European Respiratory Society (ERS) web event on “Living with rare respiratory diseases through the COVID-19 pandemic”

This live online discussion organised by the European Respiratory Society (ERS) was held on March 23, 2022, and focused on the experiences and learnings of specialists and patients in the fields of idiopathic pulmonary fibrosis, pulmonary hypertension, cystic fibrosis and bronchiectasis ,since the emergence of COVID-19. ERS President Elect Professor Marc Humbert and European Respiratory Journal (ERJ) Deputy Chief Editor Professor James Chalmers led the discussion. The panel included two patient advocates.

Panel members

  • Ms Pisana Ferrari – Patient Advocate for Pulmonary Hypertension and Organ Donation/Transplant
  • Professor Isabelle Fajac – President of the European Cystic Fibrosis Society (ECFS)
  • Dr Clémence Martin – Doctor of Pulmonology at Cochin Hospital, Paris
  • Dr Pippa Powell – Director of the European Lung Foundation (ELF)
  • Professor Vincent Cottin – Coordinator of the National Reference Centre for Rare Pulmonary Diseases at the Louis Pradel Hospital and the Claude Bernard University Lyon, France
  • Professor Katerina Antoniou – Head of the Molecular and Cellular Pneumonology Laboratory at the University of Crete, Greece
  • Professor Marion Delcroix – Head of Pulmonary Hypertension Program at the University Hospitals of Leuven, Belgium
  • Mr Gergely Meszaros – Advocacy Manager at the European Pulmonary Hypertension Association (PHA Europe)

The video of the event was posted on the ERS Respiratory Channel and can be viewed on YouTube at this link

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