“Submit your healthy recipes”, the Pulmonary Hypertension Association, PHA, calls on the community to help collect pulmonary hypertension-friendly recipes

Most people with pulmonary hypertension have specific dietary needs that are often overlooked in healthy recipe books and websites. The Pulmonary Hypertension Association, PHA, is calling on the community to help collect healthy recipes such as low-sodium dishes, pulmonary hypertension-friendly desserts or nutrient-rich meals, to support and inspire others on their wellness journey. Learn more […]

“Submit your healthy recipes”, the Pulmonary Hypertension Association, PHA, calls on the community to help collect pulmonary hypertension-friendly recipes Read Post »

Unraveling the genetics of pulmonary hypertension webinar

“Unraveling the Genetics of Pulmonary Hypertension” explored the genetic underpinnings of this complex disease. Our panel of experts, including a patient, explored the latest research, information on genetic mutations associated with pulmonary hypertension, and practical guidance on genetic counseling and testing. Speakers Prof David Montani, Department of Respiratory and Intensive Care Medicine, Pulmonary Hypertension National

Unraveling the genetics of pulmonary hypertension webinar Read Post »

NEW! Patient booklet on lung transplant by the Italian Pulmonary Hypertension Association AIPI now directly translatable in 40 languages on this platform! Check it out!

The patient booklet on lung transplant by AIPI, Italian Pulmonary Hypertension publication “Guida al Trapianto di polmoni” has been adapted and translated into English by Pisana Ferrari, President of AIPI. You can now translate the entire booklet directly from here using the orange button at the bottom of the page: 40 languages are currently available

NEW! Patient booklet on lung transplant by the Italian Pulmonary Hypertension Association AIPI now directly translatable in 40 languages on this platform! Check it out! Read Post »

Only two weeks to go to the 7th World Symposium on Pulmonary Hypertension, Barcelona, June 29-July 1st, 2024

Only 2 weeks to go to the World Symposium on Pulmonary Hypertension – June 29 to July the 1st, 2024, Barcelona. The Alliance for Pulmonary Hypertension will have six delegates attending. Visit our booth and meet the team! Ioanna Alysandratou Ιωάννα Αλυσανδράτου Chair of the Hellenic Community for Pulmonary Hypertension and President of the Alliance

Only two weeks to go to the 7th World Symposium on Pulmonary Hypertension, Barcelona, June 29-July 1st, 2024 Read Post »

The recording of PHA Europe’s first Health Technology Assessment (HTA) training webinars now available on the Bel Air Center online platform

PHA Europe, the European Pulmonary Hypertension Association, is offering training courses on Health Technology Assessment. (HTA) and Policy work. The first training session took place on June the 5th, 2024, and two more are scheduled before the end of the year: The speaker, Niels Bertelsen, is (volunteer) past chair of the Health Technology Assessment International

The recording of PHA Europe’s first Health Technology Assessment (HTA) training webinars now available on the Bel Air Center online platform Read Post »

“Congenital heart disease and pulmonary hypertension”, an Alliance for Pulmonary Hypertension live webinar

Transcript “CONGENITAL HEART DISEASE AND PULMONARY HYPERTENSION”, MAY 18, 2024 NB. This transcript can be translated into your preferred language – use orange button at the bottom centre of this page to select it (slides are not translatable). DISCLAIMER: Despite every effort to ensure the accuracy of this transcript, we strongly encourage all visitors to consult with

“Congenital heart disease and pulmonary hypertension”, an Alliance for Pulmonary Hypertension live webinar Read Post »

The Global Allergy and Airways Patient Platform (GAAPP) welcomes the Alliance for Pulmonary Hypertension as new member, May 2024

The Global Allergy and Airways Patient Platform (GAAPP)’s mission is to globally support and empower patients with allergies, airways and atopic diseases by protecting their rights and insisting on the duties of governments, healthcare professionals and the general public. The organisation’s vision is to create a world where patients with allergies, airways and atopic diseases live

The Global Allergy and Airways Patient Platform (GAAPP) welcomes the Alliance for Pulmonary Hypertension as new member, May 2024 Read Post »

Anne-Marie Amilhat, one of the world’s longest-living heart-lung transplant recipients (36 years!) was among the 11,000 people who carried the Olympic flame from Athens to Paris

Anne-Marie Amilhat, who is one of the world’s longest-living heart-lung transplant recipients (36 years post surgery!) was among the 11,000 people who carried the Olympic flame from Athens to Paris. On May 17th Anne-Marie carried the torch between Toulouse and Auch. The news was reported in the April 2024 edition of the French pulmonary hypertension

Anne-Marie Amilhat, one of the world’s longest-living heart-lung transplant recipients (36 years!) was among the 11,000 people who carried the Olympic flame from Athens to Paris Read Post »

The Canadian Pulmonary Hypertension Association, PHA Canada, publishes results of its survey on socio-economic burden of pulmonary hypertension

Last year the Canadian Pulmonary Hypertension Association, PHA Canada, conducted a survey to explore the financial and employment impacts of pulmonary arterial hypertension in Canada. The aim of the research was to understand how this condition affects patients’ work and daily activities. The survey also captured information about patients’ need for caregivers and the impact

The Canadian Pulmonary Hypertension Association, PHA Canada, publishes results of its survey on socio-economic burden of pulmonary hypertension Read Post »

Cross-border meeting of French, Swiss and German pulmonary hypertension patients in Ungersheim, France, to celebrate World Pulmonary Hypertension Day 2024 together

On Saturday the 4th of May 2024, a number of pulmonary hypertension patients and their relatives, friends and carers, from Switzerland and Germany joined the French group to celebrate World Pulmonary Hypertension Day together, as has been their custom since 2016. At the initiative of HTaPFrance, the French pulmonary hypertension association, the gathering was held

Cross-border meeting of French, Swiss and German pulmonary hypertension patients in Ungersheim, France, to celebrate World Pulmonary Hypertension Day 2024 together Read Post »

Celebrating one year from the Pulmonary Hypertension Knowledge Sharing Platform launch!

Today, on May 5, World Pulmonary Hypertension Day, the Alliance for Pulmonary Hypertension celebrates one year since the launch of the Pulmonary Hypertension Knowledge Sharing Platform! For those of you who have not yet had a chance to visit it, the Pulmonary Hypertension Knowledge Sharing Platform is: The Pulmonary Hypertension Knowledge Sharing Platform is an

Celebrating one year from the Pulmonary Hypertension Knowledge Sharing Platform launch! Read Post »

On World Pulmonary Hypertension Day 2024 the Alliance for Pulmonary Hypertension celebrates the importance of sharing knowledge and expertise to empower patients

World Pulmonary Hypertension Day symbolizes the solidarity and unity of the community in facing this condition’s challenges. The members of the Alliance for Pulmonary Hypertension celebrate this day by emphasising the importance of sharing knowledge and best practices to empower patients, engage the scientific community, and foster collaboration in pulmonary hypertension care. This is the

On World Pulmonary Hypertension Day 2024 the Alliance for Pulmonary Hypertension celebrates the importance of sharing knowledge and expertise to empower patients Read Post »

Pulmonary hypertension “Question time” organised by the European Lung Foundation Pulmonary Hypertension Patient Advisory Group, May 31, 2024

Coming up on May 31st at 10 am CEST and not to be missed if you are part of the pulmonary hypertension community! The European Lung Foundation (ELF) Pulmonary Hypertension Patient Advisory Group was set up in 2023 and includes patients and patient advocates from a number of patient associations in Europe and in the

Pulmonary hypertension “Question time” organised by the European Lung Foundation Pulmonary Hypertension Patient Advisory Group, May 31, 2024 Read Post »

Matt Granato, CEO of the Pulmonary Hypertension Association US, shares his association’s plans for World Pulmonary Hypertension Day 2024

The Pulmonary Hypertension Association‘s CEO Matt J. Granato shares the association’s plans to celebrate the 2024 World Pulmonary Hypertension Day and invites the global PH community to mark this longstanding and important awareness campaign around the theme of “unity”. Read more at this link on the PHA website

Matt Granato, CEO of the Pulmonary Hypertension Association US, shares his association’s plans for World Pulmonary Hypertension Day 2024 Read Post »

PHA Europe celebrates World Pulmonary Hypertension Day 2024 with a webinar on non pulmonary arterial hypertension forms of pulmonary hypertension

PHA Europe, the European Pulmonary Hypertension Association, is celebrating this year’s World Pulmonary Hypertension Day with a webinar on non pulmonary arterial hypertension forms of pulmonary hypertension, featuring world renowned expert expert Ardeschir Ghofrani as keynote speaker.  May 5, 2024 – 16:00 CET Link: https://belaircenter.info/

PHA Europe celebrates World Pulmonary Hypertension Day 2024 with a webinar on non pulmonary arterial hypertension forms of pulmonary hypertension Read Post »

The Fundación Contra la Hipertensión Pulmonar, Spain, has won an important prize for its project on non-invasive remote monitoring for children with pulmonary hypertension

The Spanish Foundation for Pulmonary Hypertension, Fundación Contra la Hipertensión Pulmonar, has been selected as winner of one of the prizes of the “Inocente Foundation” for its project on “Non-invasive Remote Monitoring for children with Pulmonary Hypertension”, which will be carried out at the Ramón y Cajal University Hospital.

The Fundación Contra la Hipertensión Pulmonar, Spain, has won an important prize for its project on non-invasive remote monitoring for children with pulmonary hypertension Read Post »

Findings from the UK Pulmonary Hypertension Association’s survey on nutrition and pulmonary arterial hypertension now available

The UK Pulmonary Hypertension Association launched a survey on nutrition and pulmonary arterial hypertension last year in March in which they asked patients about eating habits, food preferences, and cooking or weight management challenges. The findings were announced at the Pulmonary Vascular Research Institute (PVRI)’s congress in January 2024 and, more recently, on social media.

Findings from the UK Pulmonary Hypertension Association’s survey on nutrition and pulmonary arterial hypertension now available Read Post »

Navigating sex and intimacy while living with pulmonary hypertension, a live webinar organised by the Pulmonary Hypertension Association of Canada (PHA Canada), April 29, 20:00 CET

Drs. Vargas and Ventetuolo will discuss sexual health and intimacy for individuals living with pulmonary hypertension and their partners in this PHA Canada live webinar on April 29, 2024. They will explore prior research, clinical observations, and insights gathered from their own interviews and surveys with pulmonary hypertension patients. This webinar aims to shed light

Navigating sex and intimacy while living with pulmonary hypertension, a live webinar organised by the Pulmonary Hypertension Association of Canada (PHA Canada), April 29, 20:00 CET Read Post »

Full transcripts of the Alliance for Pulmonary Hypertension’s 2023 webinars now available for in a format that can be translated into 40 languages

The full transcripts of the Alliance for Pulmonary Hypertension’s 2023 six webinars are now available! The transcripts encapsulate invaluable insights that continue to resonate with current trends and emerging issues, serving as a vital resource for our community. They are now in a format that can be translated into 40 languages, thanks to the embedded

Full transcripts of the Alliance for Pulmonary Hypertension’s 2023 webinars now available for in a format that can be translated into 40 languages Read Post »

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