🫁 National Pulmonary Hypertension Information Day
Date: 22 November 2025 | Time: 10:15 – 16:00
Location: Congrescentrum De Schakel, Oranjelaan 10, 3862 CX Nijkerk
📍 Venue: Congrescentrum De Schakel, Nijkerk
🎈 Theme: “Stronger Together”
🎤 Chair: Arieke van Liere
An inspiring day full of information, recognition, and connection—especially for people living with pulmonary hypertension, their loved ones, and healthcare professionals.
📅 Program
10:15 – 10:45 ☕ Arrival with Coffee & Tea
Start the day relaxed with a warm welcome and a cup of coffee or tea.
10:45 – 11:00 👋 Opening & Welcome
By chair Arieke van Liere.
11:00 – 11:30 💊 New Opportunities in pulmonary hypertension: Medications and Emerging Treatments
With Dr. Diedrik van der Feen, Pulmonologist-in-Training, Amsterdam UMC. Explore what the future may bring for pulmonary hypertension treatment.
11:30 – 12:45 💬 Living with Loss – How Can We Support Each Other?
With Prof. Manu Keirse, grief and bereavement expert (KU Leuven)
Pulmonary hypertension (or another serious illness) can bring losses that are often invisible to others—health, energy, work, or future plans. Prof. Keirse will show that grieving is not only about saying goodbye to someone but also learning to cope with everything you lose yourself, and how to hold on in a new way. A warm and comforting session, offering recognition and hope.
12:45 – 13:45 🥪 Lunch Break
Recharge and connect with others over a delicious lunch.
13:45 – 14:45 🎯 Themed Sessions – Choose What Fits You!
- Caregiving: The Strength of the Other
With Jessica van Hooff, experienced patient advocate and author of De Partner. Explore the emotional rollercoaster of being a caregiver and discover the strengths you can find in yourself and from others around you. - Rehabilitation and Exercise: What’s Possible?
An interactive session with Charlot, Maryse, and Sonja. Charlot shares her personal journey through rehabilitation, the challenges faced, and improvements in daily life. Maryse, physiotherapist, explains how rehabilitation programs are structured and how safe, achievable exercise can enhance quality of life. Sonja, care coach, shows how patients are involved in their treatment plans and highlights key success factors. The session concludes with practical tips and a Q&A. - What is pulmonary hypertension? An Introduction
By Dr. Thijs Mulder, Cardiologist, Antonius Hospital. Gain a clear overview of pulmonary hypertension: what it is, its types, and treatment options. Practical tips for everyday life with pulmonary hypertension are included—ideal for patients, family members, or anyone wanting to learn more. - Let’s Talk! – Young Adults Living with pulmonary hypertension (20–35 years)
Informal gathering for young people with pulmonary hypertension. No structured program—just coffee, tea, and snacks. Talk, listen, or simply be.
14:50 – 15:15 🔚 Joint Closing Session
Reflect on a day full of insights, connections, and shared experiences.
15:15 – 16:00 🥂 Networking Reception
End the day with drinks and snacks in the foyer.
For more information and to register, please visit this link
Full program in Dutch here