A patient and carer survey was conducted in the USA with the aim of determining if participation in a pulmonary hypertension support group has a significant effect on quality of life (QOL) in a population of patients with pulmonary hypertension and their caregivers using the emPHasis-10 questionnaire. 165 subjects were enrolled in the study; 122 (74.4%) were patients with PH, 41 (25.0%) were their caregivers, and 2 (0.02%) did not respond.
The findings of the study, titled “Participation in pulmonary hypertension support group improves patient-reported health quality outcomes: a patient and caregiver survey” were .published in “Pulmonary Circulation”. They reveal that participation in pulmonary hypertension support groups improve meaningful health-related outcomes including: self-healing, management of symptoms, adherence to medication, confidence in self-care, understanding of the right heart catheterisation procedure, and understanding of their condition.
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Giri PC, Stevens GJ, Merrill-Henry J, Oyoyo U, Balasubramanian VP. Participation in pulmonary hypertension support group improves patient-reported health quality outcomes: a patient and caregiver survey. Pulmonary Circulation. 2021;11(2). doi:10.1177/20458940211013258