PHantasticals, an initiative to increase awareness of pulmonary hypertension among patients, caregivers and the general public, unveils its new website on World Pulmonary Hypertension Day 2023, May 5

PHantasticals is an awareness raising initiative promoted by Ferrer. It is addressed to patients, caregivers and society large. The website features testimonials from patients and health care professionals as well as useful infographics on pulmonary hypertension (PH), pulmonary arterial hypertension (PAH), and pulmonary hypertension due to Interstitial Lung Disease (PH-ILD) Learn more on the PHantasticals […]

PHantasticals, an initiative to increase awareness of pulmonary hypertension among patients, caregivers and the general public, unveils its new website on World Pulmonary Hypertension Day 2023, May 5 Read Post »

The Vestingloop 2023, a sporting event to raise awareness and funds for pulmonary hypertension taking place in ‘s-Hertogenbosch, Netherlands, May 14, 2023

The Vestingloop has multiple components; running, trailrun and walking. There are different distances so basically everyone can participate. Last year this event had 7.000 participants. The 17th edition is taking place on May 14, from 9 to 4 pm in ‘s-Hertogenbosch, Netherlands, and, thanks to the charity “Heb hart voor longen” (Have a heart for

The Vestingloop 2023, a sporting event to raise awareness and funds for pulmonary hypertension taking place in ‘s-Hertogenbosch, Netherlands, May 14, 2023 Read Post »

Promoted by the Active Citizenship Network, the celebration of the 17th Edition of the European Patients’ Rights Day took place on April 26, 2023

Active Citizenship Network, together with civic and patient organizations from all over Europe, has taken the initiative to organize – every year since 2007 – the European conference dedicated to the celebration of the European Patients’ Rights Day, based on the calendar of EU institutions. Over the years, the European institutions have always shown great

Promoted by the Active Citizenship Network, the celebration of the 17th Edition of the European Patients’ Rights Day took place on April 26, 2023 Read Post »

“Eroi anonimi” (“Anonymous heroes”), an Italian online platform aimed at raising awareness about the importance of organ donation in the general population

“Eroi anonimi” (“Anonymous heroes”) is an Italian online platform aimed at the promotion of organ donation among the general population. The slogan of this awareness initiative is “You can be a hero even without superpowers”. The platform features information about the importance of organ donation, on the different procedures that are used in Italy to

“Eroi anonimi” (“Anonymous heroes”), an Italian online platform aimed at raising awareness about the importance of organ donation in the general population Read Post »

A toolkit offering a very wide range of resources to promote Pulmonary Hypertension Awareness Day 2023, May 5, is now available on the dedicated website

The Pulmonary Hypertension Awareness Day 2023 toolkit is now available at this link On on May 5 very year since 2012 pulmonary hypertension organisations and groups around the world participate in activities to raise awareness of the disease. Many of the patient associations taking part in the celebrations organise sports events and using the slogan “Get breathless for PH”.

A toolkit offering a very wide range of resources to promote Pulmonary Hypertension Awareness Day 2023, May 5, is now available on the dedicated website Read Post »

24th edition of the World Transplant Games started on April 15, 2023. An event to demonstrate that health and fitness can be achieved post-transplant

Starting on April 15, 2023, 46 member countries came together to compete in 17 sporting disciplines at the 24th World Transplant Games. This is the first reunion of the community of transplant recipients, living donors, donor families, friends and supporters after four years. For over 40 years, the World Transplant Games have demonstrated that health and fitness

24th edition of the World Transplant Games started on April 15, 2023. An event to demonstrate that health and fitness can be achieved post-transplant Read Post »

The “International Team Development” is a Team PHenomenal Hope program to raise awareness of pulmonary hypertension through endurance racing events

The International Team Development program is a model that enables Team PHenomenal Hope to raise awareness of pulmonary hypertension through endurance racing events throughout the world. The aim of the program is to improve access to care and medications for pulmonary hypertension patients, raise money for medical research into improved treatments or a cure and

The “International Team Development” is a Team PHenomenal Hope program to raise awareness of pulmonary hypertension through endurance racing events Read Post »

The Rare Purple Elephant “Pongo” and his role in raising awareness of pulmonary hypertension, an initiative by the Greek pulmonary hypertension association Hellenic PH

Ioanna Alysandratou, a pulmonary hypertension patient and President of Hellenic PH,, is the creator of Pongo, the “rare” purple elephant. Pongo has only a tiny little nostril and struggles to breathe. This is one of the symptoms of pulmonary hypertension, a rare condition affecting the lungs and heart. Pongo has been used in many awareness

The Rare Purple Elephant “Pongo” and his role in raising awareness of pulmonary hypertension, an initiative by the Greek pulmonary hypertension association Hellenic PH Read Post »

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