Hall Skaara reports back from the Pulmonary Hypertension Association conference in Indianapolis, USA, August 15-18, 2024, where he represented PHA Europe

The US Pulmonary Hypertension Association (PHA) hosted its 15th international Pulmonary Hypertension conference in Indianapolis, Indiana, from August 15-18, 2024. This event gathered approximately 1,100 healthcare professionals, researchers, patients, and advocates from across the globe. The event aimed to strengthen connections and promote collaboration within the pulmonary hypertension community. Key sessions included a joint presentation […]

Hall Skaara reports back from the Pulmonary Hypertension Association conference in Indianapolis, USA, August 15-18, 2024, where he represented PHA Europe Read Post »

The key role of patient associations highlighted during discussions at the 5th French Pulmonary Hypertension Network Meeting, “Respiratory Medicine and Research”, Volume 86, 2024

The 5th French Pulmonary Hypertension Network Meeting, convened in Le Kremlin-Bicêtre, France, in 2023, served as a platform to examine current evidence and outstanding questions in pulmonary hypertension, particularly in the context of the recently published 2022 ESC/ERS Guidelines. The French Network is composed of some of France’s key experts in the field of pulmonary

The key role of patient associations highlighted during discussions at the 5th French Pulmonary Hypertension Network Meeting, “Respiratory Medicine and Research”, Volume 86, 2024 Read Post »

PHA Canada’s PH Community Conference is taking place September 19-21, 2024 in Calgary

The program of PHA Canada’s Community Conference includes plenary sessions, specialized discussion panels and peer discussion groups that will provide community members at all stages of their pulmonary hypertension journeys a safe space to learn something new and connect with PHriends. More details available at this link on the PHA Canada website

PHA Canada’s PH Community Conference is taking place September 19-21, 2024 in Calgary Read Post »

Insights and connections: highlights from the World Symposium on Pulmonary Hypertension, Barcelona, 29.6-1.7, 2024

The Alliance for Pulmonary Hypertension team – Ioanna Alysandratou, Pisana Ferrari, Mélanie Gallant-Dewavrin, Louise Bouman – van der Waal, Hans-Dieter Kulla and Laure Rosé – is back from the 7th World Symposium on Pulmonary Hypertension in Barcelona. Attending the World Symposium on Pulmonary Hypertension was an incredibly exciting and enriching experience. The scientific sessions were

Insights and connections: highlights from the World Symposium on Pulmonary Hypertension, Barcelona, 29.6-1.7, 2024 Read Post »

Setting the Tone: The Role of Patient Voices at the World Symposium on Pulmonary Hypertension, Barcelona, 29.6-1.7, 2024

In his concluding remarks at the 7th World Symposium on Pulmonary Hypertension, Prof. Marc Humbert highlighted the impressive diversity and scale of the event. The symposium hosted 1,697 participants, including 1,102 healthcare professionals, from various specialties, 124 task force members, and 471 industry staff, from over 60 countries. This diversity underscores the global effort and

Setting the Tone: The Role of Patient Voices at the World Symposium on Pulmonary Hypertension, Barcelona, 29.6-1.7, 2024 Read Post »

Less than 2 weeks to go to the World Symposium on Pulmonary Hypertension. If you are attending come meet the Alliance for Pulmonary Hypertension team at their booth!

The Alliance for Pulmonary Hypertension will have six delegates attending the World Symposium on Pulmonary Hypertension taking place in Barcelona 29.6-1.7 2024. Visit their booth and meet the team! Ioanna Alysandratou Ιωάννα Αλυσανδράτου President of the Hellenic Community for Pulmonary Hypertension Louise Bouman – van der Waal Chair of the Stichting Pulmonale Hypertensie / PH

Less than 2 weeks to go to the World Symposium on Pulmonary Hypertension. If you are attending come meet the Alliance for Pulmonary Hypertension team at their booth! Read Post »

Only two weeks to go to the 7th World Symposium on Pulmonary Hypertension, Barcelona, June 29-July 1st, 2024

Only 2 weeks to go to the World Symposium on Pulmonary Hypertension – June 29 to July the 1st, 2024, Barcelona. The Alliance for Pulmonary Hypertension will have six delegates attending. Visit our booth and meet the team! Ioanna Alysandratou Ιωάννα Αλυσανδράτου Chair of the Hellenic Community for Pulmonary Hypertension and President of the Alliance

Only two weeks to go to the 7th World Symposium on Pulmonary Hypertension, Barcelona, June 29-July 1st, 2024 Read Post »

Transplantation Society Annual Congress, Istanbul, Turkey, September 22-25, 2024

The Transplantation Society is a non-profit non governmental organisation providing global leadership in transplantation. Its core mission includes the development of the science and clinical practice, scientific communication, continuing education and guidance on the ethical practice. The Transplantation Society’s Annual Congress 2024 is taking place in Istanbul September 22-25, 2024. Full program available at this

Transplantation Society Annual Congress, Istanbul, Turkey, September 22-25, 2024 Read Post »

John Vane Memorial Symposium on Prostacyclin Science and Pulmonary Vascular Disease, London, March 15-16, 2024

The first John Vane Memorial Symposium on Prostacyclin Science and Pulmonary Vascular Disease was held in London, UK, 2006 to honour the memory of Sir John Vane, the founder of the William Harvey Research Institute and Nobel prize Laureate for his discovery of prostacyclin and its analogues (see also our article at this link). It

John Vane Memorial Symposium on Prostacyclin Science and Pulmonary Vascular Disease, London, March 15-16, 2024 Read Post »

Coming up soon, the World Symposium on Pulmonary Hypertension 2024, the most important scientific event in the world this field!

The 7th edition of the World Symposium on Pulmonary Hypertension is being held on June 29-30/July 1, 2024, in Barcelona, Spain. The WSPH is the most important scientific event in the field of pulmonary hypertension. It has been convened every five years since the Evian edition in 1998 (including Venice 2003, Dana Point 2008, Nice

Coming up soon, the World Symposium on Pulmonary Hypertension 2024, the most important scientific event in the world this field! Read Post »

PHA Europe held its Annual Pulmonary Hypertension European Conference (APHEC) on November 8-12, 2023, featuring representatives of the scientific, patient, and health care communities

The European Association for Pulmonary Hypertension, PHA Europe, held its Annual European Pulmonary Hypertension Conference (APHEC) in Barcelona from 8-12 November 2023 in Castelledefels, Barcelona (Spain). The conference featured presentations by distinguished members of the scientific community (Prof. Adam Torbicki, Poland; Prof. Jean-Luc Vachiéry, Belgium; Prof Joanna Pepke-Zabka, UK; Prof. Jimmy Ford, USA; Prof. Dr.

PHA Europe held its Annual Pulmonary Hypertension European Conference (APHEC) on November 8-12, 2023, featuring representatives of the scientific, patient, and health care communities Read Post »

The Impact and Future of European Reference Networks (ERNs) discussed at a conference in Bilbao, Spain, on October 10-11, 2023

The European Reference Networks (ERNs) are virtual networks involving healthcare providers across Europe. They aim to facilitate discussion on complex or rare diseases and conditions that require highly specialised treatment, and concentrated knowledge and resources. The first ERNs were launched in 2017, involving more than 900 highly-specialised healthcare units from over 300 hospitals in 26 EU

The Impact and Future of European Reference Networks (ERNs) discussed at a conference in Bilbao, Spain, on October 10-11, 2023 Read Post »

Scientific presentations, case studies and workshops at the German pulmonary hypertension association ph e.v.’s annual patient meeting, October 20-22, 2023

The German pulmonary hypertension association, ph e.v., held the 24th edition of its Annual Patient Meeting on October 20-22, 2023, at the Education Center of the Hessian State Sports Association in Frankfurt am Main. The ph e.v. annual meetings consistently draw a very large number of participants from all over the country. The program combines

Scientific presentations, case studies and workshops at the German pulmonary hypertension association ph e.v.’s annual patient meeting, October 20-22, 2023 Read Post »

Insights from a panel discussion on aging with rare diseases, including pulmonary hypertension, at the World Orphan Drug Congress, Barcelona, November 2, 2023

The World Orphan Drug Congress is the largest and most established orphan drugs and rare diseases meeting of its kind across the globe. Its 14th annual edition took place in Barcelona, Spain, from October 30 to November 3, 2023. There were 1,500+attendees, 300 speakers and 80+exhibitors. On November 2 the President of AIPI Italian Pulmonary Hypertension

Insights from a panel discussion on aging with rare diseases, including pulmonary hypertension, at the World Orphan Drug Congress, Barcelona, November 2, 2023 Read Post »

Prof. Marc Humbert selects his highlights on the topic of pulmonary hypertension from the European Respiratory Society (ERS) 2023 Congress

European Respiratory Society (ERS) Past President Prof. Marc Humbert selects his highlights from the annual congress on the topic of pulmonary hypertension – noting the key messaging and findings from what was presented in this video featured on the ERS Respiratory Channel.

Prof. Marc Humbert selects his highlights on the topic of pulmonary hypertension from the European Respiratory Society (ERS) 2023 Congress Read Post »

Highlights from the European Respiratory Society (ERS) 2023 Congress on the topic of pulmonary hypertension by Prof. Marc Humbert, Director of the French National Pulmonary Hypertension Centre

The European Respiratory Society (ERS) has issued an eight-episode series offering summaries of disease specific content from its annual congress which took place in Milan, Italy, September 20-23, 2023 In one of the episodes, European Respiratory Society (ERS) Past President Prof. Marc Humbert, Director of the French National Pulmonary Hypertension Centre, selects his highlights from

Highlights from the European Respiratory Society (ERS) 2023 Congress on the topic of pulmonary hypertension by Prof. Marc Humbert, Director of the French National Pulmonary Hypertension Centre Read Post »

Patients take centre stage at the Annual Congress of the European Society for Organ Transplant in Athens, September 17-20, 2023

The annual congress of the ESOT – European Society for Organ Transplantation is the largest and most influential scientific event in the field of transplantation science in the world. This year, patients and their well-being took center stage, with many sessions dedicated to shared decision making, shared care, and patient-related issues. The congress was attended

Patients take centre stage at the Annual Congress of the European Society for Organ Transplant in Athens, September 17-20, 2023 Read Post »

New European Lung Foundation (ELF) “Pulmonary Hypertension Patient Advisory Group”, PAG, set up!

The Alliance for Pulmonary Hypertension has been a proud member of the European Lung Foundation (ELF) Patient Organisation Network since May 2023 (see our article at this link). More recently, the European Lung Foundation has set up a new Patient Advisory Group dedicated specifically to pulmonary hypertension. The ELF’s Patient Advisory Groups, also known as

New European Lung Foundation (ELF) “Pulmonary Hypertension Patient Advisory Group”, PAG, set up! Read Post »

Pulmonary hypertension advocate Gergely Meszaros speaks at the Association of Cardiovascular Nursing & Allied Professions (ACNAP)’s annual conference in Edinburgh

Gergely Meszaros, a pulmonary hypertension advocate and Project Manager at the European Reference Network for Rare Lung Diseases, ERN-LUNG, was invited to speak at the Association of Cardiovascular Nursing & Allied Professions (ACNAP) of the European Society of Cardiology Annual Congress in Edinburgh, UK, on June 23-24, 2023. Gergely’s talk was about the 2022 joint European Society

Pulmonary hypertension advocate Gergely Meszaros speaks at the Association of Cardiovascular Nursing & Allied Professions (ACNAP)’s annual conference in Edinburgh Read Post »

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