“How-to guides” for patient engagement in key phases of medicines development, by the PFMD

Patient Focused Medicines Development (PFMD) is a not-for-profit collaborative initiative benefiting patients and health stakeholders by designing a patient-centred healthcare system with patients and all stakeholders. The importance of patient engagement (PE) across the medicines development continuum is widely acknowledged across diverse health stakeholder groups, including health authorities; however, the practical applications of how to implement meaningful and consistent PE are not always addressed. PFMD has now developed “how-to guides” for patient engagement that cover the main activities along the medicines development process. The guides are free to use and provide practical advice and examples that anyone can use in their patient engagement activities. The how-to guides will also help patients to understand medicines development and how best they can participate in this process to address their needs.

The article can be viewed and downloaded at this link

See also the explanatory video on the PFMB YouTube channel at this link


Feldman, D., Kruger, P., Delbecque, L. et al. Co-creation of practical “how-to guides” for patient engagement in key phases of medicines development—from theory to implementation. Res Involv Engagem 7, 57 (2021). https://doi.org/10.1186/s40900-021-00294-x

Scroll to Top