“Inspirer, s’exprimer”, a pulmonary arterial hypertension conversation kit to help patients communicate with doctors and with their loved ones, by HTaPFrance, the French pulmonary hypertension association

On the occasion of May 5, the Pulmonary Hypertension Awareness Day, in 2022, HTaPFrance released the French version of a “Pulmonary Hypertension conversation kit” developed by Janssen, as part of the PHuman project , in collaboration with pulmonary hypertension patient associations around the world. The aim is to help patients better understand the condition and

“Inspirer, s’exprimer”, a pulmonary arterial hypertension conversation kit to help patients communicate with doctors and with their loved ones, by HTaPFrance, the French pulmonary hypertension association Read Post »

Pulmonary arterial hypertension French educational video by Respifil, the French health network for rare pulmonary diseases

Excellent educational video in French language about pulmonary arterial hypertension developed by Respifil. Discusses causes, symptoms, diagnostic work up, treatments. Features interviews with French pulmonary hypertension experts from the French Network of pulmonary hypertension (Pulmotension) including Prof. Marc Humbert and Olivier Sitbon from the University Hospitals of Paris-Sud Bicetre, Le Kremlin-Bicetre (France), and a pulmonary

Pulmonary arterial hypertension French educational video by Respifil, the French health network for rare pulmonary diseases Read Post »

“Exercise your way to better post-transplant health”, by the Council of Europe European Directorate for the Quality of Medicines & HealthCare EDQM

The Council of Europe and its Committee on Organ Transplantation support and recommend physical activity as a major way to improve the health status of transplant patients. Regular light-to-moderate exercise plays a crucial role in restoring both the physical and mental health of transplant recipients. The authors advise organ recipients ask their transplant doctors to

“Exercise your way to better post-transplant health”, by the Council of Europe European Directorate for the Quality of Medicines & HealthCare EDQM Read Post »

Hellenic Pulmonary Hypertension (ΠΝΕΥΜΟΝΙΚΗ ΥΠΕΡΤΑΣΗ ΕΛΛΑΔAΣ)

Hellenic Pulmonary Hypertension (ΠΝΕΥΜΟΝΙΚΗ ΥΠΕΡΤΑΣΗ ΕΛΛΑΔAΣ) Adress: Mytilinis 35, 112 56 Athens Greece Μυτιλήνης 35 4ος όροφος, Athina 112 56, Ellada Phone Number: +30 2110131542 Association President: Ioanna Alyssandratou (Αλυσανδράτου Ιωάννα Ασθενής) Association Email: info@hellenicph.org http://www.hellenicph.org/    

Hellenic Pulmonary Hypertension (ΠΝΕΥΜΟΝΙΚΗ ΥΠΕΡΤΑΣΗ ΕΛΛΑΔAΣ) Read Post »

“La malattia nel racconto dei pazienti”, a collection of patient stories from AIPI, the Italian pulmonary hypertension association

This boklet published by AIPI, the Italian pulmonary hypertension association features a collection of patient testimonies. The aim of the book was to enable patients to understand how it is possible to experience the disease with the same intensity, but approaching it from different points of view. And also to enable them to think of

“La malattia nel racconto dei pazienti”, a collection of patient stories from AIPI, the Italian pulmonary hypertension association Read Post »

Tips for every day life with pulmonary hypertension by AIPI, Italian pulmonary hypertension association

This booklet developed by by AIPI, Italian pulmonary hypertension association, contains pratical advice and tips for day-to-day life with pulmonary arterial hypertension. It stresses the importance of being organised and reserving one’s energies on what really matters. The condition has an impact on many aspects of life and relationships, so it is important to involve

Tips for every day life with pulmonary hypertension by AIPI, Italian pulmonary hypertension association Read Post »

Patient booklet on chronic thromboembolic pulmonary hypertension by AIPI, Italian pulmonary patient association

In chronic thromboembolic pulmonary hypertension (Group 4 of the classification of the WHO, World Health Organisation) pulmonary hypertension is due to the mechanical obstruction of the pulmonary circulation by thrombi (blood clots) that have progressively accumulated. In this booklet by AIPI, Italian pulmonary patient association you will find information on: Download the AIPI booklet on

Patient booklet on chronic thromboembolic pulmonary hypertension by AIPI, Italian pulmonary patient association Read Post »

Patient booklet on lung transplant by AIPI, Italian pulmonary hypertension association

The “Guide to Lung Transplant” by AIPI, Italian patient association provides practical advice on the different phases of the patient journey: the ‘before’, ‘during’ and ‘after’. The last part of the book collects some patient testimonies. Download the AIPI “Guide to lung transplantation” at this link

Patient booklet on lung transplant by AIPI, Italian pulmonary hypertension association Read Post »

Patient booklet on pulmonary hypertension by AIPI, the Italian Pulmonary hypertension association

This booklet published by AIPI, the Italian Pulmonary hypertension association, contains an overview of the different forms of pulmonary hypertension and more specific information about pulmonary arterial hypertension and chronic thromboembolic pulmonary hypertension, including treatments and surgical solutions. The booklet can be downloaded from the AIPI website at this link Translation into other languages of

Patient booklet on pulmonary hypertension by AIPI, the Italian Pulmonary hypertension association Read Post »

“Pulmonary Hypertension-Get informed and inform”: educational video by the Greek association for pulmonary hypertension, Hellenic PH

“Pulmonary Hypertension-Get informed and inform” is an educational video about pulmonary hypertension. It can be viewed on the Greek association for Pulmonary Hypertension, Hellenic PH’s Youtube channel at this link

“Pulmonary Hypertension-Get informed and inform”: educational video by the Greek association for pulmonary hypertension, Hellenic PH Read Post »

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