The Pulmonary Vascular Research Institute (PVRI) organised a patient-directed webinar on “Debunking Myths of Lung Transplantation” on September 25, 2024. This was an outstanding webinar: the explanations were exceptionally clear and delivered in easy-to-understand language, covering every step of the transplant journey—from getting listed and preparing for surgery, through the operation and immediate post-op, to what to expect when returning home and managing long-term care. The visuals were highly effective, and the presentations from the two interviewed patients were equally remarkable—both pragmatic and deeply motivational, leaving a positive and inspiring impression.
Presentations
- When do I need to think about a lung transplant? Corey Ventetuolo, Brown University, USA.
- Transplant Evaluation, Listing and Surgery, Caitlin Demarest, Vanderbilt University Medical Centre, USA.
- What Can I expect after the transplant, Nicholas Kolaitis, University of California SF, USA.
- A Patient’s Perspective: Natalia Maeva, PHA Europe, 9 years post double lung transplant, and Diane Ramirez, Pulmonary Hypertension Association, 1 year post double lung transplant.
The event was moderated by Reda Girgis, Michigan State University/Core Well Health, USA and Deborah Levine, Stanford University, USA.
Read the transcript in your preferred language at this link on the PVRI website.
