As dedicated volunteers for pulmonary hypertension associations, we know just how much work there is in putting together our newsletters. Beyond content creation, it involves research, writing, photo selection, layout design, printing, and distribution.
Newsletters connect communities, providing updates on crucial developments. Our mission at PH-KSP is to break barriers, fostering the exchange of knowledge globally. Let’s amplify the impact of our collective work in pulmonary hypertension!
Explore the latest monthly/quarterly newsletters from AfPH Members for valuable articles:
AIPI News – Italian Pulmonary Hypertension Association AIPI
- Report on European Society for Organ Transplant Annual (ESOT) conference in Athens, September 2023
- Report of World Orphan Drug Congress (WODC) in Barcelona, October 2023
- Patient stories
Ademloos – Belgian Flemish Patient Association)
- Overview of 2023 activities (see also at this link)
- The new pulmonary hypertension guidelines
- Organization of care at the Macro and Meso level (Prof. Marion Delcroix)
- New medications in the pipeline
- Report of our afternoon meeting on the theme of “Living with loss”
- Patient stories
Papillon – Dutch Pulmonary Hypertension Patient Association
- Report of the association’s Info Day and celebrations for the 20th anniversary of the association
- Special edition on pulmonary hypertension due to unclear and/or multifactorial origins (WHO Group V), an article by Dr. Karin Boomars, pulmonologist at Erasmus MC (see also at this link)
- Patient stories
Brev’Info (French Pulmonary Hypertension Association HTaPFrance
- Interview with Prof. Marc Humbert, Director of the French Pulmonary Hypertension National Reference Center
- HTaPFrance publishes new graphic novel with featuring a fictional woman patient “Second Souffle”, Second Breath (available through the association’s contact numbers)
- Swimmer Pascale Wartelle swam 30 km in 4 days, solo, at the Morocco Swim Trek. Thanks to an online fundraiser, she raised €2,707 for HTaPFrance.
- Bastien Bodnar cycled a distance of 2,753 km from Aube to Greece. He crossed 11 countries in 12 days and raised €891 for HTaPFrance.
Nefes – Turkish Pulmonary Hypertension Patient Association PAHSSc
- Interviews with several Turkish pulmonary hypertension experts
- Anesthetics in surgery for pulmonary hypertension patients
- Interview with Wendy Vansteenkiste, President of the Belgian Flemish pulmonary hypertension association
- Patient stories
