Following the official launch of its pulmonary arterial hypertension policy toolkit in Barcelona last November at PHAEUROPE‘s Annual Conference, The Health Policy Partnership has been working on dissemination opportunities of this important work, which was endorsed by the Alliance for Pulmonary Hypertension along with several of the major patient associations active in the field. On 29 January 2025, the HPP team presented a concise version of the toolkit translated in Polish at the Healthcare Priorities Conference in Warsaw. During the conference, they were able to engage multiple stakeholders, from clinicians and ministers to patient advocates.
HPP Managing Director Ed Harding presented the findings and insights during a panel discussion that included the President of Poland’s Pulmonary Hypertension association – Polskie Stowarzyszenie Osób z Nadciśnieniem Płucnym i Ich Przyjaciół – Małgorzata Piekarska), a pulmonary arterial hypertension clinical leader and national policymakers, including the Deputy Minister of Health for Rare Diseases and the Chair of the Parliamentary Team for Rare Diseases.
While in Poland, the HPP team also had the opportunity to join interviews with local media outlets, including WPROST and Termedia. Ed Harding discussed the value of the toolkit work and how it can support patient advocates in discussions with policymakers.
The expert steering committee of the HPP policy toolkit includes Dr Pilar Escribano, Prof. Marc Humbert, Prof Nicholas Kolaitis, Prof. Suntharalingam, and patient association representatives Eva Otter, Melanie Gallant-Dewavrin, Natalia Maeva, Pisana Ferrari, Elizabeth Joseloff, and Jamie Myrah.
Read more about the policy toolkit project at this link
See also our previous article about the policy toolkit at this link
