The Alliance for Pulmonary Hypertension’s quarterly webinars aim to keep the community informed and connected by examining recent advancements, emerging research, and new initiatives in pulmonary hypertension. Through a blend of expert (scientific and patient) presentations and open dialogue, these sessions encourage active participation and create space for diverse perspectives from patients, caregivers, and healthcare professionals.
The four 2025 webinars united the global pulmonary hypertension community around key themes: emerging clinical evidence, innovative treatment approaches including inhaled therapies and transplantation, early detection advances, and patient-centered insights from international conferences and community surveys. They featured 22 speakers from 12 countries (Austria, Belgium, Colombia, France, Germany, Hungary, Italy, Japan, Latvia, The Netherlands, UK, USA). Among them were 10 scientific experts, 9 patients/patient advocates. The CEO of the Pulmonary Vascular Research Institute (PVRI) and a representative of the Belgian Expert Patient Center were also invited as guest speakers. A patient engagement specialist served as moderator, fostering meaningful dialogue.
Program impact
The first three webinars have had 3.000+ views on YouTube and almost 1.200 interactions (likes, comments, shares) across our LinkedIn, Instagram and Facebook pages. We do not have significant metrics yet for the Q4 webinar which was held in December.
The slides and recordings of the webinars remain available on this platform, and can be translated into 40 languages, extending their impact beyond live participation and serving as ongoing reference materials for patients, families, and healthcare providers worldwide.
2025 QUARTERLY WEBINARS
Q1 Webinar, March 26, 2025
- What’s new and hot in Pulmonary Arterial Hypertension in 2025 – Dr. Hans Klose
- Introducing the PVRI and the Rio Congress – Ms. Karen Osborn
- The GoDeep Pulmonary Hypertension International Registry – Prof. Ardeschir Ghofrani
- Novel agents and their impact on the treatment algorithm – Prof. Sandeep Sahay
- The Pulmonary Hypertension Global Patient Survey – Mr. Matt J. Granato
Q2 Webinar, June 30, 2025
- Mag. Phil. Ieva Plume – World Pulmonary Hypertension Day celebrations in Latvia, May 5
- Andris Skride MD, PhD – Highlights from the 5th Baltic Pulmonary HypertensionConference, May 9, 2025
- Prof. Harm Jan Bogaard – Key takeaways from the PVRI Drug Discovery and Development Symposium, June 16-17, 2025
- Mrs. Louise Bouman –Patient Perspective at PVRI Drug Discovery and Development Symposium, June 16-17, 2025
- Pisana Ferrari –The patient voice at the Lung Failure and Transplantation Symposium, June 26-27, 2025
Q3 Webinar, September 24, 2025
- Prof. Luke Howard –The development of inhaled therapies for Pulmonary Arterial Hypertension
- Prof. Clemens Aigner – Emerging approaches to lung transplantation in Pulmonary Arterial Hypertension: the Vienna LuTX Center Perspective
- Jan Verstraete & Wendy Vansteenkiste – Introducing the Patient Information Project Belgium
- Prof. David Montani – The association between genetic data and response to sotatercept in the PULSAR study
- Prof. Olivier Sitbon – Use of PROMs in routine clinical practice: the experience of the Pulmonary Hypertension Paris Center
Q4 webinar, December 15, 2025
- Prof. Marc Humbert – Looking back at the year 2025 – key developments in pulmonary hypertension
- Colleen Brunetti – 2025 in review in the USA
- Dina Grajales – Latin America
- Noriko Murakami – Japan
- Gergely Meszaros – Eastern Europe and the Balkans
2026 QUARTERLY WEBINARS
The 2026 webinar series will examine how the convergence of digital health technologies and therapeutic advances can improve what matters most—patients’ everyday lives. Each webinar will feature international pulmonary hypertnsion experts and patient advocates addressing, inter alia, the potential of telemedicine and remote monitoring, innovations in drug delivery that reduce treatment burden, quality of life measures and Patient Reported Outcome Measures (PROMs), and digital support for medication adherence and mental health.
