Members of the Alliance for Pulmonary Hypertension and from the pulmonary hypertension community contribute to the Pulmonary Hypertension Knowledge Sharing Platform by sending resources, articles, videos, patient stories and other relevant materials.
Our regular contributors are:
Pisana Ferrari – AfPH and PH-KSP websites administrator, PH-KSP content creation/curation, organisation of live webinars and pep talks
- Background in Political Science and International law
- 30+ years experience in communications and event management
- Diagnosed with pulmonary arterial hypertension in 1988, 23 years since double lung transplant
- Involved in patient advocacy since 2003
- President of AIPI, Italian pulmonary hypertension patient association
- Secretary General of the Alliance for Pulmonary Hypertension
- List of patient advocacy activities 2020-2025 at this link
- Full CV here
Suzanne Lea – PH-KSP content creation/curation
- Bacheler degree in English Language and Linguistics, Sheffield, UK
- Professional experience in Tourism and Hospitality Events and Venue Management
- Diagnosed with Pulmonary Arterial Hypertension in 2005
- Double lung transplant recipient in 2015
- Volunteer for the Alliance for Pulmonary Hypertension
- Full CV at this link
Alena Adarbehova – Social media and PH-KSP content creation/curation
- Experienced Pharmacist in a hospital pharmacy with direct interaction with patients until her diagnosis of idiopathic pulmonary hypertension
- Diagnosed with pulmonary arterial hypertension in 2006
- Has undergone 2 double lung transplants, in 2014 and 2017
- Expert patient at the European Medicine’s Agency (EMA)
- Volunteer for the Alliance for Pulmonary Hypertension
- Full CV at this link