Coming up on July 27: the AfPH webinar on “Patient reported Outcome Measures in Pulmonary Hypertension Research and Care”

The AfPH’s second webinar in the six part series exploring the innovations introduced by the 2022 ESC/ERS clinical guidelines on pulmonary hypertension is coming up soon, on July 27!

Patient-Reported Outcome Measures (PROMs) are currently underused in the context of pulmonary hypertension. While their importance in capturing the patient perspective and improving patient care is well recognized, their implementation in routine clinical practice can still be limited.

Be sure not to miss this opportunity to hear directly from two members of the European Reference Network for Rare Lung Diseases (ERN-LUNG) who are actively engaged in discussions concerning the utilisation of PROMs.

It is also very important to note that the 2022 joint European Society for Cardiology (ESC) and European Respiratory Society (ERS) clinical guidelines on the diagnosis and treatment of pulmonary hypertension have included, for the first time ever, a section specifically on PROMs, section 6.2.6.


  • Dr. Simon Gibbs, National Heart and Lung Institute, Imperial College, London, UK
  • Gergely Meszaros, Project Manager at ERN-LUNG

Moderator: Dr. Andreas Reimann, admedicum

Learning objectives

  • The current PROM tools and how they were developed
  • Why they should be included in routine patient care, particularly at PH centers.
  • Their potential use in clinical trials – including patient perspective in trial design
  • What is needed to improve current tools and develop future ones.

The webinar will be broadcast through the PH-KSP website, LinkedIn Live, and Facebook Live, ensuring widespread accessibility and participation. As we are committed to preserving and sharing the information delivered during this session the slides, recording and a comprehensive transcript will be made available, enabling individuals to revisit the content and share it with their networks.

We recognise the importance of overcoming language barriers, and therefore, we will provide translations, on request, making these resources accessible to individuals from diverse linguistic backgrounds. Contact us at this form to request a translation.

Further details and link to join the webinar will follow shortly.

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