This systematic review, published on the Respiratory Medicine November-December 2024 issue, focuses on identifying and evaluating quality of life (QoL) measurement instruments specifically designed for patients with pulmonary arterial hypertension (PAH): EmPHasis-10, CAMPHOR, PAH SYMPACT, and LPHQ.
Using the 2018 COSMIN guidelines, the researchers searched multiple medical databases to assess these instruments’ psychometric properties. While the instruments showed varying degrees of internal reliability and validity, the review identified some limitations, including small sample sizes in reference studies.
The key findings emphasize the importance of having pulmonary arterial hypertension-specific quality of life tools, as generic measures often fail to capture the unique challenges of the disease. The authors call for future research to conduct more rigorous psychometric assessments to improve these measurement instruments.
The ultimate goal is to provide robust evidence to support the use of these quality of life instruments in clinical practice, ultimately enhancing patient management and understanding of pulmonary arterial hypertension’s impact on patients’ well-being.
Read more at this link on Respiratory Medicine web page
Citation
Respiratory Medicine, Volume 234, November-December, 2024, Appraisal and evaluation of the quality of life in pulmonary arterial hypertension instruments: A systematic review using COSMIN methodology, Gangemi Irene, Cedrone Nadia, Lommi Marzia, Paolo Iovino Vellone Ercole, DOI: 10.1016/j.rmed.2024.107829
