The International Clinical Trials Day is organised yearly on May 20, since 2014, by the Association of Clinical Research Professionals (ACRP), as an opportunity for the clinical research community to to celebrate what has been accomplished in this field and recommit to push even further.
Learn more about International Clinical Trials Day at this link on the ACPR dedicated website
💭 For us, the pulmonary hypertension patient community, this occurrence can provide an opportunity to better understand how clinical trials work and the issues at stake and reflect on the importance and potential risks/benefits of taking part.
You may wish to check out these links:
🇪🇺 The EU-funded European Communication on Research Awareness Needs, ECRAN project, is an online platform that is available in five languages in addition to English (German, Italian, French, Polish, Spanish). It contains a wealth of information about clinical trials, and explains everything patients need to know in order to take part in them.
🏫 An educational video developed by EUPATI, the European Patient Academy for Therapeutic Innovation, which traces the history of clinical trials to the 18th century and explains in very simple language and with engaging visuals how they work today.
📖 An article by Jen Cueva, a pulmonary arterial hypertension patient, who is also a nurse, where she explains the advantages of taking part in clinical trials.
📹 A video where leading pulmonary hypertension expert Vallerie McLaughlin explores risks and benefits of clinical trials
👨⚕️ A recent educational video by the US Pulmonary Hypertension Association (PHA), featuring J. Wes McConnell, M.D., looks back at past clinical trials and explains how they are evolving and likely to be shaped in the future.
📑 See also the dedicated PH-KSP section on Clinical Trials/Research for information about recent and future clinical trials.