On 19th September, pulmonary hypertension nurses Iain Armstrong and Javier Jimenez are taking the plunge for patients for “Swim Serpentine”, covering 1,609 metres, in London’s Hyde Park

On 19th September, pulmonary hypertension nurses Iain Armstrong (Chairman of the UK pulmonary Hypertension association), and Javier Jimenez will spend one mile experiencing what their patients face every single day. They will swim in the open water of London’s Hyde Park for Swim Serpentine, covering 1,609 metres in the heart of the city. The shock […]

On 19th September, pulmonary hypertension nurses Iain Armstrong and Javier Jimenez are taking the plunge for patients for “Swim Serpentine”, covering 1,609 metres, in London’s Hyde Park Read Post »

Climbing for a Cause: Krishma Kaur’s Kilimanjaro Challenge in Support of the UK Pulmonary Hypertension Association – PHA UK -and the Alzheimer’s Society

Krishma Kaur and his cousin Sean Bhaker, UK citizens, have decided to take on the challenge of climbing Mount Kilimanjaro to raise money for Alzheimer’s Society and the UK Pulmonary Hypertension Association PHA UK. All money raised will be donated directly to these two charities. Krishma and Sean have launched a Go Fund campaign to

Climbing for a Cause: Krishma Kaur’s Kilimanjaro Challenge in Support of the UK Pulmonary Hypertension Association – PHA UK -and the Alzheimer’s Society Read Post »

The Pulmonary Vascular Research Institute launches the Global PH Consult, a new, free, online service for clinicians which aims to support more equitable access to pulmonary hypertension case discussion and shared learning

The Pulmonary Vascular Research Iinstitute (PVRI’s) Access to Care Workstream has launched a new, free online service from clinicians around the world to bring anonymised complex pulmonary hypertension cases for discussion with a tailored panel of specialists. Global PH Consult is open to clinicians everywhere, with a primary focus on supporting those in low and

The Pulmonary Vascular Research Institute launches the Global PH Consult, a new, free, online service for clinicians which aims to support more equitable access to pulmonary hypertension case discussion and shared learning Read Post »

The Japanese Circulation Society, in response to advocacy by PHA Japan, publishes lay summary of the pulmonary hypertension guidelines, June 8, 2026

The Japanese Circulation Society, in response to advocacy from the Japanese pulmonary hypertension patient association PHA Japan, has published a patient-friendly lay summary of the pulmonary hypertension guidelines. The document aims to help patients and families better understand their condition and treatment options, and to facilitate more equal, informed conversations with their doctors. As the

The Japanese Circulation Society, in response to advocacy by PHA Japan, publishes lay summary of the pulmonary hypertension guidelines, June 8, 2026 Read Post »

What’s new in pulmonary hypertension on the Knowldge Sharing Platform, May 2026

This month’s selection reflects the remarkable momentum in the pulmonary hypertension field — from landmark regulatory approvals and cutting-edge research to inspiring human stories and practical tools for patients. As always, we have curated a range of content to inform, inspire, and empower our community. RESEARCH AND SCIENCE INDUSTRY NEWS DIGITAL HEALTH AND INNOVATION TRANSPLANT

What’s new in pulmonary hypertension on the Knowldge Sharing Platform, May 2026 Read Post »

Monthly roundup of content shared on the Pulmonary Hypertension Knowledge Sharing Platform – April 2026

Welcome to our April roundup of the most relevant and interesting content shared on this platform. April 2026 has been a particularly rich month, with significant news on the diagnostics, clinical trials and treatment front alongside important research on quality of life, patient preferences information, economic burden. There is also a selection of patient resources

Monthly roundup of content shared on the Pulmonary Hypertension Knowledge Sharing Platform – April 2026 Read Post »

UK Pulmonary Hypertension Association opens Poetry Competition to the pulmonary hypertension community

The UK Pulmonary Hypertension Association (PHA UK) is inviting everyone in the pulmonary community to enter their Poetry Competition — patients, caregivers, family members, friends, and healthcare professionals alike. It’s free to enter. These are some of the topics suggested: 👉 Visit the PHA UK website to enter.

UK Pulmonary Hypertension Association opens Poetry Competition to the pulmonary hypertension community Read Post »

The Canadian Pulmonary Hypertension Association (PHA Canada) launches an Advisory Council bringing together patients and caregivers to help shape its future programs and priorities

The Canadian Pulmonary Hypertension Association (PHA Canada) has recently announced the setting up of a “Patient Partner Advisory Council (PPAC)”—a new committee which brings together patients and caregivers to help shape the future of the pulmonary hypertension community. The founding members are Angèle Belliveau, Don Downey, Maureen Harper, Brooke Paulin, and Jane Sernoskie. Their lived experience

The Canadian Pulmonary Hypertension Association (PHA Canada) launches an Advisory Council bringing together patients and caregivers to help shape its future programs and priorities Read Post »

Video recording & full transcript (translatable in 40 languages) now available for the Pulmonary Hypertension Expert Patient Academy (PHEPA) joint Alliance for Pulmonary Hypertension and PHA Europe project

LINK TO VIDEO TRANSCRIPT Can be translated in 40 languges, check orange button on bottom of page Gergely Meszaros: Good evening and good afternoon to everyone. Welcome to this webinar introducing the Pulmonary Hypertension Expert Patient Academy (PHEPA). I’m delighted to present this new initiative. When ERN-LUNG, the European Reference Network for Rare Respiratory Diseases,

Video recording & full transcript (translatable in 40 languages) now available for the Pulmonary Hypertension Expert Patient Academy (PHEPA) joint Alliance for Pulmonary Hypertension and PHA Europe project Read Post »

The Alliance for Pulmonary Hypertension supports Cure HHT’s efforts to direct future research for people with pulmonary arterial hypertension and hereditary hemorrhagic telangiectasia (HHT)

Renamed “Cure HHT” in 2014, the HHT Foundation International was founded by a passionate group of patient families and physicians, who shared a hope for a better future for those with hereditary hemorrhagic telangiectasia (HHT). Since its establishment in 1991, Cure HHT has consistently been at the center of the national (US) and global effort

The Alliance for Pulmonary Hypertension supports Cure HHT’s efforts to direct future research for people with pulmonary arterial hypertension and hereditary hemorrhagic telangiectasia (HHT) Read Post »

Understanding right heart catheterisation, the “gold standard” test to diagnose pulmonary hypertension: a new resource by the UK Pulmonary Hypertension Association, PHA UK

The PHA UK has added new information to their website area that’s dedicated to right heart catheterisation procedure, check it out at this link. Cardiac catheterisation is known as the ‘gold standard’ test to diagnose pulmonary hypertension. It is a procedure that is used to study the right side of the heart and it is

Understanding right heart catheterisation, the “gold standard” test to diagnose pulmonary hypertension: a new resource by the UK Pulmonary Hypertension Association, PHA UK Read Post »

A credit-card sized guide to pulmonary hypertension developed by the UK Pulmonary Hypertension Association, PHA UK

Small enough to fit in your back pocket, this credit-card sized guide is a handy tool to carry around and give people to read about pulmonary hypertension, its impact on people’s lives and the aims of the PHA UK. Check this resource out on the PHA UK website at this link

A credit-card sized guide to pulmonary hypertension developed by the UK Pulmonary Hypertension Association, PHA UK Read Post »

Medication and pulmonary hypertension, a Pulmonary Hypertension Association UK (PHA UK) booklet

This booklet was developed by the Pulmonary Hypertension Association UK (PHA UK) as a guide to treating and managing pulmonary hypertension using drug therapies. Sections include conventional or supportive therapies (including oxygen), and targeted therapies, including those taken orally, intravenously or via a nebuliser. This booklet is regularly reviewed to keep the information as up-to-date

Medication and pulmonary hypertension, a Pulmonary Hypertension Association UK (PHA UK) booklet Read Post »

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