The Alliance for Pulmonary Hypertension is a proud member of the European Lung Foundation (ELF) Patient Organisation Network and is represented in the European Lung Foundation Pulmonary Hypertension Patient Advisory Group (PH PAG).
The European Lung Foundation Patient Advisory Groups and working groups are made up of people who have an interest in a particular lung condition or topic related to lung health. Volunteers share their views and experiences and get involved in projects to help improve treatment and healthcare. Activities include patient conferences, educational resource updates and collaborations with respiratory partners and organisations.
The Pulmonary Hypertension Patient Advisory Group was formed in 2023. It ran a very successful Pulmonary Hypertension Question Time webinar during Pulmonary Hypertension Awareness Month (November) 2024, where a group of experts explored key questions around the condition, including causes, symptoms, treatment and clinical trials. Ahead of the event, six videos from experts were shared. You can watch the recordings and the webinar at this link.
The European Lung Foundation is a patient-led organisation that works internationally to bring patients and the public together with healthcare professionals to improve lung health and advance diagnosis, treatment and care. Founded in 2000, it works in partnership with the European Respiratory Society (ERS) to develop the union between lung health professionals and patients. It is based in Sheffield (UK) and Brussels (Belgium).
Read the full European Lung Foundation Annual report at this link
