Association HTaPFrance Adress: Association HTaPFrance 21, rue de Cîteaux 21190 MEURSAULT Phone Number: +33 (0)6 37 44 52 80 Association President: Maggy Surace Association Email: administration@htapfrance.com http://htapfrance.com/new.asp
Association HTaPFrance Read Post »
PAH Patientforeningen – Denmark Kopenhagen, Denmark Association Email: kontakt@pah.dk https://pah.dk/
PAH Patientforeningen Read Post »
Marc Humbert, M.D., Ph.D., Vallerie McLaughlin, M.D., J. Simon R. Gibbs, M.D., Mardi Gomberg-Maitland, M.D., Marius M. Hoeper, M.D., Ioana R. Preston, M.D., Rogerio Souza, M.D., Ph.D., Aaron Waxman, M.D., Ph.D., Pilar Escribano Subias, M.D., Ph.D., Jeremy Feldman, M.D., Gisela Meyer, M.D., David Montani, M.D., Ph.D., et al., “Sotatercept for the Treatment of Pulmonary Arterial
iSeek Center China Adress: 1012-15 health zhigu, gebäude 9, nr. 35 huayuan north road (北京市海淀区花园北路35号9号楼健康智谷1012-15) Phone Number: +86 400 7788 120 Association President: Huang Huan (黄欢) Association Email: office@iseek.org.cn http://www.iseek.org.cn/
iSeek Center China Read Post »
PHA Canada Address: A408 – 55 Water Street, Office 8928 Vancouver, BC, V6B 1A1 Phone Number: +1 604-682-1036 Association President: Joan Paulin Association Email: info@phacanada.ca https://www.phacanada.ca/
Fondation Hypertension artérielle pulmonaire du Québec (HTAPQ) Adress: Casier postal 341Plessisville (Québec) G6L 2Y8 Canada Phone Number: +1 (819) 362-6236 Association President: Dolorès Carrier Association Email:info@htapquebec.ca https://htapquebec.ca/
Fondation Hypertension artérielle pulmonaire du Québec (HTAPQ) Read Post »
Htap Belgique asbl Rixensart, Belgium Adress: Beau Site-1ère Avenue 83, 1330 Rixensart, Belgien Phone Number: +32 2 654 13 60 Association President: Luc Matthysen Association Email: htapbelgique@hotmail.com https://www.facebook.com/htapbelgique
Htap Belgique Asbl Read Post »
PHA Europe European pulmonary hypertension umbrella organisation 33 member associations Address: Wilhelmstraße 21. A-1120 Vienna, Austria Phone Number: (+43) 1 402 3725 Association President: Eva Otter Association Email: info@phaeurope.org https://www.phaeurope.org/
PHAA Australia Association President: Joan Godber Association Email: admin@phaaustralia.com.au https://www.phaaustralia.com/
PH Human, part of the JanssenWithMe digital platform, was created in partnership with the pulmonary hypertension patient community and is dedicated to supporting people with the condition. It has a particular focus on pulmonary arterial hypertension (Group 1 WHO classification of pulmonary hypertension). It helps share real-life experiences from people living with pulmonary arterial hypertension
The European Union (EU) pharmaceutical legislation known as the Clinical Trials Regulation comes into force today, the 31st of January 2022. It aims to ensure the EU offers an attractive and favourable environment for carrying out clinical research on a large scale, with high standards of public transparency and safety for clinical trial participants. Prior to
The EU Clinical Trials Regulation came into force 31st of January 2022 Read Post »
Rosie Matthysen was a pulmonary hypertension patient and a patient advocate. She was the founder of HTAP Belgique, the Belgian francophone pulmonary hypertension association, one of the founding members of PHA Europe. In this touching video poste on the PHA EUROPE YouTube channel Rosie tells her story and tells us about her life with pulmonary
Rosie’s “Breathtaking Story”, submitted by the Belgian French association HTAP Belgique Read Post »
On January 2022 a new initiative launched by the European Commission, the Heads of Medicines Agencies (HMA) and the European Medicines Agency (EMA) aims to transform how clinical trials are initiated, designed, and run. This initiative, called “Accelerating Clinical Trials in the EU for better clinical trials that address patients’ needs“, aims to further develop
Pulmonary arterial hypertension explained in simple words, with excellent visuals, in a French educational video posted on the HTAPFrance YouTube channel.
Could you kindly tell us something about yourself? I have been president of the German PHeV since 2012. My input and the one of all others is voluntary! I am not a patient and I contribute to our organization in a “strategical” way. We have regional groups in nearly every region of Germany. Our group
On December 16, 2021 the UN General Assembly formally adopted Resolution A/RES/76/132 recognising the over 300 million Persons Living with a Rare Disease (PLWRD) worldwide and their families. The Resolution focuses on the importance of non-discrimination and advances key pillars of the UN Sustainable Development Goals (SDGs), including access to education and decent work, reducing
Congratulations to Prof. Marc Humbert for his election as President of the European Respiratory Society (ERS). Prof. Humbert has published more than 700 peer-reviewed articles, mostly in the field of pulmonary hypertension, and is widely considered one of the world TLs in pulmonary hypertension. In his inaugural speech Prof. Humbert said he would continue to
Patient Focused Medicines Development (PFMD) is a not-for-profit collaborative initiative benefiting patients and health stakeholders by designing a patient-centred healthcare system with patients and all stakeholders. The importance of patient engagement (PE) across the medicines development continuum is widely acknowledged across diverse health stakeholder groups, including health authorities; however, the practical applications of how to
During the COVID-19 pandemic, many health care systems suspended their non-urgent activities. Pulmonary Hypertension patients were subjected to the same rules as other patients during the COVID-19 pandemic, with no prioritised care despite their rare and severe condition. A consortium composed of pulmonary hypertension patient associations and scientific societies was created to launch the PH-CARE-COVID survey,
The European Society for Organ Transplant (ESOT) is delighted to launch the first edition of the ESOT Hackathon to identify and develop tools to serve the transplant patient community. Whether it is an idea, a scenario, a prototype, an app, an interface, a proof of concept or a turnkey solution, ESOT is looking for innovative
