Gerry is 32 year old, mother of 2, military wife, living in Florida. She was diagnosed with idiopathic pulmonary arterial hypertension (IPAH) and congestive heart failure (CHF) in Sept of 2018. Since her diagnosis she says she has felt the draw to share her story so that others can find hope and inspiration from it. […]
Gerry, a patient advocate for pulmonary arterial hypertension, on Instagram Read Post »
Tüdőér Egylet PH Adress: 1146 Budapest, Cházár András u. 19. (székhely) Hungary 2643 Diósjenő, Szabadság út 110. (levelezési cím) Phone Number: (+36) 30 849 0708 Association President: Eszter Csabuda Association Email: tudoer.hu@gmail.com https://www.tudoer.hu/
Association HTaPFrance Adress: Association HTaPFrance 21, rue de Cîteaux 21190 MEURSAULT Phone Number: +33 (0)6 37 44 52 80 Association President: Maggy Surace Association Email: administration@htapfrance.com http://htapfrance.com/new.asp
Association HTaPFrance Read Post »
Asociación Salvadoreña Hipertension Arterial Pulmonar Salvador, El Salvador Phone Number: +503 7874 2196 Association Email: asociacionashap2016@gmail.com https://www.facebook.com/ELSALVADORASHAP
Asociación Salvadoreña Hipertension Arterial Pulmonar Read Post »
Asociación de Hipertensión Pulmonar Ecuador Phone Number: +229 67 72 09 94 Association Presidente: María Dolores Páez Association Email: paezpaquita1@gmail.com http://www.hipertensionpulmonar.ec/
Asociación de Hipertensión Pulmonar Ecuador Read Post »
Fundación Hipertensión Pulmonar de la República Dominicana (FHPRD) Adress: C. Ana Josefa Puello 20b, Santo Domingo, República Dominicana Phone Number: +1 829-487-5487 Association Presidente: Elba Rodriguez Association Email: fundacionhprd@gmail.com http://fundacionhprd.org.do/
Fundación Hipertensión Pulmonar de la República Dominicana (FHPRD) Read Post »
Asociación Costarricense de Hipertensión Pulmonar San José, Costa Rica Association Email: asocr.hiperpulmonar@gmail.com Facebook page: https://www.facebook.com/asocrhipertensionpulmonar Website: asociacion-costarricense-de-hipertension-pulmona
Asociación Costarricense de Hipertensión Pulmonar Read Post »
Marc Humbert, M.D., Ph.D., Vallerie McLaughlin, M.D., J. Simon R. Gibbs, M.D., Mardi Gomberg-Maitland, M.D., Marius M. Hoeper, M.D., Ioana R. Preston, M.D., Rogerio Souza, M.D., Ph.D., Aaron Waxman, M.D., Ph.D., Pilar Escribano Subias, M.D., Ph.D., Jeremy Feldman, M.D., Gisela Meyer, M.D., David Montani, M.D., Ph.D., et al., “Sotatercept for the Treatment of Pulmonary Arterial
Tejido Azul Colombia Adress: Cra. 85 ## 37 – 24, Cali, Valle del Cauca, Colombia Phone Number: +57 311 3717055 Association Email: asociaciontejidoazul@gmail.com https://www.facebook.com/AsociacionTejidoAzul
Tejido Azul Colombia Read Post »
ACHPA Fundación Ayúnos a Respirar Bogota, Colombia Adress: CALLE 53 46 56 AP 203 Phone Number: +57 324 2545453 http://www.ayudanosarespirar.org/ https://www.facebook.com/HipertensionPulmonarCol
ACHPA Fundación Ayúnos a Respirar Read Post »
PHA Canada Address: A408 – 55 Water Street, Office 8928 Vancouver, BC, V6B 1A1 Phone Number: +1 604-682-1036 Association President: Joan Paulin Association Email: info@phacanada.ca https://www.phacanada.ca/
Fondation Hypertension artérielle pulmonaire du Québec (HTAPQ) Adress: Casier postal 341Plessisville (Québec) G6L 2Y8 Canada Phone Number: +1 (819) 362-6236 Association President: Dolorès Carrier Association Email:info@htapquebec.ca https://htapquebec.ca/
Fondation Hypertension artérielle pulmonaire du Québec (HTAPQ) Read Post »
Udruženje građana oboljelih od plućne hipertenzije “DAH” – u Bosni i Hercegovini Address: R465, Zavidovići, Bosnien und Herzegowinaavidovići, Bosnia And Herzegovina Phone Number: +387 61 622 949 Association Email: ugphbih@gmail.com http://www.phbih-dah.com/ (temporarily disabled) https://www.facebook.com/plucnahipertenzijabosneihercegovine/
Udruženje građana oboljelih od plućne hipertenzije “DAH” – u Bosni i Hercegovini Read Post »
Htap Belgique asbl Rixensart, Belgium Adress: Beau Site-1ère Avenue 83, 1330 Rixensart, Belgien Phone Number: +32 2 654 13 60 Association President: Luc Matthysen Association Email: htapbelgique@hotmail.com https://www.facebook.com/htapbelgique
Htap Belgique Asbl Read Post »
PHA Europe European pulmonary hypertension umbrella organisation 33 member associations Address: Wilhelmstraße 21. A-1120 Vienna, Austria Phone Number: (+43) 1 402 3725 Association President: Eva Otter Association Email: info@phaeurope.org https://www.phaeurope.org/
HIPUA Hipertension Pulmonar Argentina Buenos Aires, Argentina Adress: Belgrano Bs.As.Argentina Phone Number: +54 (011) 4673 8063 Association President: Nancy Campelo Association Email: info@hipertensionpulmonarargentina.org http://hipertensionpulmonarargentina.org
HIPUA Hipertension Pulmonar Argentina Read Post »
PHAA Australia Association President: Joan Godber Association Email: admin@phaaustralia.com.au https://www.phaaustralia.com/
The 2nd edition of Nefes contains Interviews with health care professionals, an article about the PAHSSc President Kamil Hamidullah and a number of patient stories. Download the newsletter at this link: ac24e500cf111ce1a4741e3e0f69954a
2nd edition of “Nefes”, the Turkish PH patient association PAHSSc’s monthly newsletter Read Post »
PH Human, part of the JanssenWithMe digital platform, was created in partnership with the pulmonary hypertension patient community and is dedicated to supporting people with the condition. It has a particular focus on pulmonary arterial hypertension (Group 1 WHO classification of pulmonary hypertension). It helps share real-life experiences from people living with pulmonary arterial hypertension
The European Union (EU) pharmaceutical legislation known as the Clinical Trials Regulation comes into force today, the 31st of January 2022. It aims to ensure the EU offers an attractive and favourable environment for carrying out clinical research on a large scale, with high standards of public transparency and safety for clinical trial participants. Prior to
The EU Clinical Trials Regulation came into force 31st of January 2022 Read Post »
