Unraveling the genetics of pulmonary hypertension webinar

“Unraveling the Genetics of Pulmonary Hypertension” explored the genetic underpinnings of this complex disease. Our panel of experts, including a patient, explored the latest research, information on genetic mutations associated with pulmonary hypertension, and practical guidance on genetic counseling and testing. Speakers Prof David Montani, Department of Respiratory and Intensive Care Medicine, Pulmonary Hypertension National […]

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Interesting analysis of the prognostic value of the “Multicomponent Improvement” (MCI) endpoint in patients with pulmonary arterial hypertension (PAH) treated with sotatercept

The Multicomponent Improvement” (MCI) endpoint is a composite endpoint measuring improvement in 6-minute walk distance, reduction or maintenance of low N-terminal pro-BNP levels, and improvement or maintenance of WHO functional class I or II. The American Journal of Respiratory and Critical Care Medicine has published the abstract of a session at the American Thoracic Society

Interesting analysis of the prognostic value of the “Multicomponent Improvement” (MCI) endpoint in patients with pulmonary arterial hypertension (PAH) treated with sotatercept Read Post »

Less than 2 weeks to go to the World Symposium on Pulmonary Hypertension. If you are attending come meet the Alliance for Pulmonary Hypertension team at their booth!

The Alliance for Pulmonary Hypertension will have six delegates attending the World Symposium on Pulmonary Hypertension taking place in Barcelona 29.6-1.7 2024. Visit their booth and meet the team! Ioanna Alysandratou Ιωάννα Αλυσανδράτου President of the Hellenic Community for Pulmonary Hypertension Louise Bouman – van der Waal Chair of the Stichting Pulmonale Hypertensie / PH

Less than 2 weeks to go to the World Symposium on Pulmonary Hypertension. If you are attending come meet the Alliance for Pulmonary Hypertension team at their booth! Read Post »

Special issue of “Transplant International” delves into the multifaceted ethical and legal complexities surrounding organ donation and transplantation, June 2024

The latest special issue of “Transplant International,” titled “Ethical and Legal Aspects of Organ Donation and Transplantation,” tackles the intricate challenges inherent in organ donation and transplantation. Edited by Frederike Ambagtsheer, Coby Annema, David Paredes-Zapata and John Forsythe, this collection comprises 16 articles penned by global experts, spanning the years 2022 to 2024. These articles

Special issue of “Transplant International” delves into the multifaceted ethical and legal complexities surrounding organ donation and transplantation, June 2024 Read Post »

New study suggests that QOL measurements add prognostic information and should be used in routine pulmonary arterial hypertension assessment and management, “Pulmonary Circulation”, June 2, 2024

A recent study, conducted at the Hunter-New England pulmonary arterial hypertension (PAH) clinic in Newcastle, Australia, investigated the assessment of patient-reported outcome measures (PROs) and quality of life (QOL) in patients in WHO Group 1, pulmonary arterial hypertension. It aimed to determine if QOL scores, measured using both disease-specific (PAH-SYMPACT©) and general (EQ-5D-5L™) tools, could

New study suggests that QOL measurements add prognostic information and should be used in routine pulmonary arterial hypertension assessment and management, “Pulmonary Circulation”, June 2, 2024 Read Post »

“Fundamentals of Genetic Testing”, a live webinar organised by the Pulmonary Hypertension Association (PHA) in collaboration with with partners TBX4life and Fundación Contra la Hipertensión Pulmonar, June 11, 2024

The Pulmonary Hypertension Association (PHA) is holding a webinar of “Fundamentals of Genetic Testing“ on Tuesday, June 11, at 2 p.m. EDT/ 6 p.m. UTC in collaboration with TBX4Life and Fundación Contra la Hipertensión Pulmonar Featured topics include The webinar will be available in English and Spanish. Speakers Harm Jan Bogaard, MD, PhDProfessor of Experimental Pulmonary MedicinePulmonologist, Department

“Fundamentals of Genetic Testing”, a live webinar organised by the Pulmonary Hypertension Association (PHA) in collaboration with with partners TBX4life and Fundación Contra la Hipertensión Pulmonar, June 11, 2024 Read Post »

Sharing best practices in chronic thromboembolic pulmonary hypertension surgical and interventional treatments: insights from two world experts

The Alliance for Pulmonary Hypertension (AfPH) places a strong emphasis on the sharing of knowledge and best practices as a means to empower patients and family members and advance the understanding and treatment of pulmonary hypertension. This is the rationale behind the creation of the Pulmonary Hypertension Knowledge Sharing Platform, an open, inclusive, and dynamic

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Pioneering scientists who self-experiment new potential treatments or interventions: two remarkable stories in pulmonary hypertension

The history of scientists self-experimenting is filled with fascinating stories. In 1799, a young English chemist, Humphry Davy, later Sir Humphry, discovered “laughing gas” by inhaling nitrous oxide in a sealed box. In the late 1800s, German surgeon August Bier tested spinal anesthesia by injecting himself with cocaine. In the 1940s, American virologist and medical

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“Congenital heart disease and pulmonary hypertension”, an Alliance for Pulmonary Hypertension live webinar

Transcript “CONGENITAL HEART DISEASE AND PULMONARY HYPERTENSION”, MAY 18, 2024 NB. This transcript can be translated into your preferred language – use orange button at the bottom centre of this page to select it (slides are not translatable). DISCLAIMER: Despite every effort to ensure the accuracy of this transcript, we strongly encourage all visitors to consult with

“Congenital heart disease and pulmonary hypertension”, an Alliance for Pulmonary Hypertension live webinar Read Post »

Transplantation Society Annual Congress, Istanbul, Turkey, September 22-25, 2024

The Transplantation Society is a non-profit non governmental organisation providing global leadership in transplantation. Its core mission includes the development of the science and clinical practice, scientific communication, continuing education and guidance on the ethical practice. The Transplantation Society’s Annual Congress 2024 is taking place in Istanbul September 22-25, 2024. Full program available at this

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Dutch pulmonary hypertension expert Prof. Dr. Harm Jan Bogaard delves into the intricacies of the condition in a Spotify podcast for “De Internist”, May 21, 2024

Prof. Dr. Harm Jan Bogaard, pulmonologist and Professor of Experimental Pulmonary Medicine from the Amsterdam UMC deconstructs the underlying mechanisms, risk factors, and symptoms of pulmonary hypertension, as well as shedding light on its diagnosis and management strategies, in a Spotify podcast for De Internist. One hour listening time, well worth it! Tune in at

Dutch pulmonary hypertension expert Prof. Dr. Harm Jan Bogaard delves into the intricacies of the condition in a Spotify podcast for “De Internist”, May 21, 2024 Read Post »

According to research presented at the American Thoracic Society (ATS) congress hormone replacement therapy may be associated with improved pulmonary hypertension in women

Interesting news from American Thoracic Society congress 2024, taking place May 17-22 in San Diego, USA. According to research presented at the congress the use of hormone replacement therapy (HRT) may be associated with improved pulmonary hypertension in women. The study included 742 women from all five World Health Organization pulmonary hypertension groups. Audriana Hurbon MD is the

According to research presented at the American Thoracic Society (ATS) congress hormone replacement therapy may be associated with improved pulmonary hypertension in women Read Post »

Patients as teachers? A pilot experiment of patient-led online learning modules for HCPs in Canada proves the effectiveness of this approach, “BMC Medical Education”, May 10, 2024

A study titled “Patients as teachers: a within-subjects randomized pilot experiment of patient-led online learning modules for health professionals” was published on BMC Education on May 10, 2024. Medical education programs are increasingly including presentations by individuals with lived experiences. The authors of the article say that relying on a limited number of speakers may

Patients as teachers? A pilot experiment of patient-led online learning modules for HCPs in Canada proves the effectiveness of this approach, “BMC Medical Education”, May 10, 2024 Read Post »

Is there a role for calcium channel blockers in the contemporary treatment paradigm for pulmonary arterial hypertension? – Lewis Rubin, Circulation, May 13, 2024

“Is There a Role for Calcium Channel Blockers in the Contemporary Treatment Paradigm for Pulmonary Arterial Hypertension?” This is the title of an editorial by Lewis Rubin in Circulation, the journal of the American Heart Association, dated May 13, 2024. Among patients with pulmonary arterial hypertension (PAH), acute vasoreactivity testing during right heart catheterization may

Is there a role for calcium channel blockers in the contemporary treatment paradigm for pulmonary arterial hypertension? – Lewis Rubin, Circulation, May 13, 2024 Read Post »

Can dietary changes treat pulmonary hypertension? A new study suggests that some foods may affect blood vessel stiffening in pulmonary hypertension

The Cell metabolism journal has published a study by the University of Pittsburgh researcher Stephen Chan, MD, PhD, and colleagues from the team of Thomas Bertero at the Université Côte d’Azur in France, which explores the relation between diet and pulmonary hypertension. The findings reveal that hypertensive pulmonary blood vessel cells have an “appetite” for two

Can dietary changes treat pulmonary hypertension? A new study suggests that some foods may affect blood vessel stiffening in pulmonary hypertension Read Post »

PHA Europe celebrates World Pulmonary Hypertension Day 2024 with a webinar on non pulmonary arterial hypertension forms of pulmonary hypertension

PHA Europe, the European Pulmonary Hypertension Association, is celebrating this year’s World Pulmonary Hypertension Day with a webinar on non pulmonary arterial hypertension forms of pulmonary hypertension, featuring world renowned expert expert Ardeschir Ghofrani as keynote speaker.  May 5, 2024 – 16:00 CET Link: https://belaircenter.info/

PHA Europe celebrates World Pulmonary Hypertension Day 2024 with a webinar on non pulmonary arterial hypertension forms of pulmonary hypertension Read Post »

April 28 is ESOT, European Society for Organ Transplantation, Action Day, an annual observance which calls for enhanced cooperation between EU member states to address inequalities in transplantation

April 28 is ESOT – European Society for Organ Transplantation Action Day. ESOT is calling for enhanced cooperation among EU member states to empower transplant centres in delivering consistent, high-quality transplantation service ahead of the EU elections. ESOT is looking to drive the following 5 actions in the European Parliament between 2024 and 2029: Read

April 28 is ESOT, European Society for Organ Transplantation, Action Day, an annual observance which calls for enhanced cooperation between EU member states to address inequalities in transplantation Read Post »

A groundbreaking medical innovation known as the “sentinel skin flap” may hold the key to early detection of rejection in lung transplant patients

Could a medical innovation known as the “sentinel skin flap” hold the key to early detection of rejection in lung transplant patients? This pioneering technique, currently under investigation in a trial conducted by the University of Oxford and NHS Blood and Transplant, offers new hope for enhancing post-transplant care. Leading the charge in this groundbreaking trial is Henk Giele,

A groundbreaking medical innovation known as the “sentinel skin flap” may hold the key to early detection of rejection in lung transplant patients Read Post »

The Fundación Contra la Hipertensión Pulmonar, Spain, has won an important prize for its project on non-invasive remote monitoring for children with pulmonary hypertension

The Spanish Foundation for Pulmonary Hypertension, Fundación Contra la Hipertensión Pulmonar, has been selected as winner of one of the prizes of the “Inocente Foundation” for its project on “Non-invasive Remote Monitoring for children with Pulmonary Hypertension”, which will be carried out at the Ramón y Cajal University Hospital.

The Fundación Contra la Hipertensión Pulmonar, Spain, has won an important prize for its project on non-invasive remote monitoring for children with pulmonary hypertension Read Post »

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