Sharing best practices in lung transplantation: Prof. Dr. Walter Klepetko receives prestigious ELF award for establishing a EU-wide training program

Welcome to the third edition of the Alliance for Pulmonary Hypertension’s “Sharing best practices” series of articles. See also: Sharing best practices on how to implement shared decision making and support patient empowerment: Prof. Marc Humbert, Head of the French Pulmonary Hypertension National Referral network Sharing best practices in chronic thromboembolic pulmonary hypertension surgical and […]

Sharing best practices in lung transplantation: Prof. Dr. Walter Klepetko receives prestigious ELF award for establishing a EU-wide training program Read Post »

New European Lung Foundation (ELF) and ERN-LUNG booklet highlights patient perspectives on lung transplantation

During the European Respiratory Society 2024 Congress in Vienna, which was held 7-11 September 2024, the European Lung Foundation and ERN-LUNG lung transplantation group presented a new booklet sharing the patient perspective on transplantation. The booklet features an introduction by the European Lung Foundatiion Chair Dimitris Kontopidis and testimonials from lung transplant patients Natalia Maeva

New European Lung Foundation (ELF) and ERN-LUNG booklet highlights patient perspectives on lung transplantation Read Post »

Vienna Lung Failure and Transplantation Symposium 2025, 26 -27 June, 2025

are excited to announce an upcoming two- day international symposium focused on “Lung Failure and Transplantation”. This symposium, organised by the Department of Thoracic Surgery and the Comprehensive Center for Chest Diseases at MedUni Vienna/University Hospital Vienna, aims to address all treatment aspects of end-stage lung failure, including lung transplantation, within an international interdisciplinary setting,

Vienna Lung Failure and Transplantation Symposium 2025, 26 -27 June, 2025 Read Post »

“Make-A-Wish” grants a young Dutch woman waiting for a lung transplant a dream day with her family

Lot is a vibrant young woman with an incredibly positive outlook on life, despite the fact that her daily routine is heavily influenced by her health. Born with a congenital heart defect, Lot was diagnosed with pulmonary arterial hypertension (PAH) at just six years old. Reflecting on her wait for donor lungs, Lot shares: “About

“Make-A-Wish” grants a young Dutch woman waiting for a lung transplant a dream day with her family Read Post »

Hungarian EU Council Presidency (July-December 2024) issues concept paper urging embrace of innovation, legal reforms, and improved education in transplantation

The Concept Paper issued by the Ministry of the Interior of the Hungarian government, holding the European Council Presidency from July to December 2024, outlines a comprehensive strategy that encompasses increased organ availability, enhanced efficiency and accessibility of transplant systems, and the improvement of quality and safety standards. It stands as a call to action

Hungarian EU Council Presidency (July-December 2024) issues concept paper urging embrace of innovation, legal reforms, and improved education in transplantation Read Post »

Orgamites, a free global educational program about organ donation and transplantation for children aged 5-11, now being started in UK schools

The “Orgamites Mighty Education Programme” is a free global organ donation and health education programme for children aged 5-11. It uses educational resources, tools, toys, and tech to inspire and equip more students, teachers, and families everywhere to talk more about organ donation and how to take better care of our health. The Orgamites programme

Orgamites, a free global educational program about organ donation and transplantation for children aged 5-11, now being started in UK schools Read Post »

NEW! Patient booklet on lung transplant by the Italian Pulmonary Hypertension Association AIPI now directly translatable in 40 languages on this platform! Check it out!

The patient booklet on lung transplant by AIPI, Italian Pulmonary Hypertension publication “Guida al Trapianto di polmoni” has been adapted and translated into English by Pisana Ferrari, President of AIPI. You can now translate the entire booklet directly from here using the orange button at the bottom of the page: 40 languages are currently available

NEW! Patient booklet on lung transplant by the Italian Pulmonary Hypertension Association AIPI now directly translatable in 40 languages on this platform! Check it out! Read Post »

Special issue of “Transplant International” delves into the multifaceted ethical and legal complexities surrounding organ donation and transplantation, June 2024

The latest special issue of “Transplant International,” titled “Ethical and Legal Aspects of Organ Donation and Transplantation,” tackles the intricate challenges inherent in organ donation and transplantation. Edited by Frederike Ambagtsheer, Coby Annema, David Paredes-Zapata and John Forsythe, this collection comprises 16 articles penned by global experts, spanning the years 2022 to 2024. These articles

Special issue of “Transplant International” delves into the multifaceted ethical and legal complexities surrounding organ donation and transplantation, June 2024 Read Post »

Transplantation Society Annual Congress, Istanbul, Turkey, September 22-25, 2024

The Transplantation Society is a non-profit non governmental organisation providing global leadership in transplantation. Its core mission includes the development of the science and clinical practice, scientific communication, continuing education and guidance on the ethical practice. The Transplantation Society’s Annual Congress 2024 is taking place in Istanbul September 22-25, 2024. Full program available at this

Transplantation Society Annual Congress, Istanbul, Turkey, September 22-25, 2024 Read Post »

Anne-Marie Amilhat, one of the world’s longest-living heart-lung transplant recipients (36 years!) was among the 11,000 people who carried the Olympic flame from Athens to Paris

Anne-Marie Amilhat, who is one of the world’s longest-living heart-lung transplant recipients (36 years post surgery!) was among the 11,000 people who carried the Olympic flame from Athens to Paris. On May 17th Anne-Marie carried the torch between Toulouse and Auch. The news was reported in the April 2024 edition of the French pulmonary hypertension

Anne-Marie Amilhat, one of the world’s longest-living heart-lung transplant recipients (36 years!) was among the 11,000 people who carried the Olympic flame from Athens to Paris Read Post »

Former pulmonary arterial hypertension patient shares her transplant journey and stresses the importance of education, Pulmonary Hypertension News, May 16 2024

Anna Jeter is an artist and writer living in Excelsior, Minnesota. She was diagnosed with pulmonary arterial hypertension in 1999 at the age of 4 and received a lifesaving heart-lung transplant in 2018. In an article published recently in Pulmonary Hypertension News, Anna encourages other pulmonary arterial hypertension patients to conduct thorough research and familiarize

Former pulmonary arterial hypertension patient shares her transplant journey and stresses the importance of education, Pulmonary Hypertension News, May 16 2024 Read Post »

April 28 is ESOT, European Society for Organ Transplantation, Action Day, an annual observance which calls for enhanced cooperation between EU member states to address inequalities in transplantation

April 28 is ESOT – European Society for Organ Transplantation Action Day. ESOT is calling for enhanced cooperation among EU member states to empower transplant centres in delivering consistent, high-quality transplantation service ahead of the EU elections. ESOT is looking to drive the following 5 actions in the European Parliament between 2024 and 2029: Read

April 28 is ESOT, European Society for Organ Transplantation, Action Day, an annual observance which calls for enhanced cooperation between EU member states to address inequalities in transplantation Read Post »

A groundbreaking medical innovation known as the “sentinel skin flap” may hold the key to early detection of rejection in lung transplant patients

Could a medical innovation known as the “sentinel skin flap” hold the key to early detection of rejection in lung transplant patients? This pioneering technique, currently under investigation in a trial conducted by the University of Oxford and NHS Blood and Transplant, offers new hope for enhancing post-transplant care. Leading the charge in this groundbreaking trial is Henk Giele,

A groundbreaking medical innovation known as the “sentinel skin flap” may hold the key to early detection of rejection in lung transplant patients Read Post »

The remarkable journey of two individuals with hand transplants, Theo Kelz and Vasyly Rohovyy, testifies to the huge progress made in the field in past decades

Two exceptional people feature in this photo: on the left Mr. Theo Kelz, the first patient to have a hand transplant in Austria in the year 2000, and on the right Mr Vasyly Rohovyy, who had both hands transplanted in Vienna in 2006.  The photo was taken under the portrait of Professor Raimond Margraiter, the

The remarkable journey of two individuals with hand transplants, Theo Kelz and Vasyly Rohovyy, testifies to the huge progress made in the field in past decades Read Post »

Coming up soon, the World Symposium on Pulmonary Hypertension 2024, the most important scientific event in the world this field!

The 7th edition of the World Symposium on Pulmonary Hypertension is being held on June 29-30/July 1, 2024, in Barcelona, Spain. The WSPH is the most important scientific event in the field of pulmonary hypertension. It has been convened every five years since the Evian edition in 1998 (including Venice 2003, Dana Point 2008, Nice

Coming up soon, the World Symposium on Pulmonary Hypertension 2024, the most important scientific event in the world this field! Read Post »

Why the recent US revision of the ICD-10-CM to include codes for lung allograft dysfunction matters for pulmonary arterial hypertension

The International Classification of Diseases (ICD) is a medical coding system crafted by the World Health Organization (WHO). It serves as the primary foundation for health recording and disease statistics across various levels of care, including primary, secondary, and tertiary care settings, as well as on death certificates to determine causes of mortality. These meticulously

Why the recent US revision of the ICD-10-CM to include codes for lung allograft dysfunction matters for pulmonary arterial hypertension Read Post »

New! The Pulmonary Hypertension Association (PHA) launches Facebook page for pulmonary hypertension patients having undergone a lung transplant or preparing to receive one

If you have undergone a lung or heart transplant, or are you considering or preparing to receive a transplant, consider join the Pulmonary Hypertension Association USA (PHA)’s new “Transplant for Pulmonary Hypertension” Facebook Group, to connect with others who have received a transplant or are in the transplantation process. Sign up at this link on

New! The Pulmonary Hypertension Association (PHA) launches Facebook page for pulmonary hypertension patients having undergone a lung transplant or preparing to receive one Read Post »

“Take 2 – the new Me after a transplant”, a educational campaign promoted by the European Society for Organ Transplant (ESOT)

In the past few months, the European Society for Organ Transplant (ESOT) channels have been running a campaign called “Take 2 – the new Me after a transplant”. The campaign seeks to empower patients by offering them valuable and reliable information and resources that can enhance their pre and post-transplant journey and raise public attention

“Take 2 – the new Me after a transplant”, a educational campaign promoted by the European Society for Organ Transplant (ESOT) Read Post »

French pulmonary arterial hypertension patient Anne-Narie Amilhat celebrates 35 years from her heart/lung transplant!

Anne-Marie Amilhat, a 73-year-old woman from France, received a diagnosis of pulmonary arterial hypertension in 1980 and underwent heart/lung transplant surgery in 1988. Recently, she joyously marked her 35th transplant anniversary surrounded by family and friends. The celebration was graced by the presence of Prof. Philippe Dartevelle, a thoracic surgeon at Marie Lannelongue Hospital, France,

French pulmonary arterial hypertension patient Anne-Narie Amilhat celebrates 35 years from her heart/lung transplant! Read Post »

A European Society for Organ Transplant (ESOT) call to action for a a European effort to monitoring health of patients after transplantation

The steering group of the European Society for Organ Transplant (ESOT) patients’ inclusion initiative invites European transplant patient organizations to endorse and spread the call: Monitoring health after transplantation: A call for a European effort to collect follow up data on transplant recipients and living donors. This call urges organizations dealing with transplantation to work

A European Society for Organ Transplant (ESOT) call to action for a a European effort to monitoring health of patients after transplantation Read Post »

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