The authors of the study titled “Social Media Participation Among Parents and Caregivers of Children With Pulmonary Hypertension”, published in Advances in Pulmonary Hypertension, on March 16, 2022. Parents and caregivers of over 300 patients from a large paediatric pulmonary hypertension center were approached for participation in the survey, which was administered online and on paper. Seventy percent of patients and caregivers in the survey reported using social media as a support resource, utilising 2–5 different social media platforms. For parents and caregivers of children diagnosed with pulmonary hypertension, they say, participation in social media can be one way to connect with others in a similar situation around the world and share information and have a significant role as a support resource for these families. The authors furthermore say that healthcare teams should consider evaluation of social media and support its role as a resource and source of education.
Social Media Participation Among Parents and Caregivers of Children With Pulmonary Hypertension, Elise Whalen, MSN, APRN, FNP-C, CPN; Melody Hellsten, DNP, APRN, PPCNP-BC; Gina Santucci, MSN, FNP-C, APNBC; Danita Czyzewski, PhD; Nidhy P. Varghese, MD Advances in Pulmonary Hypertension (2022) 21 (1): 16–19, https://doi.org/10.21693/1933-088X-21.1.16
Rea more at this link on the Advances in Pulmonary Hypertension website