A very useful tool to understand “PH-speak” developed by the Pulmonary Hypertension Association (PHA) The PHA Acronym decoder can be found on the dedicated PHA Website at this link
Pulmonary Hypertension (PHA) Acronym Decoder Read Post »
This glossary appears in Pulmonary Hypertension: A Patient’s Survival Guide. It was modified for the web to include links and additional references. The Glossary can be searched on the dedicated page on the PHA Website at this link
This research award grants up to $65,000 for one year and supports junior pulmonary hypertension scientists. Proposals must be pulmonary hypertension related research projects that have been favourably reviewed for a National Institutes of Health Early Career Award (K award) but not funded. The award provides bridge funding so the project can generate sufficient preliminary
The Pulmonary Hypertension Association (PHA) offers education programs for patients and caregivers through online learning, regional forums and conferences. See the dedicated page on the PHA website at this link
The Pulmonary Hypertension Association (PHA) brochure on chronic thromboembolic pulmonary hypertension contains information about diagnosis, treatments and surgical solutions. It can be downloaded from the PHA website at this link
PHA’s PHPN Symposium brings together more than 400 PH-treating health care professionals every two years to learn about advancements in pulmonary hypertension treatment and research, earn continuing education, and network. Registration will open in March 2023. Learn more at this link
PHA Teens is a secure social network for teens ages 13-18 who have pulmonary hypertension developed by the Pulmonary Hypertension Association (PHA) On PHA Teens, one can: Learn more by going to the PHA dedicated page at this link
An entire section of the Pulmonary Hypertension Association (PHA) website is dedicated to parenting a child with pulmonary hypertension. It provides invaluable advice and resources on different aspects of pulmonary hypertension child care including: Learn more on the dedicated page of the PHA website at this link
The Pulmonary Hypertension Association (PHA)’s “Email PHriends” are volunteer patients and caregivers who are available to answer questions and chat through email with other members of the pulmonary hypertension community over a period of three months. The PHA specifies that the “Email PHriends” cannot offer medical advice but can share what they’ve learned along the
The Pulmonary Hypertension Association’s (PHA’s) new publication, “Navigating Pulmonary Hypertension: A Guide for Newly Diagnosed Patients” is designed for individuals with pulmonary hypertension and their loved ones to find answers, support and hope during the first few weeks, months or years after a pulmonary hypertension diagnosis. The resource provides an overview of diagnosis, treatment, symptoms
“As a caregiver, you are an important part of your loved one’s pulmonary hypertension experience. With planning, perspective and the knowledge that you don’t have to do everything alone, you can become a well-informed advocate for your loved one’s health and an everyday source of strength and courage for the PH patient in your life”,
