Fundación Hipertensión Pulmonar de la República Dominicana (FHPRD) Adress: C. Ana Josefa Puello 20b, Santo Domingo, República Dominicana Phone Number: +1 829-487-5487 Association Presidente: Elba Rodriguez Association Email: fundacionhprd@gmail.com http://fundacionhprd.org.do/
Fundación Hipertensión Pulmonar de la República Dominicana (FHPRD) Read Post »
Asociación Costarricense de Hipertensión Pulmonar San José, Costa Rica Association Email: asocr.hiperpulmonar@gmail.com Facebook page: https://www.facebook.com/asocrhipertensionpulmonar Website: asociacion-costarricense-de-hipertension-pulmona
Asociación Costarricense de Hipertensión Pulmonar Read Post »
Marc Humbert, M.D., Ph.D., Vallerie McLaughlin, M.D., J. Simon R. Gibbs, M.D., Mardi Gomberg-Maitland, M.D., Marius M. Hoeper, M.D., Ioana R. Preston, M.D., Rogerio Souza, M.D., Ph.D., Aaron Waxman, M.D., Ph.D., Pilar Escribano Subias, M.D., Ph.D., Jeremy Feldman, M.D., Gisela Meyer, M.D., David Montani, M.D., Ph.D., et al., “Sotatercept for the Treatment of Pulmonary Arterial
Tejido Azul Colombia Adress: Cra. 85 ## 37 – 24, Cali, Valle del Cauca, Colombia Phone Number: +57 311 3717055 Association Email: asociaciontejidoazul@gmail.com https://www.facebook.com/AsociacionTejidoAzul
Tejido Azul Colombia Read Post »
ACHPA Fundación Ayúnos a Respirar Bogota, Colombia Adress: CALLE 53 46 56 AP 203 Phone Number: +57 324 2545453 http://www.ayudanosarespirar.org/ https://www.facebook.com/HipertensionPulmonarCol
ACHPA Fundación Ayúnos a Respirar Read Post »
PHA Canada Address: A408 – 55 Water Street, Office 8928 Vancouver, BC, V6B 1A1 Phone Number: +1 604-682-1036 Association President: Joan Paulin Association Email: info@phacanada.ca https://www.phacanada.ca/
PHA Europe European pulmonary hypertension umbrella organisation 33 member associations Address: Wilhelmstraße 21. A-1120 Vienna, Austria Phone Number: (+43) 1 402 3725 Association President: Eva Otter Association Email: info@phaeurope.org https://www.phaeurope.org/
HIPUA Hipertension Pulmonar Argentina Buenos Aires, Argentina Adress: Belgrano Bs.As.Argentina Phone Number: +54 (011) 4673 8063 Association President: Nancy Campelo Association Email: info@hipertensionpulmonarargentina.org http://hipertensionpulmonarargentina.org
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PHAA Australia Association President: Joan Godber Association Email: admin@phaaustralia.com.au https://www.phaaustralia.com/
This boklet published by AIPI, the Italian pulmonary hypertension association features a collection of patient testimonies. The aim of the book was to enable patients to understand how it is possible to experience the disease with the same intensity, but approaching it from different points of view. And also to enable them to think of
The 2nd edition of Nefes contains Interviews with health care professionals, an article about the PAHSSc President Kamil Hamidullah and a number of patient stories. Download the newsletter at this link: ac24e500cf111ce1a4741e3e0f69954a
2nd edition of “Nefes”, the Turkish PH patient association PAHSSc’s monthly newsletter Read Post »
PH Human, part of the JanssenWithMe digital platform, was created in partnership with the pulmonary hypertension patient community and is dedicated to supporting people with the condition. It has a particular focus on pulmonary arterial hypertension (Group 1 WHO classification of pulmonary hypertension). It helps share real-life experiences from people living with pulmonary arterial hypertension
This booklet developed by by AIPI, Italian pulmonary hypertension association, contains pratical advice and tips for day-to-day life with pulmonary arterial hypertension. It stresses the importance of being organised and reserving one’s energies on what really matters. The condition has an impact on many aspects of life and relationships, so it is important to involve
In chronic thromboembolic pulmonary hypertension (Group 4 of the classification of the WHO, World Health Organisation) pulmonary hypertension is due to the mechanical obstruction of the pulmonary circulation by thrombi (blood clots) that have progressively accumulated. In this booklet by AIPI, Italian pulmonary patient association you will find information on: Download the AIPI booklet on
The European Union (EU) pharmaceutical legislation known as the Clinical Trials Regulation comes into force today, the 31st of January 2022. It aims to ensure the EU offers an attractive and favourable environment for carrying out clinical research on a large scale, with high standards of public transparency and safety for clinical trial participants. Prior to
The EU Clinical Trials Regulation came into force 31st of January 2022 Read Post »
AIPI, Associazione Ipertensione Polmonare Italiana (Italian Pulmonary Hypertension Association) in a non profit organisation founded in Bologna in 2001. AIPI provides different forms of support to patients. These include: Link to AIPI website
AIPI, Associazione Ipertensione Polmonare Italiana, Italian PH Association Read Post »
The “Guide to Lung Transplant” by AIPI, Italian patient association provides practical advice on the different phases of the patient journey: the ‘before’, ‘during’ and ‘after’. The last part of the book collects some patient testimonies. Download the AIPI “Guide to lung transplantation” at this link
Patient booklet on lung transplant by AIPI, Italian pulmonary hypertension association Read Post »
Rosie Matthysen was a pulmonary hypertension patient and a patient advocate. She was the founder of HTAP Belgique, the Belgian francophone pulmonary hypertension association, one of the founding members of PHA Europe. In this touching video poste on the PHA EUROPE YouTube channel Rosie tells her story and tells us about her life with pulmonary
Rosie’s “Breathtaking Story”, submitted by the Belgian French association HTAP Belgique Read Post »
On January 2022 a new initiative launched by the European Commission, the Heads of Medicines Agencies (HMA) and the European Medicines Agency (EMA) aims to transform how clinical trials are initiated, designed, and run. This initiative, called “Accelerating Clinical Trials in the EU for better clinical trials that address patients’ needs“, aims to further develop
Could you kindly tell us something about yourself? I have been president of the German PHeV since 2012. My input and the one of all others is voluntary! I am not a patient and I contribute to our organization in a “strategical” way. We have regional groups in nearly every region of Germany. Our group
