Knowledge, Support, and Hope: a report of the 2024 Patient Conference organised by the German Pulmonary Hypertension Association ph e.v.

The German Pulmonary Hypertension (PH) Association ph e.v. hosted a comprehensive two-day patient conference in Frankfurt, designed to provide education, support, and networking opportunities for individuals affected by pulmonary hypertension. The conference, held on October 25-26, 2024, offered a rich and diverse program that addressed multiple aspects of living with pulmonary hypertension. The first day […]

Knowledge, Support, and Hope: a report of the 2024 Patient Conference organised by the German Pulmonary Hypertension Association ph e.v. Read Post »

Starting today, December 6, 2024, the International Symposium on Pulmonary Hypertension and 9th Meeting of the Latin American Leaders, Miraflores, Peru

The Sociedad Latina de Hipertensión Pulmonar SLHP, the Colegio Médico del Perú Región Lima and the pulmonary hypertension patient association “Llapan Kallpa”, are inviting to the ,The International Symposium on Pulmonary Hypertension and the 9th meeting of Latin American leaders being held on 6-7 December, with the participation of esteemed professionals including Dr. Pilar Escribano,

Starting today, December 6, 2024, the International Symposium on Pulmonary Hypertension and 9th Meeting of the Latin American Leaders, Miraflores, Peru Read Post »

Video-recordings of all the presentations from the PHA Europe Annual PH Conference, which took place on November 6-10, 2024, now available on the Bel Air Center platform

The videos of the presentations and recorded sessions from the PHA Europe Annual Pulmonary Hypertension European Conference (APHEC) 2024, held in Castelldefels, Barcelona, Spain, are now available on the Bel Air Center platform. 1. Prof. Ardeschir Ghofrani: Current and future pulmonary hypertension treatments 2. Prof. Polona Mlakar: Chronic thromboembolic pulmonary hypertension (CTEPH) 3. Prof. Mona

Video-recordings of all the presentations from the PHA Europe Annual PH Conference, which took place on November 6-10, 2024, now available on the Bel Air Center platform Read Post »

AfPH Board Member Louise Bouman reporting from the Annual PH Conference (APHEC) organised by PHA Europe in Barcelona

Quote from Louise’s article for the Dutch PH Association From November 6 to 10, 2024, it was time to the Annual General Meeting and Conference of PHA Europe. More than 70 delegates from 42 national organizations representing 37 countries participated. The Netherlands was represented by Korrie de Koning and Louise Bouman, secretary and chair of

AfPH Board Member Louise Bouman reporting from the Annual PH Conference (APHEC) organised by PHA Europe in Barcelona Read Post »

“The Aristotle Classes on Pulmonary Hypertension (PH) and Adult Congenital Heart Disease (ACHD)”, October 12, 2024, Thessaloniki, Greece

The President of the Greek patient association Hellenic Community for pulmonary hypertension and of the Alliance for Pulmonary Hypertension Ioanna Alysandratou Ιωάννα Αλυσανδράτου was invited to address the “Aristotele classes on pulmonary hypertension (PH) and congenital heart disease (CHD)” congress on the 12th of October 2024. Her participation is important as it brings the vital

“The Aristotle Classes on Pulmonary Hypertension (PH) and Adult Congenital Heart Disease (ACHD)”, October 12, 2024, Thessaloniki, Greece Read Post »

Patient centered care at the heart of The Transplantation Society’s Annual Congress in Istanbul, 22-25 September 2024

The 30th The Transplantation Society (TTS) Annual Congress in Istanbul brought together over 2.500 transplant professionals from 90 countries, with a further 500 attending remotely. It began with a memorable opening ceremony, attended by prominent figures such as the Minister of Health, the Governor, and the Mayor of Istanbul. The ceremony featured a compelling speech

Patient centered care at the heart of The Transplantation Society’s Annual Congress in Istanbul, 22-25 September 2024 Read Post »

Sharing best practices in lung transplantation: Prof. Dr. Walter Klepetko receives prestigious ELF award for establishing a EU-wide training program

Welcome to the third edition of the Alliance for Pulmonary Hypertension’s “Sharing best practices” series of articles. See also: Sharing best practices on how to implement shared decision making and support patient empowerment: Prof. Marc Humbert, Head of the French Pulmonary Hypertension National Referral network Sharing best practices in chronic thromboembolic pulmonary hypertension surgical and

Sharing best practices in lung transplantation: Prof. Dr. Walter Klepetko receives prestigious ELF award for establishing a EU-wide training program Read Post »

“Integrating the patient perspective into future pulmonary hypertension clinical trials”, European Society of Cardiology Annual Congress 2024, talk by Pisana Ferrari, member of the ESC Patient Forum

The European Society of Cardiology’s Congress is the foremost gathering in the field of cardiology worldwide. This year’s edition took place in London from 30.8-1.9, 2024, and counted 31,700 participants from 162 countries, including 5,400 faculty and presenters, representatives of the National Cardiac Societies and industry partners. Pisana Ferrari, the Alliance for Pulmonary Hypertension’s Secretary

“Integrating the patient perspective into future pulmonary hypertension clinical trials”, European Society of Cardiology Annual Congress 2024, talk by Pisana Ferrari, member of the ESC Patient Forum Read Post »

Vienna Lung Failure and Transplantation Symposium 2025, 26 -27 June, 2025

are excited to announce an upcoming two- day international symposium focused on “Lung Failure and Transplantation”. This symposium, organised by the Department of Thoracic Surgery and the Comprehensive Center for Chest Diseases at MedUni Vienna/University Hospital Vienna, aims to address all treatment aspects of end-stage lung failure, including lung transplantation, within an international interdisciplinary setting,

Vienna Lung Failure and Transplantation Symposium 2025, 26 -27 June, 2025 Read Post »

PVRI’s Drug Discovery & Development Symposium 2025, Amsterdam, 16 June 2025 – 17 June 2025

The PVRI Symposium’s theme is “Inclusive and sustainable drug development for pulmonary arterial hypertension”. The symposium brings together regulatory, industry, and academic bodies to meet and discuss the latest drug developments in pulmonary hypertension. Programme overview Monday, 16 June •    08:00-08:25 Refreshments•    08:25-08:30 Welcome •    08:30-10:00 Session 1: New standards of care•    10:00-10:50 Session 2: Disease modification•    10:50-11:10 Refreshment break•    11:10-12:00 Session

PVRI’s Drug Discovery & Development Symposium 2025, Amsterdam, 16 June 2025 – 17 June 2025 Read Post »

Key insights from the “Patient Perspective” article in the World Symposium on Pulmonary Hypertension (WSPH) proceedings, European Respiratory Journal, August 29, 2024

The full proceedings of the World Symposium on Pulmonary Hypertension which was held in Barcelona 29.6-1.7, 2024, have now been published in the European Respiratory Journal at this link. The proceedings cover the work of the 15 task forces; Task Force n°1’s article is titled “Exploring the patient perspective in pulmonary hypertension” (see below for

Key insights from the “Patient Perspective” article in the World Symposium on Pulmonary Hypertension (WSPH) proceedings, European Respiratory Journal, August 29, 2024 Read Post »

2025 International Society for Heart and Lung Transplant (ISHLT) and Chronic Thromboembolic Pulmonary Hypertension (CTEPH) Conference, 26 April, 2025

The International CTEPH association (ICA) and International Society for Heart and Lung Transplant (ISHLT) are jointly organising the first CTEPH Conference, held on 26 April 2025 in Boston, USA alongside the ISHLT’s 45th Annual Meeting & Scientific Sessions. Read more at this link

2025 International Society for Heart and Lung Transplant (ISHLT) and Chronic Thromboembolic Pulmonary Hypertension (CTEPH) Conference, 26 April, 2025 Read Post »

Uniting for Progress: Key Takeaways from the 7th World Symposium on Pulmonary Hypertension, Barcelona, 29.6-1.7, 2024

Six members of the Alliance for Pulmonary Hypertension team—Ioanna Alysandratou, Pisana Ferrari, Mélanie Gallant-Dewavrin, Louise Bouman van der Waal, Hans-Dieter Kulla, and Laure Rosé—attended the 7th World Symposium on Pulmonary Hypertension. The event was both exciting and enriching, offering the privilege of networking with leading medical experts whose innovative work is driving new treatments and

Uniting for Progress: Key Takeaways from the 7th World Symposium on Pulmonary Hypertension, Barcelona, 29.6-1.7, 2024 Read Post »

Hall Skaara reports back from the Pulmonary Hypertension Association conference in Indianapolis, USA, August 15-18, 2024, where he represented PHA Europe

The US Pulmonary Hypertension Association (PHA) hosted its 15th international Pulmonary Hypertension conference in Indianapolis, Indiana, from August 15-18, 2024. This event gathered approximately 1,100 healthcare professionals, researchers, patients, and advocates from across the globe. The event aimed to strengthen connections and promote collaboration within the pulmonary hypertension community. Key sessions included a joint presentation

Hall Skaara reports back from the Pulmonary Hypertension Association conference in Indianapolis, USA, August 15-18, 2024, where he represented PHA Europe Read Post »

The key role of patient associations highlighted during discussions at the 5th French Pulmonary Hypertension Network Meeting, “Respiratory Medicine and Research”, Volume 86, 2024

The 5th French Pulmonary Hypertension Network Meeting, convened in Le Kremlin-Bicêtre, France, in 2023, served as a platform to examine current evidence and outstanding questions in pulmonary hypertension, particularly in the context of the recently published 2022 ESC/ERS Guidelines. The French Network is composed of some of France’s key experts in the field of pulmonary

The key role of patient associations highlighted during discussions at the 5th French Pulmonary Hypertension Network Meeting, “Respiratory Medicine and Research”, Volume 86, 2024 Read Post »

PHA Canada’s PH Community Conference is taking place September 19-21, 2024 in Calgary

The program of PHA Canada’s Community Conference includes plenary sessions, specialized discussion panels and peer discussion groups that will provide community members at all stages of their pulmonary hypertension journeys a safe space to learn something new and connect with PHriends. More details available at this link on the PHA Canada website

PHA Canada’s PH Community Conference is taking place September 19-21, 2024 in Calgary Read Post »

Insights and connections: highlights from the World Symposium on Pulmonary Hypertension, Barcelona, 29.6-1.7, 2024

The Alliance for Pulmonary Hypertension team – Ioanna Alysandratou, Pisana Ferrari, Mélanie Gallant-Dewavrin, Louise Bouman – van der Waal, Hans-Dieter Kulla and Laure Rosé – is back from the 7th World Symposium on Pulmonary Hypertension in Barcelona. Attending the World Symposium on Pulmonary Hypertension was an incredibly exciting and enriching experience. The scientific sessions were

Insights and connections: highlights from the World Symposium on Pulmonary Hypertension, Barcelona, 29.6-1.7, 2024 Read Post »

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