French language about pulmonary arterial hypertension developed by Respifil. Discusses causes, symptoms, diagnostic work up, treatments. Features interviews with French pulmonary hypertension experts from the French Network of pulmonary hypertension (Pulmotension) including Prof. Marc Humbert and Olivier Sitbon from the University Hospitals of Paris-Sud Bicetre, Le Kremlin-Bicetre (France), and a pulmonary …

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Fact sheet on pulmonary hypertension from the European Lung Foundation (ELF) Information hub

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The European Lung Foundation (ELF) Information hub has produced a fact sheet on pulmonary hypertension which is available at this link ELF is a patient-led organisation founded in 2000 that works internationally to bring patients and the public together with healthcare professionals to improve lung health and advance diagnosis, treatment and care. ELF works in …

Fact sheet on pulmonary hypertension from the European Lung Foundation (ELF) Information hub Read More »

Interview with Mélanie Gallant-Dewavrin, director of HTaPFrance, for Pulmonary Hypertension Day 2021

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Mélanie Gallant-Dewavrin shares her views on the main challenges for pulmonary hypertension patients and the key role of patient associations during an interview aired on the occasion of Pulmonary Hypertension Day, May 5. Founded in 1996, HTaPFrance is the longest standing PH patient association in Europe, together with ph e.v., the German PH patient association, …

Interview with Mélanie Gallant-Dewavrin, director of HTaPFrance, for Pulmonary Hypertension Day 2021 Read More »

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