Interview with the President of AIPI, Italian pulmonary hypertension association for “Italian Medical News”, March 1, 2023, on the role of patient associations

In this interview for Italian Medical News, Pisana Ferrari, President of AIPI, Associazione Ipertensione Polmonare Italiana describes:

• The challenges of patients with rare diseases and the key role that patient associations can play in providing support and information
• The activities of AIPI
• The collaboration of AIPI with other italian and European associations
• The changing role of patients from passive subjects to informed and empowered protagonists of their own care
• The increasing involvement of patient advocates in the work of institutions, regulatory authorities, scientific societies, industry

Full text of article, published March 1st, at this link on the Italian Medical News website