How to set up and run a patient group with Viber – Transcript

Good evening, everyone: distinguished guests, colleagues, and most importantly, our patient community. We often talk about healthcare in terms of hospitals, medications, and clinical appointments. But when you are living with a rare and complex condition like pulmonary hypertension, or navigating the life-altering journey of a lung transplant, healthcare does not end when you walk […]

How to set up and run a patient group with Viber – Transcript Read Post »

Managing and distributing your energy throughout the day while living with pulmonary hypertension – Transcript

Welcome to this PEP Talk from the Alliance for Pulmonary Hypertension about managing your energy. My name is Louise Bauman, and 18 years ago I was diagnosed with severe pulmonary arterial hypertension, or PAH. I was in functional class IV and immediately had to start intravenous epoprostenol. At that time, I had a newborn and

Managing and distributing your energy throughout the day while living with pulmonary hypertension – Transcript Read Post »

The butterfly effect, how my PAH diagnosis turned into a support movement – Transcript

Hello everyone, my name is Dina Grajales. I am speaking to you today from Bogotá, Colombia, as a patient living with pulmonary hypertension, president of the Latin Society of Pulmonary Hypertension, and president of the Ayúdanos a Respirar Foundation in Colombia. I am very grateful to the Global Alliance for Pulmonary Hypertension for this invitation

The butterfly effect, how my PAH diagnosis turned into a support movement – Transcript Read Post »

Suzanne Lea, Career pivot post transplant: finding new passion after pulmonary hypertension full transcript

Career Pivot Post-Transplant: Finding New Passion After Pulmonary Hypertension I’m going to talk to you today about career pivots after being diagnosed with pulmonary hypertension or, in my case, even more so after transplant. Let’s go back a bit. As well as inheriting pulmonary hypertension through my DNA — I had a genetic form —

Suzanne Lea, Career pivot post transplant: finding new passion after pulmonary hypertension full transcript Read Post »

When science and AI converge- the evolving landscape of Pulmonary Arterial Hypertension (PAH) care – webinar, slides, and transcript (part 2)

DOWNLOAD THE SLIDES *Remote monitoring technologies and solutions – Paula Appenzeller MD *Online mental health resources and peer support – Dr Gregg H. Rawlings *HeartWorks: The New Pulmonary Hypertension Mobile Research & Resources App for Patients, Caregivers & HCPs – Steve Van Wormer FULL TRANSCRIPT – COMING SOON SHORT SUMMARY In this AfPH webinar, speakers

When science and AI converge- the evolving landscape of Pulmonary Arterial Hypertension (PAH) care – webinar, slides, and transcript (part 2) Read Post »

When science and AI converge- the evolving landscape of Pulmonary Arterial Hypertension (PAH) care – webinar, slides, and transcript

DOWNLOAD THE SLIDES Lis Neubeck – Introduction to digital health Wendy Gin-Sing – Teleconsultations and remote follow-up in clinical practice  Hall Skaara – home monitoring devices and wearables, a patient testimonial Ardeschir Ghofrani – Innovations in drug delivery to improve the patient experience DOWNLOAD THE FULL TRANSCRIPT HERE SHORT SUMMARY In this first quarterly webinar

When science and AI converge- the evolving landscape of Pulmonary Arterial Hypertension (PAH) care – webinar, slides, and transcript Read Post »

What’s New in Pulmonary Hypertension” Recording and Slides Q4 2025, Dec 15

The “What’s New in PH” Quarterly Webinar Series 2025 provides a comprehensive quarterly update on pulmonary hypertension. It explores breakthrough research, emerging treatments, key conferences, and patient-led innovations, providing a holistic view of the evolving pulmonary hypertension landscape. Watch the full recording Wrap up of key 2025 Pulmonary Hypertension Scientific Developments – Prof. Marc Humbert

What’s New in Pulmonary Hypertension” Recording and Slides Q4 2025, Dec 15 Read Post »

What’s New in Pulmonary Hypertension” Recording and Slides Q3 2025, Sept 24

The “What’s New in PH” Quarterly Webinar Series 2025 provides a comprehensive quarterly update on pulmonary hypertension. It explores breakthrough research, emerging treatments, key conferences, and patient-led innovations, providing a holistic view of the evolving pulmonary hypertension landscape. Watch the full recording Pulmonary Hypertension Patient Information Project (PH-PIP), Wendy Vansteenkiste and Jan Verstraete Download the

What’s New in Pulmonary Hypertension” Recording and Slides Q3 2025, Sept 24 Read Post »

“What’s New in PH” Recording and Slides Q2 2025, June 30

The “What’s New in PH” Quarterly Webinar Series 2025 provides a comprehensive quarterly update on pulmonary hypertension. It explores breakthrough research, emerging treatments, key conferences, and patient-led innovations, providing a holistic view of the evolving pulmonary hypertension landscape. Watch the full recording World Pulmonary Hypertension Day Celebrations in Latvia – Ieva Plume Download Ieva’s slides

“What’s New in PH” Recording and Slides Q2 2025, June 30 Read Post »

“What’s New in PH” Recording and Slides Q1 2025, March 26

The “What’s New in PH” Quarterly Webinar Series 2025 provides a comprehensive quarterly update on pulmonary hypertension. It explores breakthrough research, emerging treatments, key conferences, and patient-led innovations, providing a holistic view of the evolving pulmonary hypertension landscape. Watch the full recording What’s new and hot in PAH in 2025 – Dr. Hans Klose Download

“What’s New in PH” Recording and Slides Q1 2025, March 26 Read Post »

Slides and recording now available for the AfPH webinar on “Advancing CTEPH Care: Exploring the MultiModal Management Strategy in the New ESC/ERS Guidelines”

Download the slides here Panelists Transcript “ADVANCING CTEPH CARE: EXPLORING THE MULTIMODAL STRATEGY IN THE NEW ESC/ERS GUIDELINES” NB. This transcript can be translated into your preferred language – use the orange button at the bottom centre of this page to select it (slides are not translatable). DISCLAIMER: Despite every effort to ensure the accuracy of this

Slides and recording now available for the AfPH webinar on “Advancing CTEPH Care: Exploring the MultiModal Management Strategy in the New ESC/ERS Guidelines” Read Post »

Webinar on “Balancing life and health: pulmonary hypertension, women & family planning” (Sept. 5, 2023)

Download the webinar slides here Learning objectives of the webinar Our goal is to empower individuals living with pulmonary hypertension and their families, equipping them with actionable insights and practical knowledge. Transcript “BALANCING LIFE AND HEALTH: PULMONARY HYPERTENSION, WOMEN AND FAMILY PLANNING”, September 5, 2023 NB. This transcript can be translated into your preferred language

Webinar on “Balancing life and health: pulmonary hypertension, women & family planning” (Sept. 5, 2023) Read Post »

Webinar on “Patient-Reported Outcome Measures and Their Role in Pulmonary Hypertension Care and Research”

Download the webinar slides here Learning objectives of the webinar Our goal is to empower individuals living with pulmonary hypertension and their families, equipping them with actionable insights and practical knowledge. Transcript NB. This transcript can be translated into your preferred language – use orange button at the bottom centre of this page to select

Webinar on “Patient-Reported Outcome Measures and Their Role in Pulmonary Hypertension Care and Research” Read Post »

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