Last Week’s Key PH Moments You Don’t Want to Miss! May 29- June 4, 2023

Two chronic thromboembolic pulmonary hypertension (CTEPH) patients, Gabriele and Rishabh, from different corners of the globe, respectively Italy and Singapore, have come forward to share their remarkable stories of resilience, strength, and hope.

“My Journey with Chronic Thromboembolic Pulmonary Hypertension (CTEPH)”, Gabriele Valentini, May 29, 2023

“From Diagnosis of CTEPH to Triumph: Rishabh’s Journey of Resilience and Restoration”, May 31, 2023

Promising news from Janssen about their application to FDA for single tablet combination of macitentan (ERA) and tadalafil (PDE-5), read more at this link

French patient shares her tips on how to “wear” a 24/7 IV infusion pump discreetly and how to talk about it with her colleagues at this link

Associate Professor Chloë Ballesté Delpierre, from the University of Barcelona Medical School, highlights the importance of countries learning from each other’s successful strategies and collaborating towards a shared objective in order to address the issue of shortage of organs. Read more at this link

Pulmonary hypertension science goes back a long way, take a moment to check this brief infographic with the most significant milestones!

AfPH joins another 150 associations from 50 countries as member of the European Lung Foundation (ELF) Patient Organisation Network. Lear more at this link

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