This survey, the first of its kind, has been designed to help improve global understandings of how pulmonary hypertension affects the lives of patients and in what ways pulmonary hypertension care needs to be improved.
The survey has been written by a multidisciplinary panel of pulmonary hypertension specialists and patient group advocates from the pulmonary hypertension associations of Europe, United States, United Kingdom and South Africa. It was coordinated by the Pulmonary Vascular Research Institute (PVRI) “Patient Engagement & Empowerment Workstream” (of which the Alliance for Pulmonary Hypertension is a member) and was endorsed by the ERN-LUNG.
Take part in the survey at this link
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