Pisana Ferrari – Web Admin PH-KSP – Page 3

AfPH’s webinar on Partnering with Patients and Shared Decision Making, June 6, 2023.

As part of the Alliance for Pulmonary Hypertension (AfPH) knowledge-sharing initiative, a webinar series has been developed in partnership with Prof. Marc Humbert, a leading world expert on pulmonary hypertension and Director of the French National Pulmonary Hypertension Reference Center. Six live events are planned for 2023 and will address the main innovations introduced by […]

AfPH’s webinar on Partnering with Patients and Shared Decision Making, June 6, 2023. Read Post »

“Living with pulmonary hypertension”, a 4-part video series by the Pulmonary Hypertension Association of Canada, PHA Canada

The 4-part video series developed by the Pulmonary Hypertension Association of Canada, PHA Canada, covers the following topics: The video series can be viewed at this link on the PHA Canada website

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Pulmonary Hypertension (PHA) Acronym Decoder

A very useful tool to understand “PH-speak” developed by the Pulmonary Hypertension Association (PHA) The PHA Acronym decoder can be found on the dedicated PHA Website at this link

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Glossary of the most common terms used in pulmonary hypertension, by the Pulmonary Hypertension Association (PHA)

This glossary appears in Pulmonary Hypertension: A Patient’s Survival Guide. It was modified for the web to include links and additional references. The Glossary can be searched on the dedicated page on the PHA Website at this link

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European Medicine’s Agency (EMA) medical terms simplifier

The European Medicine’s Agency (EMA) medical terms simplifier contains plain-language descriptions of medical terms commonly used in information about medicines. This resource is continually reviewed and updated internally, and the EMA publishes updates periodically. Check the EMA medical terms simplifier at this link

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Educational programs for pulmonary hypertension patients and caregivers offered by the Pulmonary Hypertension Association (PHA)

The Pulmonary Hypertension Association (PHA) offers education programs for patients and caregivers through online learning, regional forums and conferences. See the dedicated page on the PHA website at this link

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Mapping the main stakeholders in pulmonary hypertension care, a brief summary by Pisana Ferrari

The main stakeholders in pulmonary hypertension care, a brief summary Author: Pisana Ferrari Last updated December 13, 2024 The following is a concise overview of key stakeholders in the field of pulmonary hypertension care at a European and international level. This list serves as a starting point and will be regularly updated to reflect the

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