Our warmest congratulations to our friend and colleague Ieva Plume, President of PHA Latvia, Pulmonālās hipertensijas biedrība (PHB), one of the Founding Members of the Alliance for Pulmonary Hypertension, for their 12th anniversary! Twelve years of amazing achievements!
Message sent by Ieva Plume
“On August 4, 2023, the Latvian Pulmonary Hypertension Association (PHB) celebrated its 12th anniversary with a wonderful event in Riga, the capital of Latvia. The association’s members, partners from the state institutions, pulmonary hypertension experts, physiotherapists, industry, and representatives of patients’ organisations, gathered to celebrate the occasion.Musicians Johan Steinhauer and Guntis Veiland performed a heartfelt and fun concert. Colleagues from the Latvian Alliance of Rare Diseases implemented an exciting and informative challenge titled “Patients’ rights and responsibilities”.
To mark its 12th anniversary, the Pulmonary Hypertension Society released an
educational booklet about the importance of clinical trials and how new drugs are
developed. The booklet, in Latvian can be downloaded at this link on the PHA Latvia website. As part of the anniversary events, the association will also make an
educational video on this topic.
The Pulmonary Hypertension Society (PHB) is a non-governmental charity which represents people with Pulmonary arterial hypertension and chronic thromboembolic pulmonary hypertension in Latvia. The organisation participated in the development of the national Rare Disease Plan since the beginning of the plan’s creation in 2012. In 2014, it was the initiative of PHB to found the Alliance of Rare Diseases of Latvia. Currently, PHB is a member of the Board of the Latvian Alliance of Rare Diseases. Since 2018, the diagnosis of pulmonary arterial hypertension has been included in the positive list of drugs reimbursement, and included in the Rare Diseases Program thanks to active advocacy work of PHB and cooperation with health experts, patients, mass media and the Ministry of Health of the Republic of Latvia and the National Health Service.
In 2019, PHB received annual award for the Support of People with Disabilities by the
Ombudsman of the Republic of Latvia in the category “Educator”.”