Taking place in February to mark the occasion of Rare Disease Day, the EURORDIS (European Organisation for Rare Diseases) Black Pearl Awards celebrates the inspirational qualities of people living with a rare disease along with those who go that extra mile to make a difference to their lives. The black pearl symbolises these unique individuals, organisations and companies who demonstrate an incredible combination of hard work and dedication in their daily lives.
The event was attended by over 400 people representing 34 countries both on-site in Brussels and connected online, including patients, healthcare professionals, industry leaders, and policymakers.
The winner is the photo titled “Raising Rare” by Lindsay Norman.
Read more about the “Black Pearl” ceremony at this link on the EURORDIS website.