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The Children’s Center for Pulmonary Hypertension in Lviv, Ukraine opened on 28 February 2024 thanks to the hard work of the Sister Dalilah Charitable Foundation, the Pulmonary Hypertension Ukrainian Rare Disease Association (PHURDA), the Paediatric Cardiology Department and hospital management teams at the St. Nicholas Hospital of the First Medical Union of Lviv and the US Pulmonary Hypertension Association (PHA). The Ukrainian patient association PHURDA is led by Oksana Kulish Skaara (third from left iin the photo, a patient herself. Oksana is also the European Patient Ambassador Programme (EPAP) representative on the European Lung Foundation (ELF) Council. The new centre aims to improve the diagnosis and treatment of children with pulmonary hypertension.
Read more at this link on the European Lung Foundation website.
